The case of the tiny little IUD vs Natural Urban Mama.

April 21, 2012
By

I have had more than a few ‘foreign’ materials in my body over the years.

I have titanium hip joints and polyethylene and ceramic hip sockets.

I have had surgical steel rings pierced in my belly button and various parts of my ears.

And up until 6 weeks ago I had a tiny little T-shaped polyethylene and hormone-filled device in my uterus.

Yes, I am talking about the ever popular intrauterine device known as Mirena.

Three and a half years ago, after Princess L was born and we were pretty darn sure that we did not want anymore babies, this seemed like a really great birth control option. Easy office appointment to have it put in place, minimal side effects (more on this in a bit), safe to use while breastfeeding and no need to even THINK about having an oops baby for at least 5 years. What was not to like about it?

So in I went to get it inserted and off I went on my merry way, having glorious birth-controlled sex with my husband for the next three years without a care in the world. (Uhm, do not try to confirm this with him, his version MAY be a bit different than mine… 2 babies under 2 years old people!!)

I thought I had hit the jackpot of birth control. I really didn’t feel like I had any major side effects from Mirena. And I stopped having a real menstrual cycle and period for the three years that I have had the Mirena in place.  I have not had to purchase more than a few boxes of panty liners to deal with dear old rarely visiting Aunt Flo and I told all my friends about Mirena and I have recommended it to lots of mamas.

I was the poster-mama for Mirena!

Or was I?

In the past three years, I have had two major bouts of depression. One I chalked up to postpartum depression (PPD) after Princess L  and one I felt was due to life just overwhelming me.

I have been so severely fatigued for the past 2 years that no amount of sleep could fix it and no reason identifiable on any blood work or medical test has been found that would explain it medically. This too I attributed primarily to having a newborn and a 22 month old, tandem nursing and kids that needed a lot of night-time parenting and later to me just doing too much and staying up way too late trying to get it all done.

I have had multiple episodes of such severe bloating and abdominal pain that I have had an ultrasound to rule out a ruptured ovarian cyst, a trip to the emergency department for a suspected appendicitis and I have spent multiple nights doubled over and writhing in pain in bed with no relief from any and all forms of over-the-counter anti-gas medications.

I have lost whole handfuls of hair and have the perpetually clogged shower drain to prove it. I thought as first that this was the normal, post partum hair loss phenomenon, but it has continued for three years. I have to clean my hair brush at least twice a week and could have probably made a whole new head of hair with all that I have lost so far.

In the past 6 months I have had more migraines than I have had in my entire life. I never really understood when people would say, “I have a migraine, I have to go lay down” until now. I have had such bad headaches that I have had to turn off all the lights, close the blinds and just lay on the couch with my eyes closed while the kids watched a movie. The last few have been so bad that on those days, as soon as Natural Urban Dad would get home from work, I ended up crashing in my room for multiple hours, waking only to pee and drink water.

And while we are talking about Natural Urban Dad, remember a few lines ago when I said I was having wild birth-controlled sex? Well, I would have been had I had any kind of libido to speak of! I am serious, it slowly but surely disappeared on me completely this past year. Poor husband… and poor me! Because I kind of like sex and all!

And finally…

I have been working out with a personal trainer for the past year. I watch what I eat, I don’t drink, I don’t over-indulge in sweets or snacks and I am relatively active given my limitations due to my RA. And for the last year I have been trying to lose the same 15 pounds and the scale has not budged more than 3-5 pounds.

Why is all of this relevant you ask? And what does it have to do with Mirena?

Well, have a look at the list of COMMON side effects listed in the product prescribing information for Mirena.

*The BLUE highlighted ones are MY symptoms.*

What are the more common side effects of Mirena?

Possible common side effects of Mirena include:

Discomfort during placement. Pain, dizziness, bleeding or cramping may occur during placement. This is common. Let your healthcare provider know if the cramping is severe. If these symptoms do not stop 30 minutes after placement, Mirena may not have been placed correctly. Your healthcare provider will examine you to see if Mirena needs to be replaced or removed.

Expulsion. Mirena may come out by itself and no longer prevent pregnancy. Symptoms of partial or complete expulsion may include bleeding, pain and an increase in menstrual flow. If this occurs, Mirena may be replaced within 7 days of a menstrual period after pregnancy has been ruled out. If you notice Mirena has come out, use a back-up form of birth control like condoms and call your healthcare provider.

More than 10% of Mirena users may experience:

  • Missed menstrual periods. About 2 out of 10 women stop having periods after 1 year of Mirena use. Your periods come back when Mirena is removed. If you do not have a period for 6 weeks during Mirena use, contact your healthcare provider to rule out pregnancy.
  • Changes in bleeding. Your period may become irregular and you may have bleeding and spotting between menstrual periods, especially during the first 3 to 6 months. A few women have heavy bleeding during this time. After your body adjusts, periods usually get lighter and the number of bleeding days is likely to decrease, but may remain irregular. Or you may even find that your periods stop altogether—in which case, you should contact your healthcare provider to rule out pregnancy.Call your healthcare provider if the bleeding remains heavier than usual or if the bleeding becomes heavy after it has been light for a while.
  • Pelvic and/or abdominal pain may occur. Talk to your healthcare provider if the pain is persistent.
  • Cyst on the ovary. About 12 out of 100 women using Mirena develop a cyst on the ovary. These cysts usually disappear on their own in a month or two. However, cysts can cause pain and may sometimes require surgery.

Between 5% and 10% of Mirena users may experience:

  • Headache/Migraine
  • Acne
  • Depressed mood
  • Heavy or prolonged menstrual bleeding

Less than 5% of Mirena users may experience:

  • Vaginal discharge
  • Breast pain or tenderness
  • Nausea
  • Nervousness
  • Inflammation of cervix, vulva or vagina
  • Pelvic pain during your period
  • Back pain
  • Weight increase
  • Decreased sex drive
  • High blood pressure
  • Pain during intercourse
  • Anemia
  • Unusual hair growth or loss
  • Skin irritations (such as hives, rash, eczema or itching)
  • Feeling bloated
  • Swelling of hands and/or feet
  • Expulsion

Every individual responds differently to medication, so talk to your healthcare provider about your individual risk factors and to see if Mirena is right for you.

And here is something else I did not know. The hormone used in Mirena is called Levonorgestrel and is often referred to as a ‘progestin’, which kind of sounds a lot like the naturally occurring  hormone progesterone right? WRONG. Levonorgestrel is a hormone disrupter and has the opposite effects as our own progesterone (which only makes sense really given that progesterone is often called the ‘pregnancy hormone’). Levonorgestrel is also the active ingredient in the Norplant birth control implant (which is no longer available in North America) and also at higher doses is the drug that makes up the Plan B or ‘morning-after’ pill(s). Huh? The things they don’t tell you about at the doctor’s office….

Here is how this all played out for me and how I figured out what {I believe} was going on in my own body.

About 4 months ago a friend of mine got her Mirena IUD inserted. And a couple of months after that she told me that she was not too convinced about it and was having some issues. She was tired all the time, was bloated and had gained about 5 pounds on her VERY fit and tiny runner’s body. It was around this time that I started to put two and two together and realized that all of the annoying and kind of non-specific symptoms that I had been having for the past few years, might just be related to MY Mirena IUD as well. And I started to do more research.

To be completely honest, I have wanted to have my IUD removed for about a year. I went to see my family doctor about it in 2011 and told her I just didn’t want any more foreign substances in my body. At that time she convinced me to keep it in so that Natural Urban Dad and I did not have to worry about getting pregnant before he had a chance to book his snippity-snip appointment (still not booked BTW)!

Six weeks ago I saw my doctor once again. I went over my list of concerns, what I had found out about the side effects of Mirena and what I wanted to do about it. She insisted on ordering another laundry list of blood tests, which all came back completely and utterly normal, and a week later at another appointment I finally had the offending little piece of plastic removed from my body.

I have to say, that already I feel better without it. Whether this is a placebo effect or real relief from the side effects, I don’t know for sure. I do know that there had been no more excruciating cramping and bloating, I haven’t had a migraine in five weeks and the ‘I can’t even keep my eyes open while driving’ extreme fatigue is gone. Oh, and that little problem with my libido… that seems to be gone too, which is making someone else around here very happy!

And this week for the first time in over four years, dear Aunt Flo came for a REAL visit. To honour this occasion, I took another step in the direction of living my natural urban mama life and invested in my first ever Diva Cup.

So what is the moral of the story here?

Mirena may sound like the perfect birth control solution and for some mamas it may well be… BUT please be aware of ALL of the side effects, and what can happen to you while on this medication. Do some research, ask around and make sure that this is the birth control method  that really is for you. There are whole blogs and websites dedicated to the stories and cases of women’s lives with and then after Mirena and some of them are pretty scary. And while these may be some extreme cases, they made me pause and re-evaluate the role that Mirena has played in my life and convinced me to have it removed.

I really wish I had known more about this sooner and had stuck to my guns a year ago with my GP and had it taken out then.  But here I am now, I know better and I now have one less foreign object and synthetic chemical substance in my body.

And that is a good thing.

Natasha~

Have you used Mirena? What has your experience been?

UPDATE: One year post Mirena. Here is my follow up post a year after I had the Mirena IUD removed.

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387 Responses to The case of the tiny little IUD vs Natural Urban Mama.

  1. Laurie on April 22, 2012 at 12:01 AM

    Well stated my friend….thanks for posting!

    • Natural Urban Mama on April 22, 2012 at 7:33 PM

      Thank YOU for making me question things further and get to the bottom of this!

      • Emalie on February 14, 2013 at 8:26 AM

        Thank you so much!! My doctor JUST ordered this for me. I already have an ovarian cyst, fibroids and endomitriosis..WHY on EARTH would I put something in my body that has the same symptoms I’m already having??
        THANK YOU..I’m saying NO!

      • Maren on February 25, 2013 at 8:30 PM

        I have had my Mirena for four years and I have had almost exactly the same experience! It was fine for the first few years, but over the last year its seemed to have gone crazy. No libido, hairloss, extreme exhaustion, depression, ovarian cysts and breast cysts. I’m 38 and I feel like I’m in my 60s. My mirena has become embedded in my uterus and will require surgery to remove, it’s scheduled for March 21. A friend of mine had hers become embedded as well. I will Never voluntarily put another foreign object in my body let alone hormones. What was I thinking?? I just hope I regain my health after its gone.

      • Jennifer Hoffman on March 5, 2013 at 2:58 PM

        Emalie – I would seriously consider Mirena. I had stage IV endometriosis and ovarian cysts. I had surgery to remove the endo and an endo adhesion that had glued the uterus, bladder and my fallopian tubes completely CLOSED! And that was even after I tried the horrible Lupron for a year. Not all cysts are painful and ovarian cysts naturally occur in a majority of women throughout some time of the month because ovaries change shape and are kind of cyst-like themselves.

        Without my Mirena the last 4 years I would likely be unemployed, in pain, on Vicodin constantly, and basically have no life, would’ve lost my job and my home, etc. Mirena is the ONLY birth control available that does not have estrogen at least in the states. The more estrogen=more blood=more possible growth of endo and probably fibroids too.

        Don’t rule this out as a option to consider. I also do some natural remedies that I have my surgeon – added in Cumin, Tumeric, Magnesium and Potassium into my diet. Specifically a magnesium supplement, bananas (a few a week), and have eliminated a majority of grains because they create inflamation and endo is wonderfully inflammatory.

        I’m no expert, but I’ve spent countless hours on research that my surgeon has asked me to participate in some trials… Over 4 years of very minimal and/or rarely pain there are ways to find to cope if you locate the right doctors and methods…

        Don’t get me wrong – I hate medicine – but I swear the mirena has been a life saver for me along with finding some natural solutions including diet changes. It’s worth it as I’m also now off blood pressure meds and Nexium. I also no longer have symptoms of IBS or PCOS.

      • Sarah on March 22, 2013 at 5:18 AM

        I’ve only had my mirena for 2 months and although my periods are so so much better, I feel huge. I cannot get my jeans on and everything feels so tight. My stomach sticks out like I’m five months pregnant too. Is it possible that it cause so much bloatedness in two months. I am so concerned about the bloating that I went to the doctors today who have referred me to have a CA125 blood test which has really worried me.

      • Anna on April 2, 2013 at 7:27 AM

        I had my Mirena inserted in August after I had my baby. I had been using birth control pills unsuccessfully and my recently-born was definitely an “oops” baby. In order to avoid that situation again, I chose the IUD. What I’ve been noticing, however, is that at the beginning (especially around PMS time) I would feel horribly sad and depressed and even vaguely suicidal. It would pass the next day. The longer I had it the less issues I had with those things. But now I’m feeling tired and foggy mentally, and I’m a teacher so that doesn’t work out well–I need my clarity of mind. Sometimes I step back and think to myself: “what on earth did I just say? Did it even make sense?” I also have had insomnia at least once a week where I will wake up or hear something and wake up at around 2 or 3am and then not be able to go back to sleep. I will feel anxious about something. Recently, I have felt my heartbeat get a little faster in a very strange way. I was going to find out if cutting back on the coffee would help with the heartrate and anxiety. I haven’t really experienced any changes to my libido that I can tell. The thing is: if I go off of Mirena, there’s still the anxiety I will feel that I might have another “oops child” and I am trying to finish my Master’s degree right now while taking care of the two children (4 years, and 7 months) that I already have… When do you know that it’s “enough” and it’s time to take it out? Also, I’ve heard horrible things about “the Mirena Crash” after taking it out and I can’t be out of it for a week while my body tries to recover because I have to be in the classroom to teach. :-( Just wondering what I should do.

      • Natasha on April 3, 2013 at 10:48 AM

        Hi Anna,

        I think the ‘crash’ is different for everyone. I had my Mirena in for 3+ years and did not have a very hard crash at all. I can’t tell you what will happen to you, but if you find that it is affecting you in your day to day life and job, then maybe it is time to look for another BC option.

        Good Luck,
        Natasha~

      • lisa on April 21, 2013 at 12:22 PM

        I could have written your article, however, the less than 5% of symptoms list – well, I almost inurred ALL of them. In addition, my health providers were very vocal that the weight gain is NOT a side effect of Mirena and that had to be all Me. I cannot wait to feel back to normal. I had mine removed on Friday, it’s Sunday afternoon. I have to say the removal went incredible. I had placed a pad on since and removed it today because I had no bleeding. However, I’m writing this because all of a sudden, I am bleeding so badly with clots and stomache cramps. It may be my first period in 2 years, I don’t know.

        I truly, truly recommend that someone not look at the less than 5% chance of some of these side effects, I believe they are truly greater than 5%.

        Do your research, listen to your body and don’t wait too long if you start to see these awful side effects. It’s not worth it!

      • Ashley on May 7, 2013 at 10:40 PM

        I’ve had my Mirena in for 6 days and so far I’ve gotten a headache everyday, random waves of nausea, and constant bloated feeling! I originally chose Mirena due to the freedom it offered since I was constantly forgetting to take my pills. Im giving it until the end of the month and if nothing’s changed I’m getting it taken out.

      • Sue on June 27, 2014 at 4:14 PM

        Hi everyone, I wish I had read this before having a Mirena!

        I had a hysteroscopy (painful) and a mirena fitted on 11th June. I was ‘strongly’ advised to have the mirena for heavy menstrual bleeding, it wasn’t for contraception. It was a painful experience!

        Within hours I didn’t feel very well, but was advised to expect some discomfort. Within 24 hours I had developed pain in my lower abdomen, was feeling nauseous and generally unwell. I visited my doctor who prescribed me antibiotics as she suspected it was an infection.

        3 days later I was in accident and emergency in the most awful pain, severe breathing difficulties, very nauseous and my friend said I was “white as sheet.” I was given pain killers and an appointment was booked for a few days later to have a scan to check everything was ok. I was discharged home.

        The following day my symptoms worsened, honestly, I’ve never felt so ill, so I went back to accident and emergency. By this time I had also developed an awful headache, the abdominal pain was excruciating, I was very nauseous and I was really struggling to breathe.

        I was admitted to hospital and thankfully had that horrible thing removed from my body. It’s nearly a week ago and I’m only just starting to feel better. Being breathless was the scariest thing. I also got migraines (as advised by the doctor) from this, which I’ve never had in my life.

        I’m a fit and healthy women, with no medical conditions, I don’t take any medication unless I have to. From my experience of having a mirena, I will never have a coil ever again. I suffered severe side effects which medics failed to fully recognise and act upon quickly. I would urge anyone to visit their doctor immediately if you develop any out of the norm symptoms for you.

      • Hallie on July 2, 2014 at 8:02 AM

        I had the Mirena placed just this past February. Since then I’ve had maybe three weeks without bleeding. Right now I’m at the 2 month mark of a constant very slow flow. I’ve been having health problems and just had a huge panel of tests done which came back saying I’m super healthy – although I did find out that my family genetic history of high cholesterol has caught up with me. Bummer… but not what’s creating my health issues.

        My gyno strongly advised I get the Mirena as I’ve always had heavy periods and at the age of 45 – I’m quite tired of them. I researched online and came back to her with my concerns. She scoffed at the information I found online and said that happy people don’t post and that the claims being made by women are ridiculous. I felt chastised and silly for voicing my concerns.

        Since having the Mirena, I’ve experienced significant weight gain – 20 lbs in 5 months – that I can’t seem to loose, legs and feet swollen so much that I can’t put my sandals on many days and even my flip flops leave indents in the top of my feet, short of breath, disconnected from life… I’m just not all here, and unfocused/unmotivated which is killing me as I have my own small business that depends on me to do all aspects of. And a sense, constantly, that something is REALLY wrong. Oh – and no libido – but I’ve been able to blame my disinterest on the constant flow.

        I had an expensive ultrasound done on one leg – to rule out blood clots. I’m scheduled for an ekg tomorrow although my dr. said that doesn’t fit my symptoms either. The medical community isn’t willing to consider that the IUD is the root of my problems. I’ve been to the Dr more in the past six months than in the past 10 years combined.

        I have a routine examine at my gyno on July 14 and I called this past week to tell them that I also want the IUD removed during that exam. I can’t wait to have this thing out of me – and I’m saddened to hear that weight loss doesn’t appear to happen easily once it’s gone.

    • Julie H on February 4, 2013 at 9:49 AM

      Natural Urban Mama,

      I am almost in tears from relief after reading this article. The last 6 months of my life have been HELL. NO motivation, no drive of any kind, always very tired, moody, increased sweating to the point my pajamas are soaked in the morning, acne, bloating, heavy heavy periods, sugar/carb cravings like crazy…. and serious SAD/Depression. I have made an appointment to see the Gyno to have my Mirena removed, after 4 years it would appear it’s done it’s job and according to my family doctor it tends to “go wonky” (??) and I assume that means sends more progestin through my body. IDK the medical facts to what “wonky” means but I do know I’m DONE with this thing. I can’t continue like this anymore. So THANK YOU so much for helping me see I’m not crazy after all.

      Julie

      • Julie H on February 4, 2013 at 9:54 AM

        P.S. For those who think I’m a Mirena Hater – I’m not. I thoroughly enjoyed the inital first few years of it. It would appear that if you can tolerate it – eventually it MAY cause some issues. So please don’t respond with me needing to use my brain or that I am a tree hugger etc etc….. not true. It worked but it’s time is up.

      • Natasha Chiam on February 4, 2013 at 3:08 PM

        Julie- I was the same way for the first few years too. No problems at all and I even told all my friends about how wonderful it was. I guess mine just went “wonky” too. I have to say that almost a year without it has made a big difference all around for me. good luck, N~

      • MT on February 7, 2013 at 3:28 PM

        I think the side effects are different for everyone, but I agree with Natural Urban Mama. If you feel anything is off consider that I might be Mirena. I also have had the same side effects and really did not attribute it to the IUD until I eliminated everything other possibility. I gained about 10 pounds even though I am a runner and eat really well. I started to loose more hair than usual. More feelings of depression. And I started to get acne in odd places. Today I finally took it out and hope to get back to normal. Mirena may work for others but it’s important not to rule it out if you feel things are different with your body.

      • Bree on February 8, 2013 at 11:27 AM

        There it was this morning in plain site on the floor beside my bed, and I thought to myself “HMM that looks familiar, but thats not where it should be!” Then as I am trying to find out what it looks like I find this page and find out that Yep, I found my Merena IUD, on the floor, It just fell out… how does that happen. Thanks for the info.. this article explained a ton and now I can quit freaking out!!

      • Kelly on February 9, 2013 at 2:59 AM

        Hi Julie

        I have had very similar symptoms to you after having the Mirena fitted on 25th August 2012. I thought I had just developed anxiety due to stress. But the anxiety got worse and worse, then came the depression, I felt like I was going crazy. I was doing everything the doctors said… Counselling, CBT, yoga, exercise. None of it was working. What I started to notice was that for 1 week of the month I would feel back to my normal self. I presented this to my doctor and he told me to just keep going with the hard work-no mention of Mirena.
        I started getting anxiety attacks and severe depression – I didn’t want to live my life at all anymore if it carried on the way it was. I also developed IBS, night sweats, abdominal pain, back ache, nausea, increasd hair grown on tummy and nipples and upper lip (eurgh) and no sex drive what so ever.
        I had a break down and left my home and partner and moved back in with family and saw a new doctor, she took the coil out immediately. I had a blood test at the same time and it has now been 2 weeks since removal. My blood tests came back normal and the doctor started suggesting methods for anxiety, just as my old doctor did, this upset me and I burst in to tears-THIS IS NOT ME! I am 24, usually very active, eat well, enjoy life, outgoing and very happy/positive.
        I left the doctors feeling very upset…
        Some of my symptoms are a bit better, I am wondering how you have been feeling since having yours out? I have not had a period yet and I am hoping that having a period will make the anxiety go away a bit more. I think at the moment I am just starting to come out of the ‘Mirena Crash’.
        I need some hope that I will start feeling better, as I feel so alone and my doctors seem to be in denial!

      • amy on March 1, 2013 at 6:37 PM

        I just had my mirena put in on feb 6th 2013 at the advise of my dr ( I am a single mom of 4 ages 19 , 16 , 4 and 4months )i wanted to have my tubes tied but the dr said since i don’t really have any help at home she would prefer that i don’t have surgery but instead have the mirena put in , she made it sound really great saying that it should stop my period . Well i have been reading alot of websites and blogs on it and have not heard one good thing about it , I have only had mine a few weeks but i’m already experiencing major hair loss to the point my older kids have even noticed ( but i thought it was from having it pulled back in a ponytail 24/7 ) I have always had a problem with being tired and getting proper sleep but OMG these past few weeks have been horrible no matter what i do or how many extra large coffees and cans of coke i drink in a day i cant seem to keep my eyes open they are always burning ( but im also on meds for depression so not sure if its those making me feel so tired ) and i have now had my period for 12 days going between light and heavy along with a bad smell no matter how much i wash :( and im still getting clots which i was told i would no longer get ,my knees have been so sore i can hardly stand up sometimes and i get tingling and pain in my arms … I know i have barely had the mirena a month so my question to all of you is , am i just freaking myself out by reading these blogs and reading too much into what i’m feeling ? is it too soon for me to know if it’s the mirena ? should i have it taken out ?

        ( thank you for not judging me )

        Amy

      • Tygerbaby83 on March 7, 2013 at 5:42 PM

        Mirena turned my life to a personal hell. After my son was born I got a mirena iud. About 5 months after having it put in, I tried to commit suicide. I was so depressed and had no care in the world. I kept it for 4.5 years. In that time I was diagnosed with bipolar disorder, anxiety disorder and personality affective disorder. I cycled with moods and behaviours constantly. I was at my worst when it was time for my period. I was a heavy smoker and I smoked marijauna as well. I was put on a wide array of medications to combat my symptoms. I have been on almost everything and each time it would work at first and then I’d develop extreme symptoms like rashes and mood swings and migraines and very depressed mood and I would have to change the medication again. So in deep thought, I started to wonder if mirena was my problem. I had it removed in September 2012 and currently today I am completely off all psychotropic medications, I do not smoke at all and I am doing great!!! I am now also 6 weeks pregnant. Life is back to normal now and I thank my gut feeling about the Mirena iud. I will never ever use an iud again!!!! If I get pregnant, it was meant to be!!!

      • Karla on March 12, 2013 at 2:01 PM

        My husband was afraid of vasectomy and I was afraid of tubal ligation…after 4 kids it was time to do something. I tried mirena, within 3 weeks my somewhat flat stomach began to pop out like I was pregnant again. I decided to endure it as I am not ready to have 5 children. I became moody and developed joint/muscle pains. I have an appt to have it removed next week (it has been 5 years)and am considering new birth control options. I am 43 and do not want to use the pill.

      • k on February 6, 2014 at 6:51 PM

        I think everybody is different and needs to listen to their own bodies! I have had Mirena for almost 6 months and having it removed tomorrow. It has definitely for me caused more grief than relief. I am older (46) and had surgery for stage 4 endometriosis over 20 years ago! I have since had great success with pregnancy. I am not in menopause and had an early miscarriage (clinical preg) this past year which prompted the placement of the IUD. From day one it felt unnatural to me…I bled non-stop for the first 3 months…then the moodiness; headaches everyday; excessive joint pain; easily angered; severe weight gain (I have never had an issue with my weight and my BMI was under 20). The only plus is not having severe cramping with menstruation however, I have all of the other gastrointestinal issues associated with endometriosis but because I no longer menstruate I am not sure there are not other things happening. I will take back the pain and at least know what is happening than to deal with all the larger issues…it will also mean maybe taking over the counter pain relief for two days instead of everyday!

    • sam on February 9, 2013 at 5:14 AM

      I have had the mirena for 3 years now and am having it taken out this week!!!!

      2 nights ago I was hospitalized when an ovarian cyst ruptured. I cannot explain the pain!!! I honestly thought I was going to die from pain!
      Don’t get even get me started on weight gain, hair loss and NO sex drive! This thing has changed my whole life for the worst! DO NOT GET IT!!!!

      My doctor keeps telling me these things arnt related to the IUD, but I know they are! I know my body and nothing was wrong until I put this dam thing in. I cannot get rid of the weight I have gained, so my confidence is shot and my lack of motivation is now affecting my work.

      Worst idea ever….

      Don’t do it….

      • Blanca on April 8, 2013 at 2:07 PM

        I have had the Mirena since Dec. 09 so a little over 3 years. Until the last few months It seemed to be doing its job. I was able to endure the bloating, slight depression phases and mood swings and complete loss of libido (since the Mirena was inserted). I have now has pregnancy like symptoms with several false negatives, my mood swings have worsened, I have started getting acne on my shoulder areas and have never had acne in my entire life. I now experience nausea almost every day, headaches and weight gain continues. I never pieced any of these symptoms together until I started researching the Mirena and what problems it can cause. Thank you all for posting, I definitely do not feel so alone. I have an appointment next week for removal of Mirena. Does anyone have any progress stories after removal??

    • Bree on February 17, 2013 at 10:10 PM

      Wow, thank you! I have everything you have mentioned in your post. The only good thing to happen to me was a slightly lighter period, by that I mean no clotting, everything else remained the same. I have an appointment to ‘discuss’ it in a couple of weeks, I don’t think there will be any discussing of anything, I want it gone! (so does my partner!!!) I got it to help with my very heavy period, not for contraception, so for me it’s a huge FAIL! I’ve had it for 16 months now and there’s no sign of anything easing!
      So thank you again for making me realise I wasn’t imagining any of it!

    • Laurel on March 3, 2013 at 2:43 AM

      In 2003 I had the Mirena put in and don’t remember having the the horrible mood side effects I had this time. But the first time it did become imbedded in my uterus and I had to have it surgically removed. I had it removed after 3 yrs because I wanted to get pregnant that was in 2006 and 6 yrs later we had still not gotten pregnant and we decided that we didn’t want to start all over again with a baby at this time. So in Dec 2012 I had another mirena IUD put in. My doctor told me the hormones were not systemic and mainly stayed in the uterus and minute amounts only got to the blood stream. If had know that more recently it was found that this was untrue I would have never gotten it the second time. I know that having it removed surgically the first time would have stopped most people right there! Over the past 2 mos I gained 10 lbs without changing my eating or exercise habits. I became depressed and moody and very argumentative. My husband noticed. We had been fighting all the time whereas 2 mos ago things were ok. I would feel extreme rage, to the point where I impulsively threw my phone in a snow bank.. Last night I was reading some posts like theses and realized I needed to take the IUD out immediately!! I asked my husband to help and after several tries it came out!!! No pain! No bleeding yet , I m so excited to feel better now!

    • Kat B on March 5, 2013 at 7:01 PM

      I *just* had mine removed today.
      I’ve had it in less than a year and I put on almost 17 pounds in that time!
      Now keep in mind that I ran*21* race events in 2012 – 21! Everything from 5K events to a 1/2 marathon!
      And all I did was gain, and gain, and gain – to the point that by the time I got to my last event in 2012 I could hardly breathe properly, my knees were shot from my sudden and inexplicable weight gain, I was having panic attacks, and before I could drive home I’d have to pop Tylenol to offset the migraine that was now becoming common after EVERY race event. Depression – there were days I couldn’t even figure out how I was going to get out of bed. And sex? Phht. I’m surprised my husband *hasn’t* sought out an affair cause that stopped 7 months ago! And while I was told there there were side effects, I was told that they were rare! But after doing research I have read so many reports of the same side effects, the same issues, the same questioning of one’s sanity. Its important that women who have suffered in silence speak up so we can save others from going through this same madness.

      • Amber on March 17, 2013 at 8:40 PM

        Wow .. You know the infamous saying “everything happens for a reason ” ?!? Well let me tell you .. I have an appt to have mine removed tmrw am which I have been kind of nervous about since it has been in for 3 years now. The thing I have been nervous about is how I will change because of being off of the hormones. But after reading all of these stories it was like I was reading my own !!! So exactly alike that I had my hubby read them too !!! It is unreal how freaking down hill the past 3 years have been for me in every wy physically, mentally, etc and how rarely I thought it could all be summed up to one thing !! Now I am excited and can’t wait !!! Thanks for sharing :)

      • Anon on March 3, 2014 at 1:37 PM

        Whoa, your story is so very similar to mine, except I’ve had mine in three years now. The first six months I dropped weight easily and had NO problems.

        Then, I started gaining weight in 2012 (18 months after getting Mirena inserted) and gained 17 lbs even though I ran 14+ races, counted every calorie and worked out pretty religiously.

        I just started researching this stuff today on a friend’s suggestion and I’m finding I’m experiencing what so many others have – skin issues, no libido, dry eyes, more frequent headaches and unable to lose the weight I’ve gained since getting my Mirena.

        I have an appointment with my doctor in a few weeks to discuss other options.

        Thanks for sharing your story!

    • maria on March 8, 2013 at 7:16 PM

      I have loved my mirena!I have not had any symptoms only positive things to say about it.I am so sorry to hear all the things that each of you have had with it.My concern now is my daughter went to her doctor and he told her that he doesn’t recommend mirena because he said there are studies being done currently stating that it is a form of abortion.When she told me about this my heart sank! I am a Christian women and am completely against abortion to the point that I almost removed it myself.I have had the mirena for almost 6 years now and would love some feedback.I spoke to my doctor about it today and she does not agree with what my daughters doctor.Please give me some input,thanks Maria!

    • lisa on March 16, 2013 at 5:05 PM

      Ice aHi, I am a mother of six, I had a mirena inserted in 2007, removed it in April 2008, so not even a year I gained 30 pounds, I blamed it on beer which prob contibuted, anyway I took it out after being in my second relationship over a year to have a baby, I got preggars right away, I had low iron, had a hard time with delivery. In 2009 I had an iud inserted after baby girl was born, worst post partum ever, I was breast feeding, had low iron. We decided to have another baby and I finally got preggars in 2010, the baby girl was born in Mar. 2011. I made an appt with gyno to have tubes tied, he talked me out of it said mirena is. More successful than tubal ligation and I would prolly get pregnant if tubes tied but mirena is highest success rate for birthcontrol. I believed him, I had mirena inserted for two years and just removed it on the 6th of march. I am feeling relieved to finally know the mirena was the cause of all my post partum, depression, weight gain, fatigue, confusion, memory problems, swelling of abdomen, feet, hands, face, joints, hair loss, acne, etc. My period was heavy for 6days after removal, and now some old blood is coming out 6 days after that. I’m taking maca powder in my hot chocolate or plain water once or twice a day to help get my hormones back in order, I hope it works sooner than later.

      • Mireille on January 28, 2014 at 6:38 PM

        Hi Lisa,
        How did the maca powder go? If it went well, how long after you started using it did you feel the results? I’m thinking of taking some with my morning shake, did it help your hormonal imbalance?
        Thanks

    • Annie on March 18, 2013 at 10:20 AM

      I am in tears now (tears of joy :)thanks to you) its not all in my head, their is something wrong with me and thanks to this article we’ve narrowed it.

      I just wanted to say Thank you for detailling your experience. I am in the same situation as you and I have made an appointment to see my doc to have it removed.

      Also thanks to all the others for posting. I do not feel alone anymore.

      • rejena on March 19, 2013 at 2:54 PM

        be carefull I couldnt get my tubes tied and bam i have a baby now lol.
        wish you all the best.

    • rejena on March 19, 2013 at 2:51 PM

      I had Mirena for four years and I also thought it was the best at first. No period and no worries, well I should have went to my yearly check ups because my iud was sideways. When my doctor went to check it he couldn’t find the wire. Obvioulsy it was embedded in me somewhere I never got the straight answers. At first he assured me it was ok. but I insisted on him finding and removing it. I had to b put under and surgically removed and he then noticed a mass on my ovary. I will be going to see what this is if it was a cyst or what. I was also very depressed and I never put two and two together until I read this. I was dyagnosed with ppd as well but i didnt know what was wrong i cried all the time i wanted to sleep forever i thought due to the many anti depressents i tried. I eventually got addicted to xanax and was on paxil. I one day decided to just stop taking these pills and after the merina was gone so was my depression. but i still hv mood swings lol and all i know is I never ever want to feel that way again.

    • Sue on March 19, 2013 at 4:04 PM

      I’m 57 and have had 3 Mirena coils, the 1st one was inserted around 1997(ish) when I was age 41. I had no partner but was having horrendous periods, the doctor recommended the coil instead of an operation to correct my periods, my periods stopped – happy days I thought. However, until very recently,I had no idea that his thing I have been carrying around inside me has been causing me so many health problems. Looking back I developed symptoms quite quickly, including giddiness, anxiety, depression, weight gain and lots of seemingly random health problems. Just recently I’ve been getting a horrible discharge, looking back I realise I’ve had his before. At 57 there was no reason for me to keep this in, I’ve just had it removed… the doctor took swabs for testing (I’m awaiting results). Today, almost immediately the discharge seems to have gone. I’ll keep you all posted on whether my other symptoms clear up on their own.

      My Main Symptoms
      Depression
      Anxiety
      Discharge
      Giddiness
      Stomach Cramps
      Painful urination
      Horrendous fatigue no matter how long I sleep
      In 1997 I lost my hearing my left ear, I was diagnosed with Menieres (a timely coincidence? Or connected?)
      Hair loss
      Confusion and muddled thoughts

      • Sue on March 20, 2013 at 12:16 PM

        UPDATE: The disgusting discharge stopped completely within a few hours of having the Mirena removed. Today, I feel brighter, more upbeat, no sign of discharge either.

      • kimbrulait on March 26, 2013 at 1:29 AM

        All I can say about the Menieres is that it really worries me! I had Mirena for 6 months and one weird symptom was that I had ALOT of wax building up all the time to the point of being very annoying. Soon after I had it removed my ears were back to being normal. That completely freaked me out that the little devil (as I like to call it) had such a bizarre effect on me!

    • T.S. on March 25, 2013 at 9:45 AM

      I thought the Mirena would be a great option for me and had it inserted in Dec 2012. I’ve been overheating at night, put on about 20 lbs of weight. My face has exploded with acne. My mood swings are unbearable. I work out daily and eat healthy, yet I keep putting on weight. My libido is non-existent which is not ok! I just called and made my appointment to have it removed tomorrow. I wish I would have found this site sooner! I would have saved myself months of non-sense!

      • Megan on April 3, 2013 at 2:38 PM

        I got my IUD in November of 2012 and just called to make an appointment for tomorrow, 4/3/1013, to have it removed. I have had the same symptoms you have listed and more. I was a 4.0 student with a full ride to my first choice college and since I had it put in my grades have tanked. I have been so depressed for seemingly no reason (everything in my life is good, not really anything to complain about, no breakups or anything, so that was strange to me) and I have had extreme fatigue. Today, after getting a full nights sleep, I went to breakfast and came back and napped for almost 4 hours! I work out every day and am a tiny person to begin with, 5’9″ and 120 lbs, but i have gained 15 lbs since I got it, despite working out still. I can be really happy and laughing then crying the next minute. Its awful! Right before I called to have it removed I’d called to ask if depression could be a symptom and I left a message with the receptionist. started researching and saw this post and others and called again, deciding removal of the IUD would be worth it. I wish I had realized the side effects sooner and hadnt brushed them off as normal. Thanks!

    • Jackie Smith on March 26, 2013 at 12:45 PM

      I am so glad I found this site. I thought I was losing my mind. My health and energy were vanishing at an alarming rate despite the Botox injections and caffeine I was drinking.
      I had the Mirena IUD removed yesterday. By the time I drove home from the doctors office I was regaining my mental clarity. The IUD did stop my perfused bleeding but the price was gaining a disgusting 50 lbs,depression and insomnia, lack of libido, roscesa, bloating,nausea,chest pains,night sweats,and my blood pressure was starting to elevate. I slept wonderfully last night. I still have a ways to go before I get back to 100% but at the very least I’m not exhausted today. Thanks

      • Sue on March 28, 2013 at 6:32 PM

        Update: My weight is dropping naturally now. Lost 2lbs already, I’m feeling so much better. I revisited my docs this week and told her of my recovery, she almost couldn’t believe it when I said that by the time I got home from having my coil removed, my symptoms were almost gone. She denied she’d ever heard of my described symptoms being associated with the Mirena. My uterus is now normal, inflammation and discharge completely gone.

    • Lauren Masters on April 3, 2013 at 5:21 PM

      I’ve had the Mirena for almost 6 months & it’s caused me to have a constant period everyday since. Some days it’s light & other days it’s heavy. I never know from one day to the next if I’ll have a period or not. I unfortunately moved from the East Coast of Canada to Northern Alberta so I’m not able to see my family doctor so I went to the local walk in clinic & had an appointment with a doctor there. I told him what was going on & he gave me a cup to do a pee sample in & said he’d send me for an ultrasound to check the placement of the IUD if he wasn’t able to locate it when he examined my cervix. So I peed in the cup then went back to the examination room & he examined my cervix for less then a minute & was like “the IUD is in the correct spot, your cervix isn’t inflamed or anything so I don’t see a reason for you to need an ultrasound. It would just be a waste of time. The bleeding will stop on its own”. So I left & then today I was talking with my mom & she had been talking to a friend who has the Mirena as well & she’s experienced the same problems as I have. She plans on getting hers removed & switching to an alternative birth control. My mom then proceeded to tell me about a lawsuit advertised in my hometowns local newspaper that states Uterine perforation has been diagnosed in numerous women & they’ve since filed a lawsuit & are looking for more cases of similarility. The Lawfirm is called Wagners & their based in Halifax, Nova Scotia Canada. I plan to read everyone’s similar problems & will probably have mine removed & try a different form of birth control.

    • Aldona on April 4, 2013 at 10:02 PM

      It’s nice to see someone else have a mostly-positive experience. I’ve had some of those symptoms (fatigue and what-not) but I also have epilepsy and those meds make me tired anyway on their own. I’m in my 5th year of Mirena and later this year getting it replaced. Got it originally for endometriosis and would like to keep the status quo of little pain and no periods! :)

      I had a very pleasant side effect of it improving my mood. I don’t know how or why, nor am I questioning it. I’ll just take it and be happy.

      Sorry to hear you had a bad experience at the end, but glad you are better now!

    • Brooke on April 5, 2013 at 11:07 AM

      Hello Ladies,
      I have had my Mirena in for 2 1/2 years. During this time I have suffered from candida, GI problems, adrenal fatigue, chin acne, fatigue and the worst insomnia of my life. Thinking about getting my IUD removed. I am begining to think that all my health issues are related to Mirena. My doctor told me about a new birth control procedure. During a pelvic exam they go in and put corks in the fallopian tubes, its permanant and effective. I think I am going to have this done. Neither my husband or I want to have surgery and its a great alternative.

      • Edith O on April 5, 2013 at 5:55 PM

        In some weird way, is comforting to know that all the “strange” symptoms weren’t in my head… I had the Mirena for about 2 1/2 years. I gained weight, I became depressed, I almost because a-sexual, among other things, etc. The only good thing, was that I didn’t have any periods for most of the time I had it on. Now I have a few new issues… I had the Mirena removed on 1/31/2013, that was 10 weeks ago, still no period. However, I’m cramping really bad almost every week. I’m also having really bad migraines. Other issues include cold like symptoms twice already during the 10 week period after removing the Mirena. Oh, my libido came back with a vengeance… Does anyone know when should I see my period again? By the way, I’m not pregnant, my tubes were cut about 19 years ago. I had the Mirena inserted to control my heavy bleeding. Any thoughts? Suggestions? Should I be concerned?

    • chantel on April 9, 2013 at 9:27 AM

      thank you for posting that i thought it was just me everything to a tee is happening to me thank you i am getting it removed did you start losing your weight

    • choana on April 11, 2013 at 2:38 AM

      thank you so much i did not do my math on this thing and now am getting my removed and i only had it a year and a bit and i was the same has u with my husband thank u for opening my eyes!!!!

    • Lauren on April 15, 2013 at 8:27 PM

      I am so glad I took the time to read this.. I am calling my doctor tomorrow to have it removed (not sure if I want to go back on the pill or what to do) I have had the Mirena for 5 months now, I havent had a period for like a month and a half, which makes me a little worried bc I am soo used to getting it the same day every month when I was on the pill. Ever since I got the Mirena I have been breaking out like crazy, my nipples get very sensitive at times, I am also very tired all the time and barely have any kind of sex drives. I though maybe it was me all along but this seems to be very common. Also, does anyone still get cramping but no bleeding with the mirena?

    • Tammy on May 22, 2013 at 7:44 AM

      Thank you so much for your info, I kept having same type of side effects never actually related the to Mirena! I’m scheduling the ‘take out’ today!

    • Lori on May 26, 2013 at 3:24 PM

      I have just had my second Mirena put in a few weeks ago. The Mirena has saved me over the past 6 years. I have my tubes tied and my girls are grown up and out of the house, so for me the Mirena was not birth control. It was an issue of bleeding, clotting, and crazy low iron levels.

      I’m a 47 year old Fitness Professional, Health and Lifestyle Coach, a soccer player, a mom and an extremely health conscious person. I don’t like taking medications.

      I had few options when my monthly bleeding was horrific and creating chronic anemia. I was feeling completely UNLIKE myself before the Mirena. I was having troubles sleeping, feeling bloated, feeling “puffy” like my skin couldn’t breathe. The bleeding was ruining my clothing and causing me to have to stop every 5 kms to change my tampons/pads on day one and two of my period. It was nuts. I could barely keep my eyes open when driving!

      Since the Mirena, I feel normal again. I’m sleeping well again, I have tons of energy again, my body feels like it’s in its 20′s (as it normally had), and I love that I don’t have to purchase new underwear every month. It’s been fantastic. I am aware of the side effects, and I pay very close attention to my body. I’m open to believing it works for some bodies and not others, as so many other products and medications do as well.

      I’m just extremely thankful for how the Mirena has helped me to feel normal again. People are constantly surprised to hear that I’m close to 50, and I sure don’t feel it. This is my normal, and I’m just so grateful to feel this good. I wish everyone had the same response to this IUD. If I’d kept on without it, I’m doubtful that I would have been able to continue with my sports and some aspects of my work.

      Research this well, and discuss it in length with your trusted doctors. It’s your body. I just know that there is no comparison to how I feel on it and how I felt for three years before it. It’s been a saving grace for my body! :)

      Lori (British Columbia, Canada)

      • Kerry on May 14, 2014 at 2:51 PM

        I’m having the same problems as you with the heavy bleeding, it’s made my life miserable and I can’t take the pain and bloating anymore. I am 42 years old and my doctor recommended this procedure so I’m hoping I have the same results! I have been warned by friends not to do it but I’m at my wits end so I’m going to take my chances and try it. I want to be able to enjoy life again and not have to be confined because during those heavy flow days I tend to have had some rather embarrassing leaks……Wish me luck!

    • Sarah on June 27, 2013 at 11:12 PM

      Your blog is like reading a biography of my 3 1/2 year experience with the Mirena IUD. Literally everything you described, I had as well. To make matters worse, I am a doctor, so I should have known better, or at least done more research before subjecting myself to this device.

      I just got mine removed a week ago when I realized the miriad of systemic symptoms I was having were likely due to the Mirena. I asked to be placed on birth control pills immediately following the removal to avoid the symptoms caused by hormone withdrawal (mood swings, hot flashes, etc.). Immediately after the Mirena was removed, I noticed a decreased sense of abdominal fullness and in the coming days I started feeling more like myself mentally and physically. Unfortunately, this was followed by severe peritoneal pain due to bilateral ovarian cysts and the collection of pelvic fluid from ruptured ovarian cysts (likely related to endometriosis). Once I recovered from the pain associated with the cysts, the very next day I began having severe uterine cramps similar to the early stages of labor without any menstrual bleeding. This was most likely due the withdrawal of the local hormone in the Mirena prior to the achievement of steady state of the hormone in the blood from the birth control pills causing a flare of adenomyosis (endometrial glands that are “trapped” within the muscle of the uterus and cycle with the endometrium, leading to severe cramps and sometimes heavy bleeding). This was something I never had prior to getting the Mirena but showed up on the ultrasound after the Mirena was removed.

      Now, I am a physician and should know better than to blindly trust doctors without doing my own reading. All the OBs I spoke to said the Mirena is “great!!” and is “almost always very well tolerated”. And it was generally well tolerated in me, if you consider only the menstrual and birth control issues. I did not have a period for nearly 3 years and was essentially pain free during that time. However, having severe fatigue, depression, lack of a libido (rendering the Mirena essentially unnecessary) and a 50 pound weight gain that simply wouldn’t budge for anything, is not what I would call “very well tolerated”. So, if you are one of those women who feel you should have done more research or asked more questions, do not feel bad – I understand this material fairly well, and I got taken for a bad Mirena ride.

      My warning to all those women out there considering a Mirena IUD is to do your research before making your decision and be sure to ask your doctor about the frequency of these unpleasant side effects. Also discuss the pros and cons of other types of birth control (such as OCPs, non-hormone secreting IUDs, etc.). Most OB/Gyns are focused so much on issues of pregnancy, birth control, and menstrual irregularities that they do not put an emphasis on other medical issues, such as depression, fatigue, weight gain, etc. It’s just not their focus, and with medical reimbursement as low as it is, there is so little time to speak about every side effect with every patient. I’ll admit some do it better than others, and if you have one of those doctors, hold onto them tightly. However, in general, in this day and age it is becoming more and more important for us to become educated consumers who ask thoughtful, meaningful questions before blinding following a suggested treatment plan. Believe me, I am no different than anyone else when it comes to this, and clearly I was adversely effected for not doing my homework, something I will not do again.

      • Jane on July 26, 2013 at 5:50 PM

        Ok, I have had the mirena for going on 5 years and like everyone else, loved the fact that I had no more periods. I am now experiencing pelvic discomfort. periodic back pain and for the last two years, I have lost a significant amount of hair. I attributed the hair loss to stress but now as I read the other posts, I am convinced it is the mirena. I decided to change gynocologists because the last time I complained about the mirena, she completely dismissed my concerns. I couldn’t get in to see my new doctor until the third week of August and am just hoping the discomfort does not get worse. Another issue is that I am 54 and don’t know if I am in menopause yet.

    • Brittany on July 7, 2013 at 12:10 AM

      I have had the mirena for almost 5 years… I haven’t really had any issues except for unable to lose weight, i thought that was due to my thyroid however I have been on medication for it and still haven’t lost any weight. I just recently started getting migraines that I either had to sleep or woke up vomiting numerous times. I have been thinking about getting it removed due to my children being 6 and 4… Besides it is almost the time for it to be removed. Hopefully when this happens to work out for the best, come to think of it I think it has messed with my libido and energy as well, constantly tired which is also another effect of my thyroid issue, however I don’t know. I am tired of feeling like this. It is the tiredness and migraines that really get to me IT SUCKS!!!!!!! Thank you for posting your personal business with the mirena, I think if I have another child I will use some other type of birth control yet at the same time they all have some side effects both major and minor UGH!

    • Lindsay on September 6, 2013 at 9:19 PM

      I’m so glad to find this post…I have scheduled an appointment to have my iud removed this coming Friday…it’s been 2 year’s of torture thinking it was Me. I have been getting sever migranes almost every other day for the past year and keep getting worse and worse. I have no motivation. I feel like the worst mom in the world. No energy and feeling anemic, weight Gain……Doctors have no idea and I was not told of these side affects. This is safe to say it was too good to be true!

    • Bella on October 10, 2013 at 7:08 PM

      Thanks for posting this, Iv’e had Mirena for 4 months and feels like my life has gone down hill and I had no idea why until researching now…Massive weight gain, depression, migraines, and my behaviour has changed I feel like I’m a crazy angry person some days. My doctor really talked up Mirena and said there were no real side affects or that it is rare blah blah.. Wish I had researched it before getting this evil thing put in my body. I plan to get it taken out next week.

    • Dixie on October 18, 2013 at 7:03 PM

      Thank you so much for writting this post. I had the Mirena in for 3 1/2 years and battled so many things during those few years that I never attributed to Mirena until I started looking it up online.

      I was sweating ALL the time even in -30dgrees weather, at 29 years old I had such severe acne which I had never had in my life, I gained weight, lost hair like crazy and forget about having a libido!!!

      I also had blood tests and everything came back normal but I knew it wasn’t normal, especially the acne and facial hair (ewwww… I know right?!!) got really bad.

      I had it taken out a few months after doing this research and actually found that it lowers your natural progesterone and boosts your testosterone (hence the acne, facial hair and lack of libido)… It propelled me into early pre-menopause!!

      Wish I was TRULY informed by the physicians before I got it… Some of the damage is irriversable and I wouldn’t recommend it anymore!

      • Robyn on April 26, 2014 at 8:40 AM

        Thank you so much for sharing your stories.. I’ve been dealing with a lot of the same effects. I’ve had it in for about a year and a half now after having my son. I figured it was the best thing to prevent having another baby. The first few months of it I felt fine. Bit the. I started feeling nauseous a lot and tired all the time. My moods were changing and it caused conflict between my bf and i( still does) at first I thought it was mostly from a hirnea I had repaired. But lately I’ve been feeling a lot more tired and nauseous and moody and depressed. I went once to get it checked and my doctor said it was fine. But I’m not too sure that it. I don’t want anymore kids but I hate feeling like this everyday. I also gained weight since it was put it after losing a lot after my son and I’m always bloated.my stomach looks like I’m pregnant again. After reading all ur posts I’m convinced it’s the mirena and I think it’s time it comers out. I also have a lot of hair loss. Hearing about the “crash” makes me a lil nervous though. Can someone please tell me what that is exactly . Think you everyone for sharing it’s really helped me make my decisions does it hurt when it’s removed. I know everyone is not the same, these drugs have different effects on everyone. But if were all having similar side effects then there’s something defitnately wrong with the drug. Thank y ladies and good luck!

    • Sandra Lombardi on October 25, 2013 at 12:21 PM

      Thank you for your experience. I’ve had the Mirena for only three months now. I’ve gained 6 pounds (On my small and very fit physique.) I’m bloated and distended, acne, lower back pain, and terrible ovarian pain. Its coming out next week, and I CANNOT wait!

      I absolutely hate the Mirena. Never again.

    • Cinder on October 28, 2013 at 9:14 PM

      Have you had your thyroid checked? Most of the symptoms you described are also symptoms of an under active thyroid gland (hypothyroid). Most women have an under active thyroid gland and don’t even know it. Just ask your doctor for a simple blood test and you might be surprised!

    • Toni on October 29, 2013 at 8:49 AM

      I got my mirena 2 1/2 weeks ago when I was 7 wks postpartum, I had cramping and bloating just assuming I was going to start my period. Well started my period almost a week and have all the major “red” flags with bloating, side pains, major back/neck stiffness… I took my BP because I had that “anxious” feeling and slightly high for me but my pulse was over 100, and I know my body and I have bad ‘flares’ of soreness/stiffness/IBS and I’ve had anything and everything since the insertion…If I didn’t know myself so well I probably would justify these feelings but in the back of my head I feel like my body is out of whack from the feeling of low blood sugars, to extreme bloating, muscle knots.. etc… and I looked up side effects on the IUD website and in my pamphlet but it wasn’t until I started reading these forums that I’ve made my conclusion on the good ol’ mirena… I might give it a couple of weeks but atleast now I know whats not normal!

      • Toni on October 29, 2013 at 9:02 AM

        Oh and before reading these posts,I was telling my co-worker if I call my doctor and telling her I’m having cramps, bloating, and nausea she’s going to think I’m crazy, so its hard to really separate what should be ‘normal’. So I was wondering why my doctor said I’ve had a good experience with mine…I get it now, for sure!

    • Rose on November 1, 2013 at 2:23 PM

      Ladies, I can so relate. I had/have endometriosis and have had surgery twice in my life to have it removed. I was 25 the first time I had the laparoscopy done and then went on that dreaded Lupron (ladies, stay away from Lupron. It forces your body to go into menopause and the side effects are horrendous). In any case, years later, my endometriosis came back (even though I was on birth control) and had to have it removed again at age 40. My doctor suggested Mirena and said I was a prime candidate. I had asked for a hysterectomy but my doctor said that was drastic and unnecessary at my age (he still had high hopes I would have another child…yeah right!) Therefore, I took his advice and got the IUD inserted in December of 2011. At first, it wasn’t too bad. Period lightened up, cramps lightened up…wow this was great. Then after 6-8 months, I started having increased migraine headaches, increased hair loss, weight gain, fatigue, breast sensitivity, cysts developing, etc… I asked my doctor what was happening and he said it was normal and that the Mirena was the best thing for me. He easily dismissed the effects I was having to this little “Plastic Miracle” as a lot people have referred it as and said that stress could be the cause. Another year went by and now I was feeling depressed all the time. My feelings and moods have changed very rapidly over the past year that I don’t even want to spend time with my daughter (and she is my ENTIRE LIFE which I ADORE to no end). I have no desire to go on dates (haven’t dated since I had the Mirena inserted, 2011) I was sitting home one afternoon watching TV and saw a commercial about Mirena and if anyone has had certain issues to contact that attorney. That got me thinking so I started researching this “wonderful device”. What I have found is unbelievable. I couldn’t believe the number of woman that have had similar issues. It has now been 2 years since I’ve had it inserted and I am miserable (despite the perfect job, the perfect daughter, beautiful home, stability, Blah! Blah! Blah.) Apparently it is not psychological but all connected to our hormones. That nasty little plastic thing has made my life nothing short of miserable. Mirena caused my potassium and magnesium levels to drop, which in turn causing irregular heart rate, heart spasms, muscle pains, fatigue, irritability, and kidney dysfunction. By the way, it can also be fatal. I am now seeing a cardiologist due to the damage that the Mirena caused to my heart muscles; I have to take supplements for a while until my body gets back to normal and will be on depression medication until my hormone levels balance out again. I can’t wait for next week…it is when I am scheduled to remove this nightmare from my uterus. Not sure why they haven’t taken this dreaded device off the market. Ladies be careful of what doctors recommend. Unless you do extensive research, do not put anything in your system. A five year commitment is a long time and can cause irreversible damage to your other organs. Take the extra 5 minutes to do your research; it can save your life.

    • Tammy on November 4, 2013 at 5:29 PM

      ive had mirena in for 4 1/2 years and never realized the “lazyness” was tied to it i took it as so much has changed in my life but pretty much im word for word on this.. but since my insurance cancled 2 years ago i havent been to the doc for a check up. (so sexual activity either) since my recent engagment but even with that we barley have sex.. so how am i to know my self if the item has found a new home?

    • Nichole on May 3, 2014 at 8:04 AM

      This has been so helpful. I had the Mirena inserted May 2013. After Christmas I started noticing how crappy I was feeling. I have never gone to the doctor as much as I have in 6 months. Now a $8000 trip to the ER ($1000 after insurance) for an ovarian cyst rupture, the 10lbs I have gained despite my same eating habits and all the walking/running I do. I have an appointment with my new OBGYN next Friday. I want this dang thing out of me…

    • Tasha on June 12, 2014 at 10:23 AM

      I can’t even tell you how similar our experiences are (down to the titanium hip). I have been experiencing major bloating, pain, and bouts of depression. I also have had ultrasounds and they have chalked it up to an ovarian cyst. I am fairly convinced it is my iud and seriously considering having it out. Thank you so much for sharing your story!!

    • Jenny Bridges on July 16, 2014 at 3:22 PM

      Oh wow. Thank goodness I have read these and some other sites as well. I am glad that what I have been feeling isnt random. I have had the IUD since last August… As most of you, first few months were fine emotionally. I had the random to heavy bleeding but my doctor warned me my body might take 3-6 to adjust so I was patient.. Then I didnt really have any more bleeding just random bits. But then everything else slowly began to happen.. I agree with a lot of women on here. And that everyone of us is different and our bodies will react different.. however I have had mood swings constantly for past few months. I am irritable and feel foggy. I can cry I swear at anything! I work out, play vball and dont have a lot of stress factors in life that should make me THIS emotional OR sensitive. My boyfriend doesnt get why I cry a lot or freak out about things that would normally be fine however I misinterpret and cry over… I have had migraines and a case of vertigo. Mild back aches and some acne at first.. At first I just though let my body adjust but I cannot take the emotional back and forth anymore. I like, the rest of you felt like I was and am going crazy. Called my OBGYN today to get it removed and find a different solution. Dont we all wish men could take birth control instead?! Anyways glad to hear everyones experience in some ways have been similar to mine

    • aileen on July 20, 2014 at 3:40 AM

      im so glad i jus came upon your post…i’v been so torn if weather or not im over-reacting or right on the $……i have all the symptoms you did AND THEN SOME. wuda never contributed 75% of these symptoms to the mirena. After months of my dr wasting my time with test after test and then acting like everything is normal on test so im fine.i have white blood cell count for 2months, air bubbles coming out of my ureathra, calf cramps, crohnic fatigue, never feel rested after sleep, stomach cramping, loss of libido all together, flushing (on face neck chest ears top of hands) bloating in stomach so bad sometimes it feels like my skin is stretching, weight gain,lower abdomen has small faint pinching, and occassionally REALLY bad stomach aches that were so bad iwas certain i must b dying.
      whether all of these symptoms or or even if just one of these symptoms
      are because of the mirena or not … this mirena is coming out hek or high water A.S.A.P…..thanx for the push in the right direction.. im 44yrs old w/ a 9yr old autistic son & dont want anymore children..most wud say too old to worry about.but my grandma had my mom at 42.so i gues its either go w/out like i have been for a few years anyways already OR he can choose between getn snipped or buying all the condoms for the next nine years.
      funny thing is im still hesitant to go back to bleeding and part of me almost wants to leave it in and jus live with all these other things just so i don’t hav@ever bleed again.
      but this is just getting too scary so OUT YOU GO MIRENA!!!!!

    • laceyconley on July 28, 2014 at 10:56 PM

      Your symptoms are very similar to those of hypothyroidism (hair falling out, weight issues, fatigue, low libido). It is a very common condition and much under-diagnosed.

  2. Dawn Beronilla on April 22, 2012 at 12:06 AM

    Thank you so much for posting this!
    Although I have had no problems with mine (so far), I do have quite a few Mama friends who are considering getting Mirena and I would like for them to see all of their options. I will be passing this info on!
    As for me, I will definitely be paying closer attention to my body and listening to what it says. Thanks!

  3. Jessica on April 22, 2012 at 12:08 AM

    Oh my! I feel your pain! I had my Mirena removed December 2, 2011 and I could not be happier. Hair loss, extreme mood swings, NO libido, the works! Reading this felt like my every day, only difference is I bled for 16 months straight, calling the doctor every few weeks and them saying, ‘Its normal’. I have never felt better since having it removed, and I’m still waiting for me to be completely normal again; We want another baby! My Mirena experience was awful, thank you for sharing yours and letting me know I was not alone in this.

    • Natural Urban Mama on April 22, 2012 at 7:31 PM

      I would have never really figured it out had it not been for my friend who started having problems with hers. I think in this regard and my lesson learned is that perhaps we need to redefine what “normal” means when on any kind of hormonal contraception!

  4. Holly on April 22, 2012 at 12:14 AM

    Beware when having inserted too. A friend of mine had one put in and when she wanted it out no one would take it out for her! Her hubs tried (unsuccessfully) for six months to pull it out for her. She went to the ERin extreme pain and they told her go back to the dr who put it in. She no longer had insurance and couldn’t afford the dr visit to get it out!PP would’nt remove it for her… FINALLY she went to the ER in tears, doubled over in pain and told them to get it out it was killing her. They got someone to remove it for her then… Almost a year of trying to get it removed later!:(

    I also want to mention that not having a period is NOTgood for your body!:(You NEEDto have a regular period. These BC that inhibit periods are NOThealthy at all:(

    • Natural Urban Mama on April 22, 2012 at 7:35 PM

      Oh wow Holly, that is awful. I am so sorry for your friend! It took my doctor all of 3 seconds to remove mine and I was in and out in under 15 minutes. And I completely agree about the period thing, which is another reason I wanted it out.

  5. Anne-Marie on April 22, 2012 at 12:16 AM

    I was using the NuvaRing off and on for YEARS before I figured out that it was causing my migraines. Not one of the four doctors I had talked to, including a neurologist, even thought that it was making them worse. I was so mad when I found out (the whole thing just clicked into place after a FOUR DAY MIGRAINE) I wanted to yell at the doctors. Aren’t they supposed to mention this sort of thing? After I give birth in October, my next try is the copper IUD with NO hormones, and if that doesn’t work, it’s condoms for the forceable future. No more of any of this fake hormone crap, especially if the doctors aren’t going to be honest with me about the potential side effects!

    By the way, your story is the first hormonal horror story I’ve heard about Mirena, but I do know someone whose doctor told her that hers had gotten lost! Turns out, the string had just migrated out of sight. Not exactly a ringing endorsement, though. “Oh, uh, it might be lodged somewhere up in there, we’re not sure…”

  6. Rachel on April 22, 2012 at 12:21 AM

    There is a non-hormone iud called (I think) paragard. After years of feeling & acting like a crazy person thanks to hormonal birth control, my doctor told me about this option. I haven’t had any noticeable side effects so far.

    I do think it’s horrible, what they don’t tell you about side effects. For years, I thought I was just crazy. Angry, irrational and depressed all the time. Throwing really extreme fits over nothing. Stopped taking hormone-based birth control and guess what? I’m actually calm, level headed, rational, and happy.

    • Jen on April 22, 2012 at 12:21 PM

      I have had two Paraguard IUDS. My body rejected one and I had the other one removed because of side effects. I found I had MORE side effects from that one than I had with the MIrena. My periods were very heavy, cramping severe and I suffered uncomfortable bloating. On the adivice of a gyn and my midwife I had the mirena placed almost five years ago (after my Natural Family Planning baby was born)and have not looked back. A lot of women find relief from dysmenorrhea with the Mirena and it saves them from having surgery to fix it.

      I cannot tolerate hormonal birth control like the patch, Nuvaring or the pill, but I can tolerate the hormones in the Mirena since the amount is so small it stays in the uterus and levels won’t even register on a blood test.

      Even after reading this cautionary tale, I am still on Team Mirena.

      • Natural Urban Mama on April 22, 2012 at 7:55 PM

        That is great Jen and I am glad it is working for you. And yes, for some women Mirena can be very helpful.

      • Dizzy lizzy on February 28, 2013 at 9:29 PM

        Thank you for your honest post. I had the Mirena put in just a few weeks ago, as I am a Hemophiliac and have Lupus…I was talked into the IUD against my better judgement. The specialists decided no longer dealing with ridiculous periods would help me deal with bigger issues.
        I was sick for the first two days. Real sick. But reading these comments here today makes me really scared. I am 41 and I have been going through drug trial and errors (many)for 22 years. Alot of the symptoms these women are talking about are things I already deal with.
        I now have very sore breasts, and I have now had my period for six weeks.(that’s how I found this website). I must say I was really panicking until I read your comment so…THANK YOU!!!:)

    • Natural Urban Mama on April 22, 2012 at 7:40 PM

      I guess for me I never questioned the hormones in Mirena, because I was on the pill for YEARS and never had any problems. But yes, I do get the more rational and calm thing… I was going a bit cookoo for a while a few months ago!!

  7. Tanya on April 22, 2012 at 12:25 AM

    Ladies – please use your own brain. With anything we use in our lives there are pros and cons and consequences. Remember that section which was highlighted blue which symptoms you had – remember the heading of less than 5% of women. Yes, listen to your body but also remember to have a head of your own and understand that this is not what every person using Mirena will feel. I have had one for three years and have not had any of these side effects. The side effects that I have experienced are contraception as good, or better, as if I had a tubal ligation, lighter and shorter periods, much fewer cramps during my cycle. I guess I must be the other 95% that you have not mentioned in your blog. Very disappointed to see this written.

    • Lisa on April 22, 2012 at 12:56 AM

      Tanya, I don’t really understand how you could be disappointed to see Natasha writing about her personal experience with Mirena. Nowhere in this post does she say that *everyone* will have the same results that she did, she just cautions women to be aware of the potential side effects. I think it’s important to publish posts like this because there are likely a lot of other women out there suffering side effects that they might not realize are from Mirena. Maybe someone will read this, put two & two together, get rid of their Mirena & be healthier because of it. Also, not all of the symptoms she mentions are less than 5% of users–pelvic/abdominal pain is listed in the ‘More than 10% of users’ section. What I’d like to know is, how much more than 10%?

    • Natural Urban Mama on April 22, 2012 at 7:48 PM

      Tanya, I know a lot of women who are firmly on “Team Mirena” and love it and if something isn’t broke, then don’t fix it. And if you had asked me how I felt about it a year ago, I would have had nothing bad to say about it. But something was very obviously “broke” with me and a quick poll of some Mamas I know, the similarity of symptoms and now the response to this post tells me that if a post-marketing study of Mirena use was conducted now, the results would be a lot different. This was my experience, and I am here to share these.

      • Cassie C. on January 6, 2013 at 1:34 AM

        Thanks for writing this personal review. You’re writing is wonderful and I feel I can relate to most of your symptoms and I’m over it. Headed to my OB Monday for an annual (joy) and to ask them to remove it. I’m currently without partner but really enjoy knowing what goes into my body, but to each her own. I figure that less I put into my body made with more warnings and side effects than benefits, its a good thing. BTW just google Mirena and you will see tons and tons of links to lawsuits, recall questions, complaints, info fact checks, etc. I’m glad you woke up and are happily natural with birth control again! Yay…somewhat.

      • JaeV on March 25, 2013 at 10:49 PM

        I think it’s great that you posted your review of the mirena…. As I just had mine placed last week… Diagnosed with adenomyosis… And not ready to let go of my baby factory… I actually chose para guard… But was advised against it. So he recommended mirena. So far nothing bad as of yet… But at least I know I’m acting like a crazy person and feeling depressed I know what’s causing it. I’m so hoping I am part of that percentage that has no ill effects until I am ready to part with my baby factory.

        Thank you to everyone that has left both good and bad reviews… I now know what to look for.

  8. Pam on April 22, 2012 at 12:37 AM

    I’ve never used the Mirena, never been a fan of any sort of hormonal birth control – the though of putting synthetic hormones into my body for no reason kind of frightens me.
    Post Partum Depression. Over three years after my youngest is born. Migraines – hereditary. Decreased libido – due to PPD meds. Hair shedding has always been normal for me.
    I wish my symptoms would just go away by ditching the Mirena but there’s no cause to my health concerns, really, stress is just the biggest factor of them. I’ve been using my Diva cup for years and absolutely love it though. I guess the only thing ‘normal’ I have is my cycle!

  9. Laura on April 22, 2012 at 1:20 AM

    I had Mirena for 2 years with no side effects. I loved it. However…2 months after removal I was happily pregnant but miscarried. I came to learn that miscarriages after Mirena are VERY common. It made me think very differently about hormonal birth control. Never again.

    • Stephanie on March 28, 2013 at 3:20 PM

      This scares me so much. I had my mirena put in 4 months ago and it was awful. I am 24, getting married in August and it has cause me so much hell. Getting the thing put in was awful. Horrible cramping, excessive bleeding (the doc ripped my cervix in the process)and my blood pressure dropped so much I had to stay at the doctor’s office for over an hour afterwards. Then I had 2 days of not being able to work due to the worst cramping and bleeding I have ever experienced. Now that it has been in for a while I have had no periods, just random bleeding. And I have been CONVINCED that I was pregnant a few times since it has been put in. I have has sore breasts, cramping, bloating, weight gain, nausea, anxiety, depression, and tiredness. I have been so anxious and sad, it is making my fiancee crazy. I KNOW I am not acting like the woman he proposed to, but I can’t make it stop. I went to try on my wedding dress for alterations and it was WAY too small. I not only gained 10 pounds in the last month(I have been the same weight for the last 7 years) I bloated so much that the seamstress was doubtful she could make it fit.

      My greatest fear is what you mentioned. My fiancee and I want to have kids within the next few years, and now I am panicked that not only did I mess up what was supposed to be a happy engagement, I have ruined or messed up my chances of having kids later on.

      After reading this I am convinced it is not just me going crazy, I am making an appointment to get this awful thing removed! I just hope that it is not too late.

  10. Sarah on April 22, 2012 at 1:21 AM

    I wanted to get the mirena when it first came out but my dr wouldn’t for some reason I can’t remember ( I think because I was a migraine sufferer and it’s more recommended for women who have had kids). The dr let me get the paraguard copper iud and it was absolutely effective (though it made my periods a bit longer I think). I had it removed after 3 or so years when we were ready to try for a baby and we got pregnant my first cycle so I am certain it was awesomely effective :) I will get the paraguard again after reading this although I would have considered the mirena. I had issues on the pill and can imagine the mirena could be a nightmare!

  11. Juliette C DeTemple on April 22, 2012 at 8:53 AM

    I have an appointment to have Mirena removed….. Over the last few years I have been completely sure several times that I was pregnant…. My ob office assured me I wasn’t and sent me home… I read and read and read blogs and medical sites and I learned that I was most likely conceiving but not implanting… The hormone in Mirena prevents implantation. Hmmmmmm… This did not sit well with me and I was even more upset that 3 dr’s into it the dr’s will still avoiding the problem with Mirena…. News like this is not good for business…. Just last week I had a wonderful appointment with a dr in family practice… She listened and agreed that what was happening was happening… And it was time to sat goodbye to Mirena….. I do know several other women who use Mirena without complaint…. But making and loosing babies make me sad and guilty so I need to make a change……

    • Natural Urban Mama on April 22, 2012 at 7:52 PM

      I can totally understand that Juliette. I have actually felt the same wa (pregnant) a few times in the past 2 years and have gone as far as peeing on a stick to make sure I wasn’t going crazy. I hope you feel better after it is removed.

    • Melissa Nestle on December 25, 2012 at 7:45 AM

      I have experienced these pregnancy symptoms as well. I have taken at least six tests in two years and I am a woman health nurse (lol). I have had the IUD for 2 1/2 years. The bloating gets so bad I could pass for six months along. I have gained twenty pounds without changing anything. I continue to exercise 10 hours a week. I no longer menstruate and I believe the symptoms are more prominent during the time that I should be. I am thankful that I do not get the migraines. I have suffered intermittent bouts of depression throughout the last two years. Thanks for sharing your stories!

    • Deb on May 10, 2013 at 8:31 PM

      The hormone in the mirena does not cause the fertilized egg to not implant; That is what the paraguard does. The hormone in the mirena prohibits the ovulation there by not allowing fertilization. You could have vey well been pregnant but very unlikely you were every month. …….

  12. Catherine on April 22, 2012 at 10:12 AM

    My sister uses Mirena with zero side effects. I had it for 9 months and bled for over 8 of those months. I have no insurance coverage and had to buck for it myself which is why I held out for so long. My dr. said it was normal to bleed like that.

    It is NOT normal to bleed for 8 straight months.

    This was a great post and women should know what other women are going through.

    • Natural Urban Mama on April 22, 2012 at 7:53 PM

      Again with the ‘NORMAL’ talk! Like I said, I think the medical profession and we as women, need to reevaluate what normal is (both on and off HBC) and get on the same page!! And yes, that sucker is NOT cheap!

      • MelB on March 20, 2013 at 4:23 AM

        I just had the Mirena removed after 4 months. I had discharge/bleeding for the whole time (about 1-3days only with nothing), lack of sex drive as well as feeling self-conscious due to strange odour, hair loss, fatigue. Removal was so quick & painless & had horrible headache for few hours but feeling so much better already knowing my body can do what it needs to do now without any hormonal controls. I know some women have good experiences with it but it wasn’t for me & so pleased I could have it removed soon after I decided I was fed up with it.

  13. SamiJoe on April 22, 2012 at 11:14 AM

    After reading this, I am happy with my decision to not go the MIrena route. We had hubby snipped and well, we’re fixed, lol!

    While I would love to be period free, I am happy to not have to go through any of the sideeffects you experienced.

    Great post.

  14. Andreca on April 22, 2012 at 2:16 PM

    I have had Mirena for two years. I have wanted to get it removed from the very get go but considering the fact that I have four children already I decided against it. When I first got Mirena I had nausea all of the time. My hair started falling out completing around the edges and I was going bald in the back. I found my self angry all of the time and as much as enjoy intercourse with my husband, I just was never in the mood. I always have this horrible brownish discharge instead of a period and I get horrible migraines right before and after. I have already made my appointment to get it removed. To Tanya… Do you realize that most pharmaceutical companies rather wait to get sued than to disclose certain side effects because they know that they will make more money that way.

  15. Leslie on April 22, 2012 at 5:19 PM

    Its interesting how many women are poster girls for Mirena for years then you start to think hmmmmm and put the pieces together and the timing seems just right…Same for me I have had it for almost 3 years and wrote this post: http://www.ruffruminations.com/2012/03/delayed-pressure-urticaria-and.html about some strange symptoms I have been having which I recently discovered could be a result of Mirena as soon as hubby and decide for sure we are done with kiddos (we only have 1) he will get the snip and I will get it out. Great post

    • Natural Urban Mama on April 22, 2012 at 8:00 PM

      Leslie, that is crazy! I hope you get some more answers when you see the specialist!

  16. Laurie on April 22, 2012 at 6:36 PM

    I know that there are advantages to hormonal birth control, but after finally being off of the pill when trying to conceive my first, I quickly realized what an effect it had on me. I never went back on, and made my not too pleased DH suffer through condom use between babies until we were done. Then thank goodness for the big snip appointment that came after baby 3!

  17. Laura B. on April 23, 2012 at 10:38 AM

    I had a non-hormonal IUD for a year. Hormonal BC just doesn’t sit well with me, hasn’t for years. Luckily I had a family physician and an OB/GYN who didn’t push the pill or Mirena at all.

    The most important thing you can do for yourself is READ ALL ABOUT IT and pay attention to your own body. I would recommend the non-hormonal copper IUD to anyone, but as you said, it’s still a foreign substance in your body! All comes back to choosing for yourself.

    • Melissa Nestle on December 25, 2012 at 7:48 AM

      I bled for months straight with the copper IUD but had no other symptoms. Taking it out was a joy, but that may have just been my body!

    • Amanda on March 5, 2013 at 2:49 PM

      I also had the copper IUD for 2 1/2 years and it was horrible for me! I would bleed for 7 days with my period and it was gushing every second. I was so happy when I got it removed, and then got Mirena. Although after reading all of these posts, I am scared now!

  18. Avarey on April 24, 2012 at 1:12 AM

    I had the Nova-T (non hormonal) IUD inserted before I had children. My husband & I knew we wanted children eventually & I have had bad experiences with The Pill so it seemed to be the best option. I got pregnant with it after 1 1/2yrs of having it inserted. We were surprised but happy since we were talking about removing the IUD soon anyway. We had a happy & healthy baby boy 7 months later. 6wks after our son was born, I got another NOVA-T inserted. 2 yrs later I got it removed & got pregnant IMMEDIATLY. I just gave birth to our 2nd son & once again got the copper, hormone free IUD inserted last wk. I have to say I do have a heavier period & it lasts for 7 days without fail. I’m currently nursing again & I didn’t get my period until after I weened my 1st son (a whole year) so I’m banking on that happing again lol. And honestly the cramping was nothing a little Advil cldnt handle. For anyone who has had trouble with taking hormones, I definitely reccommend the Nova-T :)

  19. Doris on April 24, 2012 at 4:44 PM

    I’ve had the Mirena for about 4.5 years. It’s near the end of it’s life but I’m going to get it removed early. Reading these comments, I can’t help but wonder if I’m not one of those 5 or 10%. I’ve been battling many of the symtoms I’ve read about here, thinking they are just part of having young children and being an older parent (I’m in my mid 40′s now). I’m sick and tired of being sick and tired!

    I’d like to know, how long did it take for the symptoms to disappear after having the IUD removed?

    • Krissy on January 16, 2013 at 7:18 PM

      Doris-

      I am 27 years old and I am on my second Mirena. I went the first full 5 years without fail and even encouraged my girlfriends to talk to their doctors about it too. I had the first one removed on 10-31-2012 and had the second one placed immediately after removal in the same office visit. My cerix had never been naturally dialted before as you may know- only happens during childbirth. They used a steel dialator to place the enew IUD after removing my first one without me even noticing!!! It came out just that easy. She did have a bit of trouble replacing the new one due to some scar tissue that built up which I already knew and was told it would not complicate things at all. I have had the second IUD going on 4 months and I can honestly say I will be taking this one out and not replacing it. The mood swings, bloating, abdominal pain, discharge and the over all sick and tired feeling is lingering all this time. I truly believe that I fall into the less than 5% or the 5-10% that is highlighed on the Mirena webiste.

      Unlike most people I have had the education and science behind Mirena explained to me a bit differently. I worked in the clinical setting at an OB/GYN office as group of 4 female physicians and 3 NP’s. We had Mirena reps in the office teaching us about the benefits and risks of Mirena very frequently due to federal regulations and new studies being released. Meeting them and being able to ask questions was helpful and affored me the ability to be better informed. So when others here comment that “its not normal”- in a sense they are right and the reps will tell you that this product isn’t for everyone. Not one of us on here is the same but in sharing similar experiences we can draw the conclusion that Mirena just effects us differently. My advice it you would be to talk to your doctor and discuss it first and then make your own informed decision. With that said- I will be having my Mirena removed on Friday and will wait until my body had gotten back to a normal hormonal-balanced state and only then have the copper IUD placed. I hope you find some resolve and feel better soon.

  20. Crissy on April 25, 2012 at 7:04 PM

    Thank you for posting about your experience with the Mirena. I have had mine for 3 1/2 years and it seemed like the wonder contraception. The past 4 months, my “cycle” has gone more haywire than normal since insertion – extreme moodiness, water retention (weight jumping up and down 5-7 lbs in a week), bloating, cramps that have doubled me over, and spotting every other week. I’ve also experienced hair loss. I have a really thick head of hair, but I had been noticing my scalp seemed to be alot more noticeable than before. Today at work as I was doubled over, I decided to make the call to have it removed this Friday. When I got home from work, I started going back on my decision and then I found your blog. Thanks for helping me make up my mind to have it removed.

  21. [...] Here’s a little story for you, inspired by my friend Natasha: [...]

  22. Kristine Findley on May 4, 2012 at 12:27 AM

    Thank you for posting this!! I currently have an IUD and having the same symptoms as you did. I thought the hair loss was my body getting back to normal after having my baby. I’ve recently started to experience cramping and thought it would go away but no luck. After reading this I wanted to get mine removed. I would really like to experience a normal period after the whole pregnancy and such. I called my OBGYN and I can’t get in to have it removed until the end of june since he is on vacation and there only taking prenatal appointments only. I’m so upset with it and not sure where to turn next. I just recently obtained a family dr but I’m not sure if they would remove it or if I could just get into see another OBGYN. I’m just so glad you posted this on your blog. I just need to get this thing out with no problems!!

  23. Joy Smith on August 1, 2012 at 11:58 PM

    I got Mirena about 3 weeks ago after having skin discolorations on my face from the pill. Dr told me about possible acne, maybe weight gain. I didn’t want either but my blotchy face made me change. I have not had either of these side effects yet but it has only been 3 weeks. I did however read hours of posts after getting the mirena to check out other side effects. I decided to keep a journal of anything that felt different with my body. Well…for starters, although I can’t feel the IUD inside me I do always feel like i’m plugged up…like a tampon…but always. That I could deal with. I started getting nerve pain. In my hips, my thighs. About the size of a melon, hurt to have my clothes touch my skin. It would last for about 2 days and then pick a new spot. Also…I have herpes. Never, and I mean NEVER have an outbreak since I got it 8 years ago. Since I got mirena inserted 3 weeks ago I have had 2 outbreaks. Also I can’t sleep. Hmmm….if all this is wrong with me in 3 weeks I can’t imagine testing this out any longer. I am calling first thing in the morning to get it removed. Thankfully I love my doctor and she won’t try to convince me to keep it in. I would not advise any to get this without being aware and to pay attention to your body…

    • isabel aasen on February 17, 2013 at 12:12 AM

      I just got mirena in 3 weeks ago. I was told no side effects except some spotting. I, therefor had no adverse expectations. I got all the side effects I am now reading on the nett. The one you mention that nobody else has is the extreme sensitivity of the skin. Even a harmless touch on the body feels like a blow or punch.My son thinks I,m too delicate but I have never had this before. Coupled with the bloating(I look 6 months pregnant), weight gain, acne, mood swings,heart palpatations,sweating and migraines(2-3 a week) I,d say the side effects outweigh the benifits.I think a 10% rate of side effects is worth mentioning to the patient. I currently live in Norway where doctors are immune to responsibility, otherwise I,d sue his ass for putting me through hell. Did I mention mood swings and anger?

    • Mireille on January 29, 2014 at 7:32 AM

      Hi Joy,
      Did you get it removed after 3 weeks? And if yes, did you experience the mirena crash?

    • Mireille on January 29, 2014 at 7:35 AM

      Hi Joy,
      Did you get it removed after 3 weeks? And if yes, did you experience the crash?
      Thanks

  24. sonia on September 23, 2012 at 6:21 AM

    Hi. Wow I love the way you talk!! You should or maybe you are write more.
    Anyway, I never thought that it was because of the merina but now I Think it is. I have had it for 9 months now and one symptom is that I am overly sensitive, depressed on the week that I get menstrual cycle(I still get those) and more often and heavy:( it always made me mad when someone would tell me that I was moody because of my pms but now I think its true and I think it might just be the merina overwhelming my hormones. I’m in my week right now which it has only been 2 weeks ago that I finished them. And I cry everyday…everything my man says, hurts my feelings and feeling none worthy. I’ve noticed feeling this way everytime. And then when its gone…I feel like my old self again, on top of the world. Why can’t I just feel this way all the time? Is the merina doing this to me? I have to do something about it because it is destroying my relationship.
    I also have a 10 month old baby. Hes my world! He’s the only reason why I smile on those days. Thank god I have him!
    Thanks for your post. I think I will go visit my doctor this week and talk about this.

  25. Jonna on September 26, 2012 at 1:12 PM

    Wow. I am having my Mirena out ASAP. I have been depressed, anxious, panicky, and basically miserable for about 8 months. I have absolutely no sex drive whatsoever. I told a friend of mine last week that I am so not interested that I feel like I could just go the rest of my life without being intimate…which is just NOT normal. Thank you for confirming that this Mirena is like a little plastic demon that possesses the Jonna that I know I am.

  26. michelle on September 27, 2012 at 11:48 PM

    hormones and women’s bodies are tricky. everyone has different reasons for selecting Mirena–what is important is to be in touch with your body. it is difficult as a women and more specifically as a mother to check in on how we are reacting to hormones because monthly we have a surge. i know women who take the pill or use Mirena with little to no side effects and it is fantastic. Mirena has been challenging for me as it was a last ditch effort to manage stage 4 endometriosis. i know my body and hormones are not friends and i have avoided mirena for years as well as other hormone options. acupunture and TCM have been fantastic but as a mother of a 4 year old i am finding these methods to less effective as i age and more challenging to accommodate with my schedule. so i took a risk (for me) and tried mirena..it is going to be out almost as quick as it went in…it’s life in my body days probably over 15 and under 30) my dr. is on board with the decision and happy to recognize the side effects of the Mirena outweigh the excrutiating and dehibilitating period pain. i would rather suffer severely for 4 days than deal daily with the side effects being doled out…i’ve pretty much got them all and even ones not expected… trust your body and trust yourself. not every story is horrific, but if something doesn’t feel right it probably isn’t. be mindful of what you put into your body from the food you eat to the medicine meant to heal. best of luck with your choices.

  27. jackie on September 28, 2012 at 7:19 AM

    Hello ladies , I like many of you have had the mirena , i had it for 5 years and had no problems whatsoever , my period stopped instantly , loved it ! It should have been removed early August as my 5yr was up but due to lack of appointments i have just had it removed 2 days ago . OMG my body is a mess , i must be havign withdrawals from the hormone , my skin on my legs , arms , back , shoulders and breast are either pins n needly or burning .. I still havent had a bleed yet , just a bit of spotting from removal and i also had the copper coil fitted at the same appt .. I iwsh i had researched this before i agreed to have it , i never would have done this . The medical proffessionals tell you its safe and with very little complication etc etc but not one will agree that it has horrendous after effects . So annoyed with myself for being so stupid :(

  28. jackie on September 28, 2012 at 7:20 AM

    I also had the back pain , the hip pain , depression , anxiety & the air hunger .. never in a month of Sundays realised they were all connected to this :(:(

    • Vanessa on April 14, 2013 at 11:36 AM

      OMG!!! Jackie your the first person I know of to say she had the whole back & hip pain!! I had the Mirena inserted May 30th, 2012, bled for 6 wks straight! Then 2 wks after that, I began bleeding from my rectum, maybe 3-4 times a week, sometimes a lot! Went to the doctor, had a sigmoidoscopy,and one week later a colonoscopy, nothing was found. Plus I had no more bleeding. My periods started to lighten up,(which is why I got the IUD, for heavy periods). Things were ok for awhile, then lately, the past 2 months, I’ve been getting headaches, which I haven’t had in years!I feel like my hair is sheding, insomnia, depression, craving sweets & salt, and I have the worst back pain ever!! I cant sit on any surface too hard for very long, because my tailbone hurts like crazy! I also have the worst hip pain. I feel like I need hip replacements! I was excercising regularly, bot I’ve put on about 12 pounds, so I gave up. Some days I feel bloated, my hands have swollen up and so have my feet. After reading all of this, Im ready to have this thing removed from my body. Thank you!

  29. suzie on September 29, 2012 at 7:23 AM

    Hi Natasha thank you for sharing this information with us …yes I do have the mirena iud …the first two months I experienced some kinda depression and always angry and upset for no reason.then I ask my family doctor and he told me its ok tthat’s the side effect handle it until my body adjust to it …ok fine six months later since I have the mirena in I started to experience acid reflux ,we to my family doctor and he tol me ya its normal lots people experience heart burn , so prescribes some nexiem for heart burn ,I used it for like a month then I started to feel pain in my stomach ,,then after a little while I started to lose my voice so I went to doctor specialist and she look In my throat and told me that I have a lump and its caused by lots of acid reflux ,,so she put me on different med and I started to use prevacid for heartburn and acid reflux ,,ok couple months later my acid reflux start to increased I can’t sleep at night ..I went back to family doctor and he sent me to another specialist but for stomach ,,so I got my test done in the hospital they have to put me to sleep so she can look down to my stomach and c what cause this much acid reflux ..so after couple weeks my test came back and I end up having bacteria in my stomach so she put me on two antibiotic for ten days ,trust me the worst ten days ever ,,anyway after I finish my treatment I was ok for maybe two weeks with minor acid reflux ,,then after that it came back even stronger then before ,so the doctor told me you can take two prevacid one in the morning and the other at night ,so I did but no use my acid is still there ,I cut back on coffee ,tea,and lots other food and drinks because the acid ,I lost so much weight because I’m worried to eat something that’s ganna make it even worse ,so I called my doctor again and explain to her so she sent me another prescriptions to the pharmacy I go to ,,and went pick it up ,,it the dexilant 60 mg now I’m on stronger med and still have lots of acid reflux ,,like its night mare to me specialy at night time ..I asked my doctors if the mirena iud have something to do with this and they all said no ,but its commen sence ,its all started after six months from inserting the mirena ,,my stomach doctor told that some tube in my stomach got lazy and don’t close when the food enter my stomach thats why I have so much acids ,,like I just turned 40 ,very skinny ,stayed away from all fatty food,its been like this for more then a year ,I’m very tired ,,so is there anyone have had the same problem like me please help ,I have made a doctor appointment to get the mirena removed on this coming up Thursday but before I do so please if you now any info please ,cause I don’t want to remove it if its not the problem ,,but my gut feeling telling me its the mirena causing all this ,,I was perfectly fine before the mirena ,,don’t now what happen to me always depressed and angry lost weight and lots of acids reflux ,,please anyone out there can help me ? Thank you

    • Stephanie on October 17, 2012 at 9:55 AM

      Suzie-I had the Mirena put in in January 2012. Shortly after, I started getting heartburn and acid reflux. I didn’t think much of it until a month after the Mirena, I had sever chest pains. It felt like my chest was being crushed, I was sweating horribly, and my arm went numb. I couldn’t stand or walk. I thought I was having a heart attack. I am only 36 years old. It went away after 1 hour. I should have went to the ER but I have two kids and it was in the middle of the night. I didn’t want to wake them. So I went to a walk in clinic the next day (it was a weekend). Dr. at clinic thought it was acid reflux but couldn’t explain the arm going numb and sent me to the ER. The ER Dr. told me I had what is called an Esophageal Spasm caused by acid reflux. He said very often it feels worse than a heart attack. Over the next 6 months I continued to have these “spasms” like clockwork once a month. The pain was horrible. I would go through child birth all over again as opposed to having these pains!! I went to a Gastroenterologist and they thought it was my heart. Heart dr. said its not my heart. I started thinking about what had changed in my life 6 months ago. I had a baby in October of 2011 and have had heartburn during both my pregnancies but not after giving birth. Then I thought it’s the Mirena. That is the only thing that has changed and it’s funny my pain was once a month like clockwork. I talked to the Gastroenterologist and my OBGYN who put the Mirena in and they both said that wasn’t the Mirena and pretty much told me I was an idiot. I called Bayer who manufactures the Mirena. They do not list acid reflux or chest pains as a side effect of the Mirena. I told them my story and they asked if they could contact my dr. I told them yes but I know what my dr. will tell them. So I went to my OBGYN two months ago and said “take it out”. They were so mad at me and said and I quote, “You are just wasting this Mirena”. Well guess what, no chest pain now for two months. Please call Bayer. They need to know this is a side effect before more women have to go through this pain and spend hundreds of dollars on drs who refuse to believe Mirena can cause sever acid reflux because its not listed as a side effect.

  30. Melanie on October 9, 2012 at 11:25 AM

    Thanks for publishing your story. I honestly thought I was the only one having problems. I have had the same side effects, plus some!!! I had a discharge and severe pain in my pelvic region. I have never had any issues like this before. So when you add depression an weight gain, my first instinct was that my husband had been doing the unthinkable. It was terrible. I went to the doctor to get an std test and she informed me that I had vaginitis and the discharge was idiopathic. Being naive, I still didn’t understand why on earth this would be happening. My husband and I made an appointment with my obgyn so he could go with me to try an make sense of it all. After he did an examination he informed me that the mirena was the culprit for many of the problems I was having. So, without hesitation, I said well since we are here, lets remove the problem!! The answer I recieved was less than encouraging….my strings were not visible. So I have to have mine surgically removed. I’m scared. I hope it all goes well and I really hope I have the same relief that you have had!! Thanks again

  31. Adrienne on October 13, 2012 at 8:41 PM

    Thanks for your story Natasha. I’m on my 2nd Mirena IUD,I had no problems whatsoever with the 1st one for the entire 5 years. I had the 2nd Mirena inserted in January 2011, no problems fast forward to February 2012 I develop this mysterious abdominal pain on my left side only, my stomach hurt constantly every day all day. My primary care doc had me remove dairy from my diet(thinking I might be lactose intolerant I’m 45 years old I’ve never had problem with dairy products before). She also had me take Prilosec twice a day for 2 weeks cause she thought I might have acid reflux. That didn’t work, after 2 weeks back in the office again. This time I got a prescription for Bentyl which is for colon spasms, she thought I could have IBS. Finally after 4 months the pain stopped. 2 weeks ago the pain started again but this time on my right side, I happened to see a commercial on TV about a Mirena IUD Lawsuit. Started reading blogs about all the side effects associated with Mirena. I will be talking to my ob-gyn asap about removing this thing.

  32. Tina on October 15, 2012 at 8:20 PM

    So I am late in reading this but I had mine removed today. My symptoms were much like yours. I have vestibular migraines which causes vertigo, nausea, and discoordination. I too have had zero libido which has caused problems for my husband’s self esteem. Every time I talked with my doctor about issues like mood swings, hair loss, facial hair, depression and libido I was told it had absolutely nothing to do with Mirena. Although I brought it up every time. I am glad to have it gone and I am anxious for restoration to my old self. Thank you for shedding light.

  33. Tina on October 15, 2012 at 8:23 PM

    I forgot to add today after having it removed I said something about weight gain and breast tenderness. An admission was finally given that it might have been the hormones in the Mirena…

  34. [...] these methods. I guess Dr. Lesnewski doesn’t read health blogs where women document their frustration about side effects and dismissive health-care [...]

  35. Angela on October 17, 2012 at 8:50 PM

    I just have to say thank you so much for posting your experiences. Mine have been EXACTLY the same. I’m going to have my Mirena removed ASAP.

  36. Natalie on October 29, 2012 at 9:05 AM

    Thank you all, ladies, for your comments. I am 43, suffering from either early menopause or just a body gone wild, and my doctor has recommended Mirena. She cautioned me about the emotional side effects (I am a single mom of four with a history of depression) but still sung its praises. After reading some stories as health advisories online, I think–NOT A CHANCE! There must be another way to manage hormonal changes than even risking such side effects.

  37. Jocelyn on October 31, 2012 at 4:04 PM

    Thank you for sharing this.. I have been on Mirena for the last 5 months. I have no children and I am newly single. When I first got my IUD I was told it effects everyone differently and after the first 6 months I would love it. I screamed when the nurse put it in and immediately started sweating. It was very painful but went away. The first day I had it I could do nothing but lay down cause anything else would put pressure on it. The second day I was doing dishes and was in so much pain I fell to the ground and started crying, my boyfriend at the time made me go to the hospital. I was there for a total of 14 hours between two days doing tests to make sure my IUD was in correctly, check for appendicitis and multiple other tests.. nothing came back and I was told it should go away and to make a check up appt with the clinic. I just keep telling myself I am going to wait the 6 months and see if it gets better. I bled for the first two weeks I had it in and now I still bleed randomly once a month for 4 to 9 days… and I have the worse cramps ever! I bleed after I have sex most often then not and it isnt alwasys the most pleasent feeling during. I have cramps daily to every second day I am in severe pain..its like I can feel it right in my uterus. I am contemplating getting it removed but I am scared it will hurt more than putting it in. I find it goes off my emotions also… when I am mad or angry or yelling it gets worse.. blahhh I am starting to hate it honestly

    • Natural Urban Mama on November 2, 2012 at 5:07 PM

      Jocelyn, if it is causing you that much discomfort (and mental anguish with it) I would get back to your doctor ASAP. There is no reason for you to feel like this over a small little piece of plastic. And no, at least for me, it did not hurt at all being removed.

  38. Jayne on November 2, 2012 at 3:11 AM

    Can’t thank you enough for sharing your story … I have been living with Mirena for 9 years !!!!!! Yes 9 ! My first was for 5 years, had it removed and replaced and now it’s been another 4 years. weight gain, migranes, and roscea/acne, back pain I have continued to suffer … well it’s time to GET IT OUT ! Enough is enough. My youngest child is 9, and I feel it has served it’s purpose but I have suffered. I haven’t had a period in 9 years and I am ready to give my body it’s life back.

    • Natural Urban Mama on November 2, 2012 at 5:05 PM

      I felt the same way Jayne. I didn’t want any more foreign objects in my body and I wanted to go back to a normal cycle. I hope you get some relief from your aches and pains soon.

  39. Kim on November 3, 2012 at 8:55 AM

    Hello, interesting to see other women have had issues with thier IUD.
    I orig wanted the copper one, but could never get into the doc that did those ones, so I went with the Marina at my GP. She assured me it would work well, but did warn me of some side effects. I do not get a regular monthly, however, I did notice that at the end of every month, I am itchy like crazy! To the point where I have had STD and swabs done on at least 2 occasions to ensure I didnt have something. (no reason to suspect I would, but my god, its like a yeast infection without the discarge! I want to take a fork to my snatch!)

    I have suffered with anxiety and depression off and on for years. I belive that allot of that was due to my bad relationship with my now Ex husband. I did not notice it get worse once i got the IUD, but I was also going through my divorce, so I atributed most of my mood swings, lethagic ways and depression to that.

    I had my IUD put in fall of 2010. Its now fall of 2012, I am divorced now and with a man I would like to start a family with in a few years.
    One natrual-path doc told me the IUD was bad, not allot more info on his reasoning just said “if you knew something was poisining you would you keep taking it just cus someone told you to?” Of corse my answer was no, and he just looked at me….SO I guess that means he thinks I should take it out! lol

    My issue is I dont want to get pregnant right now, I hate using condoms becuase I have had some bad experiences withthem in the past. Im not keen on the idea of the pill, as I think it effects your ability to convice. But a high rate of misscarage after taking the IUD out, is news to me!

    Maybe im better off to get the IUD out now, go on the pill for a cpl years and then when we want to concive in 2014 or so, just go off the pill. (I always thought after going off the pill your more likely to have a girl due to the hormones in your body etc – some agree some say no)

    I sure would love to get rid of this monthly itching, its unbearable. However, this “Marina-Crash” scares me too.
    Is there anything you can do to lessen the side effects of having the IUD out?
    Would I be better to get a copper one put in shortly after? Are the intances of miscarage as likely after a copper IUD?

    I think I need to make an apt at my doctors office….

  40. Keisha on November 4, 2012 at 2:27 PM

    Hi
    I have has my iud for 3 and a half years and its only been lately I started get pain and irritations in my abdominal area I spoke to doctors about it and they said it was normal but I don’t think so cu now the pain is sometime unbearable other than that it was real good over the three years my period stop about a year after I got the placement done….

  41. Brittany on November 5, 2012 at 10:56 AM

    I have been having the same problems! I just associated the tiredness to a 3 year old!!! The headaches I thought were just from a very active (loud) 3 year old! I have also experienced acne, deppression, back pain, and weight gain ,breast pain and leaking breast which wasnt mentioned but I’ve looked that up and its a symptom to!!!! So sick of this!!! I thought my iud was amazing but now I see this has to be the cause of my problems and I want it out now!! Thanks for your help!!!!!

    • Amanda on November 12, 2012 at 1:04 PM

      I have had my I.U.D for 17 months now and i didn’t think i was having any problems with it at all but after reading all these post maybe i have been wrong. I have been experiencing bloating and i chalked it up to ibs that i have. Also hair loss but it was nothing major so i just ignored it. Tender breast that just started. But this is the first month that i have had no bleeding during intercourse since i have gotten the i.u.d. Every time my husband and i have intercourse there is lots of bleeding. I went to my dr about this and she check everything and it all came back normal. I’m starting to second guess Mairena and i will be watching closer to my body. Thanks for all the information ladies

  42. Amanda on November 12, 2012 at 1:18 PM

    Also my husband says he can feel it often during intercourse but the doctor says he shouldn’t. I think i may consider having it removed however i’m also worried about getting pregnant. I have three daughters and i don’t want anymore children but my husband does. I didn’t want to get it in the first place but thought i should try it considering my husband doesn’t like condoms and i was scared of getting pregnant again.

    • Natural Urban Mama on November 13, 2012 at 9:58 PM

      I think if you hubby can feel it, the strings may be a bit long. Not sure if they can cut them shorter for you, but check with your doctor and I would also discuss the bleeding during intercourse with your him/her again. That does not sound like a whole lot of fun in my books!

  43. kathy on November 19, 2012 at 9:00 AM

    I really struggled with the decision to remove my Mirena, because quite frankly, I loved it. I loved not having to worry about taking a pill each day, I loved not worrying about getting pregnant. I probably had some of the above symptoms but, for one thing, it’s hard (for me) to attribute any symptom to one particular cause and for another, all medications have some side effects. Yes, I was moody. Yes, I had more acne. I guess it wasn’t bad enough for me to part with such a carefree birth control. In fact, I went the five years, got it removed, and got another one put in.

    But what finally got me was my hair. Admittedly, my hair has always been fine and thin, but now it’s ridiculously thin. Or maybe it’s because my hair has always been so thin, that losing even a little bit showed drastically. But I was obsessing over it daily, hourly, minutely! Trying to find ways to regain my hair loss. What’s worse is that there is no real tangible proof that the Mirena was causing it, so I was so hesitant to remove it. As I said, I loved my Mirena. But my vanity won out. There were enough websites (American Hair Loss Assc by far the best) to convince me that the causal relationship between birth control and hair loss exists.

    So, yes, some people do fantastic on the Mirena. I did for a long time. But it also really sucks to be in that small 1%-5% that struggle with it. I feel your pain.

    • Michelle on February 26, 2013 at 12:36 AM

      Hi – I identify with your comments on Mirena – I had one for five years & the second one fitted about 2.5yrs ago. I love not having periods or having to remember a pill every day. I have always had fine hair & did notice hair loss a few months after I first had it fitted. My hair is now finer than ever & think there may be a connection. I wanted to know how long ago you had your Mirena removed & whether there has been an improvement in your hair thickness since? Please let me know. Many thanks.

  44. [...] who hate Implanon are speaking out. So are women who don’t love their ParaGard or Mirena IUDs. On YouTube, a video by a women with Mirena issues has over 6000 views;  Why I Love My LARC, [...]

  45. latoya on December 12, 2012 at 5:42 AM

    Hello , Ive been on mirena goin on 5 yrs now and in January i go back to get it removed and i was undecided what I wanted to do but after seeing these comments and seeing lawsuit advertisments on tv ,I dont think I want it because I found myself as one of the 5%& 10% who was having the different mood swings ,tired more than usual ,pains in my lower side that would last a couple of hours,and within the last year I’ve been having bad headaches or mirgaines I should say because I would have to turn out the lights and take some tylenol and go to sleep just to wake up with a little comfort.So, now the question for me is what I want to get next because I am a 25 year old mother of two and thats all I would like have for now .I will be looking for a birth control with out the hormones.If there is anyone who has this type of birth controil I would love to hear about your experience. Thank you!!

  46. Jessica K on December 12, 2012 at 8:28 PM

    I have had mirena since the fall of 2010 I had I’d twin girls in March 2010 after having tried several pills before pregnancy and having problems ad also having problems with pills post pregnancy I decided to get the mirena I have continuously had irregular bleeding cramps worse than I have every had and no sex drive what so ever. I have not had depression or hair falling out like some of the others but there are a lot of symptoms I have read on here that I tend to blame on having 2 1/2 ur Id twing girls fatigue,bloating, but worst of all the cramps that go all the way down from my back to my thighs to my knees, April of this year the continues spotting I had finally seemed to become regular cycle then in Oct I had no bleeding or spotting nothing. Come the end of Oct spotting started and continued to get heavier seemed like a normal cycle lasted about 6 days and was done. The week of thanksgiving it started again and did not stop till just a couple of days ago and today it started up again after intercorse last night and a lot of the the time the day after intercorse I bleed. I also have been dealing with bad abdominal pain acid reflux the drs have thought I had everything from pancreatitus to gastritus and esphogitius which is what I was diagnosed with 2 months ago and am on a 2nd medication since the first one worked fr a while but then stopped. I called my dr today and they said take a pregnancy test which I’m going to do tomorrow but really just tired of dealing with this forthe last 2 yrs I’m just not ready for another baby yet either. Help please on what I should do I want to get it out but my husband doesn’t seem for it since I use to take Yaz and he sees those lawsuit commercials for it.

  47. Mya M on December 15, 2012 at 11:32 AM

    I have had the IUD 5 1/2 years, now this has not been because I wanted it that long either. I am 28 and at 22 I miscarried and decided that I wanted to get on something. My doctor suggested that because at the time I did not want anymore children until more stable. I am a single mom of 1 that as I had as a teen. Anyway, in the beginning this was great light period to no period, and no worries of pregnanc before I was ready. Now at 28, I may want more children soon, just getting my career established, etc. After sex with my bf, I have frequent pelvic cramps, bleeding, and urination. These are are the symptoms I have experienced since the 1st year, headaches, back pain, depression, vaginal discharge (with & without ordor), severe mood swings, anxiety, and severe weight gain. At the time even after my miscarriage I was a size 9 at 5′ 9”, now I am a size 16. I went from 165lbs to 245lbs!!! Now I have always been active an athlete etc, so weight was never a issue for me, I have had a trainer, worked out 3-5 times a week, same with hot yoga, dieting, etc. With all that I can lose a few lbs here and there but after, reading all the forums. Talking with friends and seeing their results after having the Mirena removed. From going to a size 16 back to their original size 9 & 7. I know the Mirena is to blame. To top it off to see the lawsuit adds more fuel to the fire, I just hope and pray that I can have children in the future. I plan to get this taken out in February now that I will finally have medical coverage with my new job. My prayers to all the women that have had a negative experience and to those who are new to Mirena, please research all your options. I personally think anything that is can stop your period will cause problems long term. I just wish I had the means to get this taken out sooner. :-\

  48. Alana on December 16, 2012 at 6:22 PM

    I had the Mirena for the full 5 years and had almost all of the side effects. Wanted to get rid of it at the 3 year mark as well but didn’t bc im a very high risk pregnancy and I can’t have any more babies with dear hubby. Anyways its been 6 days since its been removed and I feel worse with it out than in. But im on a new birth control so im not sure if that is y I feel so yucky! Glad you posted this, helpful information.

  49. Janet on December 17, 2012 at 10:47 AM

    I found your story after doing a search for Mirena symptoms including depression. I had the Mirena inserted Sept 2011. They couldn’t put it in at the first appointment so they gave me a vaginal suppository that was intended to make it easier to insert. I was to come back the next day. This should have been a sign to me!! When it was finally inserted, it did not go in easily as my ob/gyn had said it would. It was very uncomfortable and I had quite a bit of cramping. But I was sold on the idea of “worry-free birth control” and the strong possibility I would end up with fewer to no periods. After the first five months or so, I had no periods whatsoever. I did feel fatigued at times and also experienced times of anxiety/depression. However, I chalked it up to being in a new marriage (blended family) and working the night shift. The end of July 2012, my period came back out of nowhere and with a vengeance. I’ve had bleeding nearly every day since then. I still felt tired and anxious and started researching Mirena’s side effects. After a bout of particularly heavy bleeding (soaking thru multiple super plus tampons in a day), I went to the doctor. I had bloodwork done and an internal ultrasound to confirm placement. All the tests came back fine and the Mirena was positioned exactly where it should be. She convinced me to wait it out and maybe the bleeding would resolve itself. Because I was sick of being poked and prodded, I agreed. I’ve since had a couple more bouts of very heavy bleeding and am now ready to have the darn thing taken out. My libido has waned considerably which I also attributed to my work schedule. After reading your comments, I think my loss of sex drive, fatigue, and anxiety is more likely a result of the Mirena. My husband and I have decided not to have children together (I have 3 school aged children from a previous marriage) and I am looking at permanent birth control. Thanks for your helpful info.

  50. Lib on December 17, 2012 at 9:30 PM

    this has been so so helpful!! i have put all my crazy mood swings and ups and downs in personality to single mama status but iv been with my partner for 2 years and im the happiest i have ever been in my life. the sudden occurrence of migraines(i NEVER get headaches let alone migraines) and feeling like my uterus is in a vice as well as the non stop bleeding for the last two weeks and need to wear panty liners over the last 2 years(something i have never ever had to do) as well as the “heat rash” on my arms is setting off all my warning bells!!! docs tomorrow for a serious check up!!!

  51. hailey hart on December 19, 2012 at 12:50 AM

    I had a horrrrrrible time with my mirena. I only had it in for a month, I bled every day, sometimes light, sometimes heavy-which made it where I couldn’t have sex, which was frustrating enough since that was the entire reason I had the IUD in the first place-constant, unprotected, worry free sex…nope. but on top of that, I had some severe symptoms that were concerning: my left leg would often have a severe numbing pain, I was unable to focus visually on individual objects, I had extreme cramping (I had never cramped before when menstruating), I had severe migraines, my legs itched like crazy constantly, I was severely depressed and man was I a BITCH. Not only was it ruining the quality of my life, but my marriage was beginning to crumble. The worst part is, when I excitedly got my mirena, I signed a contract promising I would keep it for six months-so my doctor wouldn’t take it out, even after I told her these symptoms. My advice to anyone thinking of getting an IUD is: DON’T. Because even now, when I’ve had it out (I yanked it out myself) for a week, I’m still bleeding very heavily. I’m talking a huge kotex about ever hour to hour and a half. Its ridiculous. Save yourself and use natural means of contraception, or at least nothing that affects your body from the inside.

    • isabel aasen on February 17, 2013 at 12:35 AM

      Very interesting about you having to sign a contract for 6 months to keep the i.u.d. That suggests to me that Bayer is needing more information on long term use of their little gadget. I regret like hell having mine put in as i have most of the side effects. I DO NOT believe that only 2 to 10% experience side effects! Drug companies are scandelous liars when they need to be. Yes, we need them but are they really as beneign as they would have us believe? When it comes to money, there is no limit.

  52. Witne on December 22, 2012 at 11:27 PM

    So – this week I was told I have to have surgery to have my left ovary removed due to a grapefruit sized cyst that has wiped out my ovary. Considering I have a family history of ovarian issues (cancer, cysts ect.) I am thankful it isn\’t cancerous as far as they know. Ok, on to my problems and rant.

    I also have the Mirena IUD. I have had it for going on four years. When I originally went to the doctor because i was having pains so bad I could barely walk – I thought my IUD had punctured my uterus or something – but instead they found the cyst. I haven\’t \”minded\” the IUD per say because it has prevented pregnancy BUT over the last few years many different things have now come together in one huge AHA! moment. I am so pissed off I can barely type. I decided to take to the net to start reading about ovarian cysts and to be more educated on them before my visit this week with the doc. Come to find out – I have EVERY. SINGLE. SIde effect of the Mirena IUD. ALL OF THEM. straight from the Bayer (the manufacturer) website.

    Acne (I have acne now like a 12 year old girl going through puberty! which I NEVER had before – even at 12!)
    Migraines (never once had one in my life until three years ago and started seeing a doc for them because they got so bad)
    Pelvic Pain (I get a throbbing pain in my pelvic region every so often)
    Back Pain (CONSTANT – never had before)
    Weight gain (I check my medical record – I have gained FORTY pounds since insertion and I have not changed my lifestyle! I am a salad eating fool and I run)
    Pain during Sex (all the time- only one position is comfortable)
    DECREASE in libido (SIGNIFICANT!)
    nausea (all the time – several times a week I feel like I have morning sickness)
    breast pain (all the time – far more than the usual during the week of period)
    BLoating (CONSTANT)
    High blood pressure (just found out I have this – and it is extremely high! – this cannot be a coincidence!)
    Ovarian cysts (the icing on the Mirena cake)

    Bayer claims these happen in LESS than 5% of users.
    I have ALL OF THEM.

    I began reading more and found that the FDA basically called out Bayer in a public way stating they used deceptive marketing practices – telling women that mirena increases sex drive and intimacy, and that it is carefree with little to no sideeffects. I was told in my consult *which I have the papers* that it would help with sex because of worry free BC, and that side effects listed were *extremely rare*.

  53. Laura Allen on December 29, 2012 at 3:09 AM

    Oh thank u very much for this. I have had the mirena for almost 2 yrs and have been having 18 of these symptoms the whole time. I\’ve been to the ER several times and they have asked me one time if I wanted it gone and I said no no more babies for me right now that was a big mistake. Thank u now I can let my hubby know y we can never have great sex.anymore becausr of the Iud. Thank u ladies!!!

  54. c on December 31, 2012 at 7:14 AM

    Let me start by saying I am 30 years old and my fiance and I do not want children. We love kids, just do not want any of our own and have discussed this at great length.
    So one day, about a month ago, I stayed home from work with a horrible migraine. After resting for half the day, I started to feel better so turned on the tv just in time to see the end of the Mirena lawsuit commercial. I thought it was crazy because I felt like I have been so much better off with my iud. I got pregnant while on bc pills and had a medication abortion with horrendous complications that still freak me out to this day. Needless to say the iud has taken away that stress of pregnancy scares. Most of my life I had horrible periods, ovarian cysts, etc. so the pelvic pain I get now seems like a fair trade for no pregnancy scares. A few months after I got the mirena I asked the Dr. to remove it because of pelvic pain and cramping. She said to stick it out because it would get better. Soon after I got the Mirena my period became almost nonexistent, and it was awesome….so I decided to leave it in.
    However, I can\’t forget the commercial so I have been doing research and am having one of the ah-ha moments. I have had the mirena for 3 years….since then I have had increased migraines, almost weekly. I have gotten terrible stomach pains and acid reflux so bad that it caused stomach and intestinal ulcers which were found after a colonoscopy. I have never had a problem with acne, but now its like I am going through puberty. Weight gain, depression, no libido, fatigue and exhaustion, and all the rest of the symptoms. My fiance comments daily on how much hair I am shedding. The worst part is, none of my doctors or myself ever thought or suggested mirena to be the cause. I always blamed my issues on work stress or other life problems/changes. My doctor thought the acid reflux was dietary, and another doctor suspected chronic fatigue syndrome to be responsible for my exhaustion. After reading above, I too have felt like there were times I felt pregnancy symptoms but was not implanting. I just figured it was another quirk in my reproductive system. Only now am I starting to put the pieces together. I feel so stupid for not realizing this sooner….
    I feel even worse because removal is not an easy decision for me. I have learned to deal with and manage my current \”side effects\” but I am terrified to have the iud removed and go back to horrible periods and the possibility of another unexpected pregnancy that could end as terribly as the one years ago. I am so confused. Any advice or suggestions? Thanks!

  55. Trish on January 2, 2013 at 7:35 AM

    I am 47 years old and have had the mirena for 4.5 years. I have never had children. My doctor recommended it for the heavy periods I was experiencing. During the insertion I had a horrific experience. My OB/GYN told me I had the smallest cervix he had ever inserted a mirena into. Needless to say a local anesthetic was required. Post-op I had radiating cramps from my navel to my knee caps immediately. This went on for approximately 6-9 weeks along with continuous bleeding. Moodiness and fatigue I had never had increased, and my relationship with my fiance deteriorated. He was not sympathetic to my situation, and 2 months later we broke up. My periods continued for 9 months after the insertion. I too experienced depression and was prescribed antidepressants by my MD after year of the mirena. Slowly over the past 4 years my athletic body is now somewhat pear-shaped. Easily I could control my weight through exercise & diet. I am always bloated. Until now, I just assumed it was early menopause setting in. I have enjoyed being without a period for 4 out of the 5 years, but at what cost? I have begun spotting, EXTREME back pain, and radiating cramps in my pelvic area to my knees. Robaxacet & advil cannot provide any relief whatsoever. After reading & researching I have decided to have it removed early. Can anyone tell me about their experience during removal of the mirena? How soon did your period restart? Was there alot of hemoraging post op, for how long? Thank you to all that have posted your journeys with this product as it has helped me and so many others to make the right decision.

    • Latina on January 16, 2013 at 1:20 PM

      First of all ladies thank you to each one of you for sharing all this situations which seems that instead of the 5-10% of side effects it should be 95-90% side effects sufferers- if it was to be advertised truthfully! Makes me mad that this pharmaceutical companies have us by the neck because they create something that supposedly will give us peace of mind and all it does is create new ones and worse.. take a look at how clever they are: they invite you to come in for “poison” to your body, they don’t come knocking at your door- you go beg at their door, for “poison” and once they give it to you and the effects become present.. oh! let me help you by bombarding you with pain killers, nausea medicine, antidepressants- etc. Products they “happen” to have available to you – making them richer! these products will cause other side effects which will create more need of other poisons to your body! how clever!!.. they are nasty and out for money not giving a darn about your health! sad.. I feel hopeless when it comes to this matter because every solution i see available sucks – other than practicing celibacy or use condoms which are indeed hinders of pleasure for your partner and consequently for you.. I don’t see hope. The other sort of solution is the pull out method but you have to trust the guy (clean no stds and that he doesn’t have an agenda to try and get you pregnant on purpose to lock you down to him- that’s what my last bf did :( he got me pregnant on purpose) I wish you all the best and after the miscarriage of that tricked pregnancy I can tell you try to live drugs free.. your body will thank you and like that we won’t give pharmaceutical companies the lucrative pleasure of destroying us bit by bit.
      xo Latina

  56. Painful Journey on January 2, 2013 at 8:02 PM

    I am 41 years old and had the Mirena placed in 2009. Since then I have developed ridiculous migraines, acne, mood swings, fatigue, decreased libido AND daily bleeding. The dr. told me to give the device a year before it stopped the bleeding. Well, that never happened – the bleeding actually increased. Three years and two doctors later I discovered that my insides were covered in cysts that kept rupturing and causing painful discharge. An ultrasound could not locate the IUD so I had to have an x-ray which confirmed that the IUD had perforated my uterus and was lodged in the tissue in my abdomen. I had to have a very painful D&C where they removed the embedded IUD and I bled non-stop for four months (the right after giving birth type of bleeding) until I finally had to have a hysterectomy because my uterus had been punctured, was growing cysts at an alarming rate and fortunately I was done having children. The most frightening thing? Fluid was passing through my uterine wall. Fluid, people, as in sperm, as in I could have gotten pregnant which would have ruptured the already weak uterus and probably killed both me and the baby. I am investigating the Bayer lawsuit as a result. This has been three and a half years of my life I can’t ever get back.

    IF you are still wanting to have children, I would not recommend the Mirena IUD at all. Do something different that has fewer severe side effects.

  57. lauralee on January 3, 2013 at 7:26 PM

    Omg after reading this I am making an appointment to get the iud removed I have had all the syptoms and have thought I was pregenant I have had mine two years and have had nothing but pain and problems since inserted ugh I will have to find a form since I am allergic to pill and the patch is there any other form of bc out there seems more bad comes from the meraina iud then good

  58. diane on January 4, 2013 at 3:25 PM

    I had that Mirena put in after my fifth baby, it was a
    ll good the five years + one month. Got pregnant but had 2 miscarriages after each 17 months apart, then decided to put back in now 4 months, have these “symptoms” way different than my usual. Going in to hospital for check up. Will let u know what the diagnosis is this time.

  59. nielle on January 10, 2013 at 1:03 AM

    thanks for the post. i wake up every morning with severe stomach pain for about three years now.ive tried gas x and ginger ale for relief without luck. then i thought it was due to stress. after reading your post i realized my stomach pain started around the time i got my iud.

  60. Mel on January 11, 2013 at 10:11 PM

    Crash course in my body giving me signs something is not right. I had my first child in 2009 and had the Mirena inserted shortly after. It’s going on 4 years that I’ve had it. My family, friends, and significant other say they simply cannot handle me. I have severe mood swings and feeling of being depressed. I have suffered in the past 3 years with migraines, vaginitus, and yeast infections. However it has not affected my sex drive but with my severe mood swings it usually doesn’t happen anyway. We (boyfriend and I) after many discussions came to the conclusion today it’s time to have it removed, it’s worth a try to have ME back. I’ve made the decision on my own to completely let HBC go all natural!! :-)

  61. Kim on January 13, 2013 at 10:19 AM

    Thanks for the info! I am going in for weight loss surgery next month and will no longer be able to use birth control pills. Even on birth control I have extremely heavy periods with excruciating cramping and tons of ovarian cysts that tend to wait just until the dr’s are about to surgically remove them before they rupture on their own. All of this has led to me being very anemic which in turn makes me very tired and moody with migranes pretty much daily. My Dr has recommended an IUD as opposed to getting my tubes tied. I am going to ponder the idea for a little longer and try to come up with a decision by the time I go for my post-op appointment.

  62. Shay on January 16, 2013 at 9:57 AM

    II currently use mirena since 2007 I’ve experienced my period mia of course there had been spotting in first year.Now @ the last 2 years I’ve had abscess showing up on my body luckily I was taught how to get rid of them.Yes I’ve experienced the low sex drive I’m only 28 with 1 4 soon to be 5 year old I should be on fire however I’ve noticed that I’m not turned on as much.I’m getting it removed in 3 months what’s next thinking bout copper 1?I read side affects on that 1 it says not recommended for iud users so now what it has a lot of good but I don’t want more children!concerned new mom guess I’ll give it a try in next few months!

  63. Kristina on January 16, 2013 at 7:49 PM

    Thank you so much for posting this, I only wish I could’ve found this sooner. I have had and currently experiencing several of the same symptoms. I have had mine in for over 4.5 years and will be getting it out in the next couple months. I wanted it out last year but my doc said there was nothing wrong and I even went through several blood tests to figure out why my hair was falling out and my white blood cells were a high count

  64. Anya on January 19, 2013 at 8:41 AM

    I am 22 and have had my mirena for 2 years now and my appointment is booked to get it taken out! My main reason is the weight gain and depression. I have a 2 yr old son and in a university student so, like you, I thought it was from life being overwhelming. But reading this I now realize there are a whole stream of sypmtoms i never even realized were symptoms (and I bled for 3 straight months when I got it in, was losing so much blood I couldn’t stand too long, I had to nap frequently…).. Thank you for informing women everywhere.

  65. Tree on January 21, 2013 at 2:46 PM

    I had a similar I.U.D.30 years ago, back then it was called a progesterone T.i had it inserted and almost immediately I had problems. Nausea, cramping,major headaches, needles to say I had it removed. Now my adult daughter is haveing fishy symptoms, nausea, ect. I asked if she has the mirena, and she said she thinks it is. She keeps telling me she’s fine. I sure hope so, I have already lost her father to cancer, I would never survive loosing her.

  66. Tammy on January 22, 2013 at 1:36 PM

    I’ve only just begun to research the Mirena IUD and can’t believe the systems that you all describe. I had the IUD inserted in Oct 2010 and had immediate cramping and bleeding. My boyfriend hit the strings every time we had sex and would poke into him. I bled very badly for the first 3 weeks and then the bleeding decreased month over month but I never knew when I would spot. I spent last winter getting used to it and by summer it seemed ok…..no period at all or very little spotting. By the fall of 2012 I was an emotional wreck, gained a ton of weight. I eat all the wrong foods, started back with a personal trainer but nothing helps with the weight loss. Besides my mind is always so foggy I can’t really concentrate on anything or even motivate myself to go walking (even when I know I should and I will feel better). I have been known to have an attitude from time to time but OMG!! Moody! Can’t even stand myself somedays. It’s now January, I’m learning more about this thing everyday. I suffer stomach pain (sometimes its a minor pain but there all time, almost like I got used to having it around), breast tenderness, sex drive declining, hurts to have sex, bleed almost after every time I have sex. Headaches, joint aches….sometimes super bad. My hips hurt all the time. But the tiredness has got to be the worst. I am tired all of the time and I keep thinking “just go to bed early” AGAIN and you’ll feel better tomorrow. I don’t seem to come out of it. I hope once I get it out, I will feel as good as some of you are feeling now that you have it out.

    • Shelly on January 22, 2013 at 3:59 PM

      I used this device for 7 years. I have never had any problems. I enjoyed 7 years of worry free activity. When the seven years were up, I went to a GP and the device was removed in a few moments. I really, really miss the connivance of the IUD. I am considering going back for another 7 years with this device.

  67. Clay on January 25, 2013 at 10:04 AM

    Natural Urban Dad needs to get snippity-snipped … yesterday!

    What’s his deal?!? It simple, easy, relatively pain-free (I’m speaking from experience here). Literally not at bad as a dental checkup. No side effects.

    Since you’re the one with the low libido, tell hubby no sex until snippity snip. It’s only fair.

  68. noshrinkingviola on January 26, 2013 at 4:49 PM

    I have had the Mirena in for 5 years now and have to decide if I want to replace it or keep it in. I have actually had a very good experience but now that I’m almost 44, and entering perimenopause, I really need to make some decisions. Thanks for your thoughtful post.

  69. Elle Fawkes on January 28, 2013 at 12:26 AM

    I actually have an appointment to get Mirena put in tomorrow, though after researching it more thoroughly and reading this well-written post, I will be canceling it. I have a 2 year old daughter with my boyfriend of 5 years, i have PCOS (PolyCystic Ovarian Syndrome), I suffer from severe depression (and have been hospitalized for it in the past), and my hair already sporadically sheds due to recovering from anorexia when I was a teenager. All of these side effects don’t sound like they only effect >5% or 5-10%, there’s no way all these women can be lumped into that category, there’s far too many cases of it. I’m glad i found this post and did my research before getting it.

  70. Mama w/ Mirena on February 6, 2013 at 9:16 PM

    I cannot express enough how thrilled I am to know I am not crazy! Well, my family will tell you I am….because I am a monster. I had Mirena put in place 2 years ago. Weight gain, yes. Tired all the time, yes. So tired all the time but have to take Tylenol PM to fall asleep every night…yes. Zero sex drive, yes. When I do have sex, it is painful. Mood swings, yes. Forgetfulness….all the time. Headaches….a lot!!! in addition to all that, I am really tired of the acne on my neck, back, behind my ears, etc. Not just acne, but sores that will no longer go away. I have scars from them on my back. This began at the same time as having Mirena “installed” and progressively has gotten out of control. I have seen a dermatologist, who tells me that Mirena is not the problem. He put me on antibiotics and I have been on then for 5 weeks with no change, only worse. I go back to see him again tomorrow and will certainly bring up all of the posts I have read on this site and many others that all point in the same direction!

    Natasha, thank you for your story and giving many women the opportunity to share their stories with you.

  71. Kate on February 7, 2013 at 12:23 PM

    Thanks Natasha for your posting. I am a stay at home feminist too, worked in women’s health for many years felt like I was the poster woman for Mirena as well. I wanted to know if all your symptoms are better now that it’s out and how long it took.

    I have only had mine in for a few months after years of hormonal birth control (without ever having side effects). Since Mirena I 1. have never gotten a period, 2. gained close to 10 lbs and went up 2 cup sizes in my bra!!!! 3. Have an upset stomach or gas all the time 4. Have itchy, bumpy skin 5. Have trouble waking up in the AM from fatigue. My OB who is fabulous, does not seem very sympathetic or willing to admit these symptoms are from Mirena.

    Does this sound like what you had, did your OB ever admit that these are real side effects. I really don’t know what to do because I’ve read the research on how great Mirena is for women!!

  72. Kat on February 7, 2013 at 8:54 PM

    Stumbling on this tonight has been heaven sent for me. I am on my second Morena, my first in 2006 and just got my second one put in. This time around having some noticable problems. I would not have had suspicions to the Morena had I not stumbled on this along with other blogs.
    I am going on day 9 of severe abdominal pain, nausea, back pain, hot/cold, and fatigue. I was put on antibiotics for an infection but they can’t figure out from what. I had external and vaginal ultrasound….all normal. Just had CT Scan….normal. Urinalysis showed puss but no blood. PID, UTI, kidney stones, IBS and Ovarian cysts all ruled out. I have been blown off by my GYN and now my primary thinks its nothing. Meantime, I’m in major pain and so discouraged. I had brought up the IUD as a possible problem to both GYN and PCP both claiming its not at all a possibility. FWI…I have had my gallbladder and appendices takin out so those are not an option either. Upon reading other blogs I saw a ray of hope shine through. I discovered there were other woman who had gone through similar problems. Not to mention other issues I have had for 6 yrs but had no idea of the connection. Issues such as sleep apnea, no sex drive at all to the point of I could go with out completely and be very happy with that (I’m married so my husband has complained about this for the last three years now), I have put on 15 lbs and it teaters to 20 lbs often, discharge, joint pain, fatigue, never ending bloated feeling with the bloated belly, an unexplained pang of pain I experience down there that happens randomly to the point of taking my breath away..literally and lasts for about three mins then disappears as quickly as it shows up, moodiness and heart palpitations. I thought I had just been loosing it all these years thinking maybe premenopause or its life struggles in general or maybe, it’s just me.
    I have always loved the convenience of the Morena. Both from the BC end to the period. But now am putting all these pieces together to this puzzle and think its best to get this thing out. But how do I convince my GYN to agree? She wouldn’t even see me let alone take a phone call this last wk claiming it doesn’t have anything to do with the IUD. Will this nightmare end??? I’m in so much pain and just want this all to go away!!!

    • Erin U on March 25, 2013 at 5:44 PM

      EXACT same story as mine. (first mirena in 2005 without problems, second one in 2010 was hell).

      What I had to do is schedule an appointment to have my IUD removed (I believe I did this at my annual pelvic exam so they basically had to see me). I had to tell them that I was thinking of possibly getting pregnant again in order for them to remove it (even though, I’m not planning on getting pregnant again).

  73. Marcela Aguilar on February 9, 2013 at 7:30 AM

    This post has felt like a shed of light and angelical chorus in the back for me.
    I have questioned my own sanity, be afraid of the depression history of my family finally hitting me , even considered smoking pot .. anything just to be able to deal with this lack of willingness to do .. anything.
    The frustration of not being able to complete an excercise or diet program because I am completely exhausted after a week of getting started. In the meantime, my husband acuses me of lack of willingness and sloth.
    I look like if I were 63 when I’m 34. I’ve been saying for a while now that it was a wonderful thing not having a period , but the truth is that I miss it sometimes. I don’t feel a woman, as a “whole” woman, and I can’t understand why.
    I am getting that Mirena out of me next week, I also have had it for 3 years and a half and it did give me a whole deal of satisfaction. But as you said, I think it’s time is up.
    I have about 10-12 years before dealing with menopause .. I should enjoy my womenhood before that and not getting out of mirenaa to menopause !!

    Thank you, your words have cleared up muy mind.

  74. claudia on February 9, 2013 at 8:21 AM

    I have been doing a lot of online reading about Mirena. I was having ongoing spotting, sever night sweats, flushing face, super fatigue, so sleepy all the time, weight gain, moody for 13 weeks and my gynec did not find a fibroid, cyst or other reason except that I was perimenopausal. Im 48 years old. And this was no surprise to me, I was expecting this news. However, She suggested a hysterectomy and had no other solution. (what the what!!!!?) I was not happy with this so I changed MD’s and we tried BC pills with no change, so we inserted the Mirena and I m on testosterone creme for low testosterone levels. I have had it in now for 1 month without any real problems except the annoying light spotting that I understand could go on for 6 months. But GUESS WHAT??The weight fell off me in about 10 days!!! im not moody anymore (my husband is thrilled)!!!, and No more night sweats, I sleep the whole night 8 hours without waking up not even once!!!! And my sex drive is great! ;-) So far, I love, love, love Mirena! Im back to my old self, almost. Now if the annoying spotting would stop!

  75. Kelly on February 10, 2013 at 2:32 AM

    Did your symptoms get better?
    I had my Mirena for 5 months and experienced severe depression, anxiety, panic attacks, no sex drive, loss of appetite SAD, digestive problems, randomly feeling faint, night sweats, increased body hair and odour(yuk).
    I had it removed 16 days ago and I am like a roller coaster! I have not had a period yet. My symptoms are lingering, but have had some happy moments for the first time in months!
    Doctors say Mirena wouldn’t be the cause, but all blood work is perfect. I am loosing hope that I will ever feel like myself again…

    • Erin U on March 25, 2013 at 5:40 PM

      If you research post-Mirena crash, there are a lot of women who experience a roller-coaster of hormones after removal. My OB actually told me, when I called telling her that a month after removal, I had my period, and my hormones/mood swings were out of control and she said, “This isn’t an OB issue, you need to see your primary doctor.” Are you kidding me? How is it not an OB issue? I have no trust at all in doctors who push the Mirena to such extremes that they refuse to even consider common sense.

      I found a lot of helpful information at http://www.mylifeaftermirena.blogspot.com after my crash. Hope you feel better soon.

  76. Bobbi on February 10, 2013 at 8:31 PM

    I was searching info on MV: migrainous vertigo, due to my recent diagnosis. I am premenopausal and had the Mirena inserted due to hemorrhaging. I realize now that the beginning of my vertigo coincides with the insertion of the IUD. I question why the specialist did not see a possible pattern, as he had the info in front of him.

    I feel like I am damned if I do and damned if I don’t…Being anemic can be deadly, but MV affects my well-being. I don’t want to take meds to correct another med’s side effects. I am not a candidate for uterine/endometrial ablation either.

    What if it isn’t the cause of my problem? Then I have to deal with both issues…How frustrating!

    I am glad that it works for many. It is one of those decisions that people need to make, by weighing all the pros and cons. I could have died without it.

    Thanks for letting me think aloud ladies :)

  77. Amanda on February 10, 2013 at 11:07 PM

    Thank you so much it was so good to hear I was not crazy thanks

  78. Jillayne on February 13, 2013 at 6:24 AM

    I had my IUD placed a month ago. I’m having it removed today. I’ve been sleeping until 8:30 (I have four children 7 and under – this a NO NO) and am still exhausted. I was the “normal mom tired” before that, but since the insertion, I’ve been falling asleep at the drop of a hat. AND that’s not the worst side effect.
    The worst side effect is the anger – well, RAGE. And the depressive thoughts that come with the guilt from my actions when I’m raging.

    While I do not want another child, especially right now or soon, the risk of pregnancy definitely outweighs the harm I could potentially do, or even am doing to my family. (See my blog, http://southtonorth6.blogspot.com/2013/02/side-effects.html)

    I will never do an IUD again.

  79. Mama Reashel on February 13, 2013 at 12:26 PM

    Thank you for your information. I am currently lookin at Mirena for my new bc cause i dont really have othere options ( alerigic to latex, horrified by needles, cant remamber the pill and hated the implant. Not to mention Hubby is alergic to spermicides) I have heard horror storys about Mirena ( yet ppl still tell me it is the one to go with) and it is nice to know im not the only one that looks into every little bit to find the truth. Thank you for the blog

  80. Patty on February 14, 2013 at 12:01 AM

    I know this is super late but just today my boyfriend was asking me what’s going on with me. I have had Mirena for 3 years now and I e noticed that I am ALWAYS in a bad mood. I’m super snappy, irritated and my attitude is BAD!!! Everything gets on my nerves and I mean everything. I wasn’t like this before. I always feel sad and unmotivated. I’m always super exhausted and can’t ever get enough sleep. My hair has fallen out a lot and I have gained about 20 lbs that I can’t seem to drop. My boyfriend asked me today if I had noticed the big change in me and that it makes it hard for him to want to be around me because of my attitude. I told him that I noticed but I thought it was just work and stress. Now that I read this post I know that it’s not me going crazy! It’s this bc!! I thought that I could handle being a psycho mess instead of having a baby. I don’t want to have kids just yet because we can’t afford it. My bf said that he’d rather have ME back and that we will take other precautions to not get pregnant but that if its meant for me to get pregnant then it’s ok . I am so glad he is supportive.

    I want to have my Mirena removed but I don’t have insurance. Do I have to go back to the same doctor that inserted it or can I go to a clinic? I just want to be my normal self again.

    I thank you all for sharing your experiences. It feels good to know that I’m not the only one that is going and has gone through this.

    • Natasha on February 14, 2013 at 12:29 AM

      Removal is a very simple thing for any family doctor or general practitioner to do. You do not need to see a specialist for it. I am glad that you bf is being so supportive for you. Good luck. N~

  81. Keisha on February 15, 2013 at 3:03 PM

    Hi, your blog really caught my curiosity. Have you or anyone else reading this ever heard of anyone having chest pains due to Mirena? I had Mirena implanted 6 months ago (6 weeks after giving birth to our daughter) and have many symptoms that are “unexplained” medically. These symptoms include: extreme fatigue, night sweats, hives, hair loss, and most recently chest pain, weakness and shortness in breath. I have had every test, from allergy to blood tests, to EKG’s and everything comes back “normal”. I have a history of blood clotting and was told that Mirena could not cause clotting like the pill because it is not estrogen based. The only instruction my doctor is giving me is to take Zyrtec, IB-Profen and to rest (no matter how much rest I get, it’s not enough). I don’t want to take medications for something that can be easily fixed by removing the IUD and wearing a condom. I definitely do not want to have a heart attack or stroke in order to prevent us from having another child, especially when we do have the option of a condom. I’m starting to feel like I’m crazy and I’m not getting a straight forward answer from any doctor about whether or not the Mirena has something to do with all this.

    • Katherine Glatter on March 17, 2013 at 2:18 AM

      I had a Mirena inserted in mid-December 2012 due to a fibroid tumor that is embedded in my uterine wall which causes me to have constant flooding and resultant anemia.

      I am 49 and have been peri-menopausal for many years. I am not in menopause. I do not bleed any more after the Mirena insertion, so not sure where I am in my cycle.

      After a month of on and off spotting (before the Mirena, I bled for 5 months even on progesterone), I stopped bleeding. I lost a lot of bloat I’d had for years. I have started to lose the 12 pounds or so that I gained while I was anemic. I felt really good for about 2 weeks after the bleeding stopped. I had only minor discomfort on insertion and for the first month. No problem there.

      However, in late December and especially by the beginning of January, I started to have a sense of weakness in my chest. In Feb, in yoga class (nothing new, I’ve been doing it straight for 4 years), I was brought to tears by excruciating rib pain. I have had a rib injury (on the R) in the past and this was not like that. The rib injury was a discrete event–I took a pressure blow to the rib cage and was in immediate pain. It was a slow recovery, but very obviously localized. This is different. There was no blow to the ribs, no coughing, not pain in one spot. It’s all over and roves around. The bones as well as the cartilage are very sore.

      There is no apparent cause for my rib pain. It moves from L to R side, but mostly feels like I’ve been kicked by a mule in my sternum (in the center). The diagnosis is costal chondritis which means nothing as far as a cause.

      I’ve had extreme exhaustion with no cause–all of my blood tests are normal except for low Vitamin D. I started taking more Vit D 2 weeks ago and I do feel somewhat less tired, but still most mornings, even after 8 hours of sleep, I am tired. I have normal WBC counts, normal chest x-ray, normal thyroid, BP, calcium, etc. I should be healthy as a horse but I am run down. My anemia is resolved–my Fe levels are back to a normal range.

      I also began to have strange itching sensations on my R outer labia and up the back of my R leg. No rash or hives, but a slightly raised feeling on the labia. Inexplicable and on-going. It’s been almost 3 weeks and there’s no visual sign of skin or nerve problem. It’s not nerve pain like sciatica as I’ve had that in the past and I know what nerve pain is. This is a prickly feeling, but no numbness. There is a slight bumpy feeling on the skin but no rash.

      The Mirena is a life-saver as far as my flooding. It has completely stopped my blood loss. BUT are these side-effects of the Mirena? My other option would be to have a hysterectomy and it sounds so extreme to remove this life-giving organ. It seems like Mirena is a less invasive option. I just wish the rib pain, tiredness, and now the newly-developing itching on my leg would resolve.

      I have no hair loss, no loss of sex drive (except from the itching, rib pain, and exhaustion!), no spotting, no acne, no bloating, no weight gain. In fact, my flat belly, from before I had kids, has returned AFTER the Mirena, which I love.

      If I get my Mirena removed, I will be facing getting a hysterectomy. I wish I could tell if it is involved in my extreme rib pain. It really sucks to not know.

      I have never been on birth control pills, nor have I had an IUD. I am not using the IUD for birth control because my husband had a vasectomy long ago (which, btw, if you are using the IUD for birth control but are done having kids, try to get your husband on board for a vasectomy. You will love it and so will he! Better and more sex for both of you! No side effects!).

      Well, I will keep this in mind. I do not cotton to all of the fear-mongering I read about IUDs, but I do not trust Bayer corporation–they are for-profit and for-profit only.

      I did not have any side-effects when I was on oral progesterone to help manage my flooding, so I can’t believe the low-dose of the progesterone from the Mirena would cause these problems. Still, it is a foreign object and hormones are the most delicate things to mess with. I want to be a “natural” girl, but nature grew a fibroid in my uterus in the last 2 years. What to do? It’s such a dilemma because I am really tired of the movement-limiting rib pain, the itching on my lower body, and my tiredness. It’s just not me and I can’t do yoga which is my A #1 stress-buster and all-around remedy for all muscle tension.

      YIKES! Good luck to everyone here!

    • Erin U on March 25, 2013 at 5:33 PM

      When I was on Mirena I would wake up in the middle of a dead sleep unable to catch my breath/shortness of breath, like a brick was on my chest. I felt like I was going to faint/vomit at the same time, my legs/hands, scalp/face all tingling. I had all the tests as well: blood, urine, MRI. All came back normal but still continued with symptoms. They started prescribing Xanax (they thought I was suffering from anxiety), which, hell yes I was anxious, I was afraid of waking up in that state! I had ZERO history of anxiety, plus, I was waking up from a dead sleep like this. It wasn’t like I was psyching myself out.

      When I had my Mirena removed, all the symptoms STOPPED. I also did a lot of research and found that other women have these same symtpoms from Mirena (shortness of breath, etc.) I was never tested for silicone toxicity, but there have been several women who have reported that they have been tested for silicone toxicity when on or right after Mirena removal and the levels of silicone in their body is alarming. It is an allergic reaction and causes an auto-immune response in your system. I found a lot of helpful information at http://www.mylifeaftermirena.blogspot.com

  82. Mandi on February 15, 2013 at 3:16 PM

    I have to say thank you for writing this. I have had my mirena for a year and have felt like I’m going crazy. I have had spotting about every three to 7 days with horrible back pain and cramping. I often have headaches and mood swings for no reason and I am exhausted all of the time. I have worked in the medical field for many years and have seen many women with IUDs before and none described my symptoms so I felt like I was going crazy. I plan to take the IUD out soon and hope to get back to normal. Now to figure out another form of bc:( anything has to be better than this. Thank you for your post.

  83. Joy on February 16, 2013 at 1:51 AM

    I had my large intestine removed 4 years ago due to perforated diverticulitis. I have always had severe menstrual symptoms and after dealing with gut issues for half my life I decided I was tired of all the misery and wanted to try Minera to see if it reduced my period problems. After 3 months with it inserted I started having intestinal issues and severe bloating as well as fatigue, aches and pains and headaches. I thought I had a bacterial infection in the small bowel. Did tests, took antibiotics, changed my diet to gluten and sugar free to no avail. Finally saw that the mirena insertion date coincided with all my other unbearable issues (having gas, bloating and diarrhea with only a small bowel is murder since diarrhea is a fact of life already for those of us with no large bowel and it became extreme) and decided to have it removed before I went for some more invasive tests to rule out small bowel disorders. 1 day after removal and I felt better than I’ felt in months. The fatigue vanished and my body doesn’t ache anymore. I’m back to what is normal for my bowel and my acne is clearing up after a few days. The second day after removal I had such a heavy period that I was caught unprepared and ended up having to take my 87 year old father’s emergency Depends into the bathroom with me at a casino and put it on with 2 maxi pads on top of each other. I soaked through that in an hour but then boom it stopped. The next day hardly anything. I think the Minera is the culprit of all my issues. What else could I think. I’m just glad it’s out and if I have to deal with period problems that’s just peachy with me at least I’ll be awake, not in pain everywhere on my body and I won’t be in the bathroom 2 minutes into a meal and miss dinner. Forget Mirena folks it is not worth the loss of a normal feeling body.

  84. Kathlyn on February 17, 2013 at 10:25 AM

    Love this-I feel like I wrote it! Hope you’re feeling better still! I got my removed a week ago, looking forward to my body getting back to normal! Much <3 to you

  85. suze on February 18, 2013 at 2:57 AM

    Hi everyone im new to the site but wondered if anyone could give me some advice… Ive had the mirena coil in for about 4 years now and never had a problem… I had a regular light staining in place of a period every month but i havent had a “period” since december which is now 2 months?? Ive also been very tired lately and over the past few days ive been experiencing diahorrea in the morning and late at night?? I have a four year old son and when i was pregnant with him i was constantly vomiting which I am not suffering now but is there a chance i could still be pregnant?? Ive done a few home tests which have all been negative but im still worried as ive heard that the hormone in the mirena coil can affect the test results?? Im going out of my mind… has anyone got any advice?? xx

  86. Nico on February 19, 2013 at 2:49 PM

    I just took mine out after 3 years. I almost destroyed my family because of it. The bouts of depression got progressively worse over time. It started with 1 day before my “period” and 1 day after, and it got to at least 10 days out of the cycle of complete phycho behavior. I felt like something was taking over me and lived w/ the fear of the next bout. The doc said it will be about 3 months before my body completely clears, but at least I see a light at the end of the tunnel. I also had horrible acne (like I’ve never had in my life, entire “zip code-sized” zits). Abdominal pain during sex, back aches, tiredness, anxiety…the list goes on and on. I’m just frustrated I didn’t figure this out earlier…urgh.

  87. Stephanie on February 20, 2013 at 6:57 AM

    Here is my story. I got the mirena when my 2nd son was 4 months old. I had gained 60 lbs with him but was steadily losing it with only 10 lbs to go when I got the mirena. As soon as I got the mirena, I stopped losing weight without any changes in my eating habits. (With my first son, I gained 60 lbs as well and lost it all in 5 months with no problem). I went 2 months with the same 10 lbs to lose, but then the unthinkable happened… I started gaining, gaining, gaining, and in 2 more months gained 20 lbs! I NEVER thought it was bc of my mirena.

    I was 22 yrs old when I got the mirena. I have always been a happy person, i had never experienced depression or even knew what it felt like. I was just a fun, happy go lucky, always smiling, happy person! I was seriously such a great mom, my kids were my greatest joys, they were only 2 1/2 yrs and 4 months old but we were always out and about, staying active, going on adventures, living and loving life

    Fast forward 3 years, still had the mirena (up until yesterday), gained 98 lbs, YES I GAINED 98 FREAKING POUNDS IN 3 YEARS, suffered extreme migraines about twice a month (i never understood how a “migraine” differed from a “headache” until I had to experience it)

  88. Stephanie on February 20, 2013 at 7:56 AM

    (whoops accidentally submitted my post. Continuing…) I was not myself anymore. About a year into having my IUD, one morning I woke up and just felt BLAH. But it was worse than just blah, it was like blah blah BLAH. My 3 yr old was climbing all over me and I just wanted him to go, I wanted to be alone to sulk in my sorrow over you know, NOTHING. I literally stayed in bed all weekend long just crying. This lasted a few days and I was back to “normal” (my “normal” mirena self)… Ever since, this has been going on for the last 2 yrs, random bouts of depression lasting 2-6 days, about every other month.

    During the 3 years with mirena, on top of my extreme weight gain, migraines and depression bouts, I have been so irritable and moody, i have turned into a lazy and impatient mother, I dont have the energy or motivation to take my kids out anywhere, and I have recently quit my job as a nurse bc I just couldnt handle it anymore.

    I am NOT the same person I was 3 years ago, I dont even know what it feels like to feel good again. I was convinced it was my thyroid but after 3 tests in 3 yrs with normal results, I had come to realize this was just the “new” adult me. I came across some mirena side effects a couple months ago and I am so glad I finally know the truth about mirena! It has destroyed my and DH’s life for the past 3 yrs and after just getting it removed yesterday I cannot wait for things to fall back into place! And to lose this extra 108 lbs!! I will keep everyone posted on how things go once all these nasty mirena hormones are out of me. Thanks for letting me share my story (vent), it feels good to get it all out there!

  89. Kathy on February 20, 2013 at 4:48 PM

    You sound exactly like me!!! I still have my Mirena in and never thought it could be that. Time to think about a removal.

  90. Carrie on February 21, 2013 at 3:55 PM

    I’ve had mine in for nearly 5 years. Time to take it out and will discuss it with my doctor next week. Hopefully she can do it then. Problems I’ve had haven’t been too terrible, but I’ve noticed I have a LOT of hair growth on my butt crack (yuk!) and face (have to wax it off – thank God I’m a blonde) and the acne has been awful. Continuous bumps all over my face and throat and along my hair line. No products help. I’m 44 years old and NEVER had acne this bad. I’m only hoping it goes away and my skin can recover. Sex drive has dwindled. And during intercourse if he hits it just right…OWIE! Brought it up with my doctor several times, but she told me it was just because I was getting older. Hmmm. New doctor next week. Maybe we will get somewhere this time.

  91. Ashley on February 23, 2013 at 6:43 PM

    OMgoodness, yes yes yes! I had all of these symptoms, too! I had my Mirena for 3.5 years and had it removed this past Tuesday (2/19/13.)

    I feel so relieved to have it out, even though I’m experiencing the “Mirena Crash.” My hormones are so out of whack right now — it’s unbelievable. Thinking about it, it’s just NOT natural to have all of those added hormones in your body.

    So glad I’m not alone!

  92. Chey on February 24, 2013 at 8:14 AM

    This just made my jaw drop. I have had Mirena for 2 years now, and like you, I thought it was the greatest thing since sliced bread. I haven’t been able to lose ANY weight for the life of me, I’ve been having HORRIBLE headaches I never had before, I get terrible abdominal pains every few months where I end up going to the hospital thinking I have appendicitis or a ruptured cyst on my ovary, and I am ALWAYS TIRED! I cannot believe this I never ever thought it was attributed to the IUD. Time to schedule an OBGYN appontment…thank you!!!

  93. Stacy Renee on February 24, 2013 at 2:58 PM

    I have had the mirena since April 2009. The first three years I didn’t have much problems, it was nice not having a period. But ever since early 2012 I started experiencing all the symptoms of pms. Breast tenderness. Cramping, back pain. And I had a period come back. I started getting chronic migraines, fatigue, and bloatedness, not to mention mood swings and depression. Along with all this I started to get chronic urinary tract infections. I had one infection that took five rounds of antibiotics to get rid of. Ive had several infections thid year. And now, every time that time of month comes around I feel like I have an infection, get tested only to find out im infection free. But I still have genital pain and burning irritation, it affects my sex life, not to mention my libido feels lower. And ive been testef for everything. Stds, ive had bloodwork done, and eveything is normal. Ive seen several doctors they say everything is fine and to leave the mirena in. I havent changed anything about my diet, habits, routine, and ive been with the same man monogamously the past two years. The only thing that’s changed is my cycle and my hormones, I know this isnt normal. My gut says its the mirena.

    • Erin U on March 25, 2013 at 5:22 PM

      Don’t ignore your gut feeling. I had that gut feeling for a year and pushed it aside because doctors kept telling me it was not my IUD. I ended up having it removed just because I felt my body had been on hormones long enough (7+ years) and wanted to try something different. Then,I started following Kristi’s blog at http://www.mylifeaftermirena.blogspot.com and was FLOORED by the symptoms that women were describing. All the symptoms I had experienced were from the Mirena. You are not alone. I spent 9 months visiting doctors, having them tell me that nothing was wrong, all was normal. They had me on antibiotics for “sinus infection” for 8 months straight….I would develop yeast infections from the antibiotics and have to deal with that as well. They started putting me on steriods and anti-anxiety meds for all my symptoms (waking up from a dead sleep in panic attacks, among others). They kept running blood tests, urine tests, and even an MRI, all coming back “normal” and telling me nothing was wrong, but I KNEW that something was not right. Check out the website above.

  94. brittany on February 24, 2013 at 11:27 PM

    I have the same exact symptoms as you.

  95. helen on February 25, 2013 at 7:23 AM

    A month after my daughter was born in 1997 a nurse at my clinic fitted me with an IUD. I thought it was a copper coil as I never knew that a hormone could be put into a coil. About a year ater this I went to doctor with spotting in between periods and sent for an ultrasound which showed I did not have ovarian cancer etc.. The spotting went and then I returned with lumpy hardening in my breasts and went for a breast biopsy which showed I didn’t have breast cancer and the doc told me to take evening primrose. I did notice weight gain and acne but ignored this too. At a smear 7 yrs later with the same nurse I was told I should have had it removed at 5 yrs as it was a Mirena but she would not remove it for me. I went to the birth control clinic and found there was an impossible long waiting time and that if I was not seen would have to return next day which was impossible.
    I am a busy working mum and eventually went to my doc begging to have it removed a year or 2 later.
    The doc removed it but changed it to the copper iud on my computerised medical records.
    I am now recovering from a hysterectomy due to abnormally large fibroids which grew all over my uterus.
    Mirena is deadly poison and we are the guinea-pigs in a Bayer drug trial.

  96. allison on February 26, 2013 at 5:55 PM

    I’ve dontI have mirena in and its been almost two years in always sleepy and the other night be bad my SO were in doing it and after i didn’t ffeel right i went to the bathroom and felt Luke i was going to be sick. Started throwing up andgetting crying. I’ve been really nmoody get into grumpy moods fast. In scared that there might be something wrong. I sometimes get cramps also they feel like menstrual cramps. I called the e.r asking if they could take it out. I do want it out but i don’t want another baby fora while. I don’t have health insurance at the moment. Please i just want advice no judging me please

  97. fayren poole on March 1, 2013 at 10:40 AM

    hi i have read ur storie an it sounds similer too what i am going through with my marina…on monday the 4th i get it removed..hopefully…because my dr said it is pushed up a bit or something an that she can’t take it out an now i gotta go see a specialist….i have had my marina in for 3yrs now…possibly 3 and a half yrs, an i also go through fatiges a lot headaches abdominal pain mood swings an at times feel like i am prego..lol…so i have been trying too get it out for awhile now an all the responses i got fr 3 drs was give it time, give it time an the most recent one is why are u blaming the iud…..when i gave her all my resons too why i want it out..i luv too work out but when i get right into it…it feels like my whole abdominal is twisting an i gotta stop an try an breath an then it feels like it flips or something then it goes away an then i can’t work out for awhile cuz it’ll start happeing again an then my stomach will become verrry sore and also i 2 have been bloated which seems like forever…so those are my issues with the marina-iud i have an i am soo hopeing that they can take it out….but i am happy u got better after ur removel of it an i hope i too can start feeling like me again…lol…

    • fayren poole on March 5, 2013 at 9:49 AM

      welp an update on my iud removel…it didn’t get removed they can’t find it an my last ultra sound said it was in there….soo now i gotta get another ultra sound done too see if its deeper in the uterus 2 were they gotta put my under 2 get it…an if it ain’t there then i gotta go 4 x-rays 2 see if its floating around in my abdominal…apperently that can happen..:/….i am soo pissed off and from tryin 2 get it out yesterday my lower half feels like its been through a grinder..:/….

  98. Maria on March 1, 2013 at 12:27 PM

    I’ve been wanting to get pregnant and I had the iud removed after 4 1/2 years… All I’ve been getting is a weird period that is black discharge for the past 5 periods.. I’m like WTF !!!!! No luck on getting pregnant either.. Some one please help. I’m 25 and I have had a baby already the I five years old that continues to ask for a baby brother… And now I’m seeing all these lawsuits against.. I think will I ever have an other baby again, did I have Mirena for to long that it has F’d up my woman hood.

  99. Browneyedgurl on March 4, 2013 at 8:30 PM

    I had an excellent experience with my first mirena- no weight gain- no headaches- no mood swings (that were obvious.)
    I thought after the birth Of my second daughter another mirena would be a no-brainer. This second time around has not been pleasurable. I don’t understand how the first time and this second time could be so different. I may resort back to the pull out method… Jk.

    • Erin U on March 25, 2013 at 5:14 PM

      I had the same experience. Maybe manufacturing is different? I had my first Mirena in 2005 without any “problems” although I did develop cysts (which I knew could happen). My second Mirena was placed in 2010 and it was hell from day one. I had it removed after a year. Worst year of my life. I didn’t put it together either because 1) my OB insisted all my symptoms were not IUD related and I trusted her, and 2) I never experienced this with my first Mirena. I was shocked to find so many women suffering from crazy side effects after beginning research.

  100. CW on March 5, 2013 at 11:57 PM

    Thanks for this. Just got mine removed two days ago, because I am too young to feel this awful. My doctor was pretty adamant that I should keep it in, since I wasn’t planning on having another child right away. She insisted that Mirena was perfectly safe and should not have had those effects on me. I am wondering why doctors are pushing it so hard, and why they give women a hard time when they want it removed? A little disturbing.

  101. Jodi on March 6, 2013 at 5:34 AM

    My GYN wants to insert a Mirena IUD for the purpose of rebooting my period which I haven’t had in 4 years. It seems I am not in menopause and he wants to use the Mirena for progesterone treatments. After reading Natasha’s story I really don’t want to do this. I have never used birth control and then wound up doing two cycles of IVF at 37 and 38 resulting in the birth of my first son in 1999 and then naturally conceived and gave birth to my second son in 2002. Now there is a concern that I could end up with Endometrial Cancer and the Progesterone is supposed to prevent it. I think it’s time at nearly 52 to remove the uterus and therefore all risks. I also just had 3 polyps removed from my colon! Whoopy!

  102. Stephanie on March 6, 2013 at 10:04 PM

    An update – I had my Mirena removed 2 weeks and 1 day ago… I have had a headache every day since, but I know thats just part of my body withdrawing from the hormones, so Im not too torn up about it. No exageration, 2 days after I got it removed i woke up and saw a noticable difference in my stomach, the bloating i didnt even know i had (probably bc i was so used to it) had completely gone away. I got on the scale – 2 pounds lighter! By the end of the first week i was 5 pounds lighter and this was with no change in my eating/diet habits. I was getting nervous though bc i was still feeling extremely tired all the time, moody and pretty much the same. I was wondering if I would ever get “me” back again. Well the past 3 days I have suddenly felt great, i just wake up in a good mood, im a better mom, i have gotten back in touch with friends whom i have been “too busy” for (too tired and didnt even care). I honestly feel like im getting myself back. As of today Ive lost 9 pounds so far (99 more to go!) and Im happy again. Maybe its too soon to tell since its only been 3 days of being myself, but i truly feel im on the road to recovery.

    Also, when i got it removed the dr had to make a “puncture wound” (whatever that is) in my cervix bc he couldnt see or find it. By cutting my cervix he was able to find it and get it out but it caused alot of bleeding. I bled for the rest of the day and ever since ive had a few incidents of spotting when i wipe, but nothing bad at all. I have read of some people bleeding for days or even weeks after getting it removed but ive had none of that. Besides the daily headaches, so far so good!!

  103. Carolyn on March 8, 2013 at 9:58 PM

    After the birth of my first child, my doctor suggested Mirena until I was ready to have another. It seemed like a wonderful solution. The problems started almost immediately for me. I could feel it inside me and found this sensation annoying. Then the migraines, fatigue, skin sensitivity, loss of libido and mood swings started. I recorded my migraines and they were happening almost weekly. It certainly made for long and challenging days taking care of an infant with regularly occurring migraines! This continued for a few months. My doctor sent me for a catscan and some blood tests but nothing was found. I started feeling like my personality was changing and powerless to do anything about it. I suspected the IUD but my doctor said it had such low doses of hormones that it was not likely. Finally, I had it removed a little less than a year after I had it inserted, despite my doctor insisting I was wrong. My gut told me I was right. I started researching and finding similar posts from other Mirena sufferers. I felt let down by my doctor who, up until that point had been a pretty good doctor willing to listen to my opinion. This was 6 years ago and the migraines are gone but other aspects have lingered although not to the same degree as when I had the IUD. I continue to experience the extreme fatigue, loss of libido, nervousness…in a way that I never did prior to Mirena…but thankfully not to the degree that I did when using Mirena. I was so vibrant and healthy before Mirena but I just can’t seem to get back to that state. It pisses me off! I’m so grateful for sites like this that allow us to share our experiences. Doctors don’t always know best.

  104. Kim on March 9, 2013 at 2:56 AM

    I got my IUD Mirena a month after having my first baby in 2011. It took me two years to finally question what was going on with me. I guess you can say I reached my breaking point. I was eating clean and running/working out every morning and still could only lose about 5-8 pounds, then, I always gained it back. Other symptoms I had was anxiety, depression, acne, bloating, no sex drive, exhaustion.. I pretty much had it all. After the first year of having it in, my daughter’s father and I decided to seperate because we just weren’t getting along at all. I can’t say that it was the IUD’s fault, but I can definitely say that being exhausted, constantly emotional, and not having any sex drive sure added to the mix of everything else going on. He said to me “You aren’t the same person I used to know.” I’m not blaming the Mirena on my break up at all, because even with it taken out, I wouldn’t go back to him. So, the main reason I decided to take it out was that although I was at my highest point of success in my entire life (about to graduate college, daughter is perfectly healthy and started pre-school, having an awesome job, surrounding myself around good people) I found it really hard to get out of bed and be active and social. (I blamed it on starting to work nights) I had been ignorning my friends for a while, even after I knew I had sufficiant amount of sleep, I just wanted to lay in bed. My daughter was suffering from it all and once that registered in my head, I said to myself what the hell am I doing wrong? I have to admit, the only reason I ran into the blogs about bad experiences with Mirena was because I googled, “Will I lose weight if I take out my Mirena?” I was wondering why I couldn’t lose these last 15 lbs from my pregnancy that was now (2+ years later). I remembered my doctor saying to watch my eating because the IUD had something in it that basically wouldn’t let me know that I was full, so I would most likely over eat. I remembered this and I thought, may be if I take it out, I’ll be able to finally lose this weight. I wasn’t being sexually active anyway, so I thought let’s see if anyone who took it out lost weight. Once I discovered the blogs, everything started to make sense and I started to make connections to my own life. I was so happy to finally say to myself, “It isn’t your fault.” I immidiately made an appointment to take it out and I also wanted to schedule a paps. The receptionist said I could only do one or the other and she said to me, “I’ll schedule the IUD removal first, I’m sure you want that done ASAP.” Sort of a clue that a lot of women have been asking to take it out, right? So finally the day comes and I’m laying there waiting for it to be taken out. The feeling that I got was immediate relief. The relief felt the same as if I was wearing super tight pants and I was finally able to unbutton that button. I mean, I felt SO relieved. I have no bleeding yet (got it taken out 2 days ago), not even a drop yet. (Crossing my fingers my first period won’t be horrible) I don’t have any bloating. After getting normal sleep, I felt the urge to get up and not lay in bed like I used to. I got a lot of stuff done so I feel my energy coming back. I literally saw my face clear up within the first day. I didn’t have really bad acne, but I was breaking out on the outter edges of my face. I washed my face this morning and I saw my face glowing, for the first time in SO long. I came to work today, and my co worker who last saw me when I had the Mirena asked me, “There is something different about you, did you lose weight?” No joke, I am not exagerrating I FEEL different! It’s absolutely the best I’ve felt in over 2 years. I recommend anyone who is experiencing any of the side effects to try to take it out. I can’t wait to see where I’m at with this new change in about a month. I’ll try to follow up again :)

  105. ltc on March 9, 2013 at 5:44 AM

    I have been wondering why my hair has been thinning. And I never had cystic acne until the mirena. I am appalled n upset. I have had it for four years. My hair is already really thick. But my stylist and I have noticed my part is more prevalent. I also had a friend where it got embedded in her uterus. Right now mirena is being sued. The crazy thing is hair loss was not explained by the dr. The pamphlet i received. And itz listed as an uncommon side effect. Well i dont think 1 out of every 5 women is uncommon. Shame on the company 4 takin advantage of us women. I will be getting mine removed next week. Thank you so much for your post. I already sent the company a not so nice e-mail. Very ignorant company for not warning. And also if my hair loss is permanent and i find out is embedded in my uterus. I will be filing a lawsuit as well. For any women who have had complications from this i encourage you to exercise your rights and get help. Because if i would have known about hair loss even possibly being a factor i definitely would not have got it.

  106. kay on March 9, 2013 at 3:30 PM

    My mirena was removed yesterday after 3 months shy of the full 5 years. I noticed several of these symptoms and blamed most of it to body changes after having a child. Never would I have thought the iud had anything to do with it. Thank you for sharing this with people and helping them.understand the real risks involved here.

  107. Kirsteb on March 10, 2013 at 1:32 AM

    After reading this I realize I have a big chunk of those symptoms! I am having severe cramps on a regular basis and when I do decide to have sex I bleed for 3 days after. Now if I have an orgasm that is another story, I get such bad cramps that I question even having one and I bleed for at least 5 days. It feels like the contraction of my orgasm is squeezing my Iud through my stomach. And the fatigue is actually making sense now. I had more energy when pregnant! Thank you so much for posting this information it has been enlightening!

  108. Samantha Crane on March 10, 2013 at 5:20 AM

    I have not had the Merina for very long, so am still “getting used” to is as they say. My question is this how quickly has anyone had the “bad tempered – mood” Side effect?
    I have felt sad / misery like never before in the last few days, like never before in my life. My poor family are feeling the brunt of this and I know I need to do something about it.
    Any advice?
    Thanks
    Sam

  109. Janine Bartlett on March 11, 2013 at 8:06 PM

    I am so glad that I am not the only experiencing some terrible side effects!! I have only had my Merina in for 5 weeks but my biggest concern is the sporadic and excruiacting lower abdominal pain I am getting. The first time it happened, my partner wanted to take me to emergency as it was so severe. Without warning the pain starts and I am now having to carry pain relief and anti-inflammatories with me everywhere I go.

    I also have no motivation or drive to do much, I am feeling extremely tired and have become very snappy and irritable, not to mention the extreme sweating, particularly at night. I am peri-menopausal and fobbed the sweating down to this, but since having the Merina, my nights sweats have become so much worse than before. I have not felt 100% since having this thing inserted.

    NB – IF YOU HAVN’T HAD CHILDREN OR A NATURAL BIRTH YOU WILL NEED SOME HEAVY DUTY PAIN MEDICATION TO HAVE THE MERINA INSERTED. I went to to a Womens Health Clinic and got a second opinion from another female doctor and neither mentioned the labour type pain you will experience. Only after 45 mins of enduring this pain and the Merina inserted, the doctor said I now know what it is like to have contractions and that if they told women it would hurt this much, they wouldn’t go ahead with it. There is a big difference between “some discomfort” and excuciating pain!

    I have an appointment with the womens health centre next week to discuss my side effects. At this point I just want to have the damn thing removed.

    Cheers
    Janine

    • Julie on March 14, 2013 at 4:56 AM

      try and take slow release anti inflammatories when you need them for the next two months. i also had the pain, sweating, pain in my lower back and headaches and generally just feeling weird, but after two months of soldiering on, i feel normal and no period! my only gripe is my hair falling out.

    • Erin U on March 25, 2013 at 5:07 PM

      Actually, from my own experience, the excruciating, labor like pain you experienced after insertion is NOT due to NOT having children or natural birth. I had two children, two natural births, and then had Mirena. With my first Mirena insertion, it was “pain-free” (I had that Mirena for a full five years). Second time I had a Mirena inserted, it was as you described. I have been through labor (twice) and that pain was WORSE than my labor, the back pain was terrible. It has NOTHING to do with whether you have had children or vaginal births before or not. In my case, when I experienced this side effect (with my second Mirena)I developed a whole list of new side effects (that I never had with the first one). Some of the pain may be caused by cysts (I developed cysts on my ovaries while on Mirena, which is common). I believe my second Mirena malfunctioned because I NEVER experienced the side effects on the first that I did on the second.

  110. Kate s on March 12, 2013 at 2:44 PM

    Exhaustion, no menstral cycle, weight gain, depression, moodiness, loss of libido and chest pain/ with rapid heart rate. For three years until I finally decided to have mirena removed. I’m still tired alot, and have yet to loose my weight, but my heart rate has unexplainable become normal.

  111. kimberly on March 12, 2013 at 8:40 PM

    WOW! I have had it now for 2 yrs now and I have always had the cramping but now I am having the depression,night sweats,mood swings,headaches,low sex drive,pain during sex,tired all the time, and now a new symptom. I am having pain in my lower tailbone. I don’t know if this is a side effect but I haven’t fallen or anything to hurt myself. I have decided to have it removed. I’m glad I found this site. My friend has this too but she is having no problems. I however can not wait to remove it…. I’m hoping to feel normal again soon.

  112. Sharing - The Stay At Home Feminist on March 13, 2013 at 3:25 PM

    [...] adult life and then I had babies. I refuse to go back on any kind of hormonal birth control after my IUD experience and so here I am. Forty-one years old and expereincing real PMS for the first time in my life. Or [...]

  113. Julie on March 14, 2013 at 4:52 AM

    i had my mirena inserted under anaesthetic during a d&c. my only reason was for very heavy painful periods. the first two months were not good, bloating, tenderness, pain, headaches, lower back ache. But now onto month three and all of that is gone… with only one weird thing thats started and wont go away… very sensitive sore nipples and my hair is falling out. i have a huge mane of thick blonde hair that everyone loves. now i am leaving hairs everywhere i go.. my fingers are full of hair when i shower. its excessive.. no bald patches that i can see just moulting like a cat… crazy.. i hope it goes away as i dont think my body can grow the hair as fast as im losing it.

  114. dorothy on March 14, 2013 at 11:53 PM

    thank you for sharing! i have been having these weird symptoms that made me think i was crazy. my husband was got for a year two months after my daughter was born so i never noticed my decreased sex drive. now that he is home he keeps telling me that i am not attracted to him anymore because i don’t want to have sex anymore and i was thinking it to because i don’t even want him to touch me sexually anymore. i have been also battling a really bad case of acne and it has been making me depressed. i will be having a discussion with my husband and find out if we should get it removed and get me on a different one that will prevent pregnancy and not make me differently.

  115. jess on March 17, 2013 at 5:37 AM

    i had the marina inserted 6 month ago. i have been really depressed, havent been attracted to my partner ever since. horrible pains and irregular periods. extreme period pains. headaches. weight gain and acne.
    i was told by friend and family it’s normal as my hormones are just changing and all that. never thought about the merina bring the cause.
    looks llike i will be visiting the doctor
    thank you for posting this info has been really helpful

  116. sara on March 17, 2013 at 5:56 PM

    I had the mirena inserted 6 weeks after i had my daughter in 2008, i was told i might gain a few pounds and risk getting a bit of acne. For the first 2 years it was great,even periods stopped, i did gain weight and i also got the acne, then things started to change around the 3 1/2 year mark, i developed a itchy rash on the palm of my hands and stomach so i went to gp’s not thinking this was anything to do with my coil, left the doctors still none the wiser,over time i was also diagnosed with ibs, given sleeping pills,constant thrush, every now and again my bones would crack ( like when you do your knuckles ) but in my legs, arms, chest everywhere, my hair started to fall out when i washed it, then i had my first ever panic attack- no reason at all, i felt i was going crazy.. i was given anti anxity tablets.. i took one as told by my gp when i got home, within 15mins of having it i was in a massive state of panic, vomiting, and shouting at my partner to call an ambulance.. they came and took me to hospital..i was placed on a ecg as my heart was beating far to fast.. i told them this is not me i have a mirena coil & i want it out, they would not listen, still to this day they don’t know why i reacted the way i did from 1 of them tablets.. (i know my own body & this mirena had changed my body) they let me go home still with the mirena in place, i went back to my gp’s i told them i wanted it removed, i was told all these things i had developed were nothing to do with the mirena..i left with it still in place, over time the anxitey got alot worst, & depression set in, still they would not take it out, just wanted to keep pushing different drugs on me. I got that desperate that i removed it my self in the end..( you should not do this but i was desperate & kinda losing my mind at this point.. no intrest in my kids or family or anything, it changed me as a person ) i just wanted my body & life back to the way it was. It has now been 7 months with that evil thing out. I no longer have ibs, the rash never came back, the acne has gone completely, i have already dropped 2 dress sizes without effort, i still suffer anxitey every time of the month & my depression is going, my bones still crack now and again. But still the gp will not except that the mirena caused all these things. Im just glad i listened to my own body and not the gp who would still have me on god knows what drugs that i don’t even need anymore. I wish i never had it in the first place, i am still having reactions to things i never would off like bubble baths, and washing powders, and suffering the anxitey ( but not panic attacks no more thank god ) i just hope it continues to get less every month… time will tell. But the mirena has changed me. I don’t trust gp’s anymore for 1 lol. My advise for you ladies is you know your bodies better than anyone, don’t do what i did & accept your problems arn’t related because your told that.

  117. kassie on March 18, 2013 at 1:37 PM

    I had a Mirena inserted 11 months after my first son, who is now 5. I never had any major issues with it, except the occasional ovarian cyst and abdominal pain around the time i was supposed to start my menstrual cycle (which had ceased completely after iud insertion) I had it from september 2008 to october 2011. i became pregnant shortly after having it removed, which was planned. After having my second son in Oct. 2012 i decided to have a mirena inserted again on december 4 2012. so on december 16 2012, i woke up completely broke out in hives from head to toe; my lips were about triple the size they normally are and my eyes and bridge of my nose was swole as well. ever since 12-16-12 i wake up broke out in hives with the occasional facial swelling. I went to my primary doctor to see what he could do…he told me to take zantac 150 because it has H2 blockers which are supposed to help block antihistamine..this did not help. i have tried every OTC allergy medication and nothing helps. i have not changed anything that i use, for instance detergent, shampoo, make up, etc. it has all been the same for years. (i seem to have also lost my sex drive since this second mirena has been inserted) So i have came to the conclusion after reading many stories and similar issues of other women to have the mirena removed tomorrow morning. hopefully this will cure everything that has went wrong since insertion.

  118. Racheal on March 18, 2013 at 8:43 PM

    Ok so seriously this sounds exactly like me (minus the pain)!!!! My husband finally sat me down this morning and told me that I had to go get it removed because he couldn’t sit by and do/say nothing. I’ve had it only a year and a bit, and despite losing ALL but 5 pounds of my baby weight by the time my second was 4 months ( I have two children 19 months appart) within 6 months of having my Mirena in I had gained something close to 15 lbs. A year later I am the heaviest I have ever been!!! I weight the same now as I did at 9 months pregnant with my kids!! A whopping 175lbs on my 5 ft 1 frame, despite eating healthier and being more active I have steadily gained weight. I am on my third round of suspected mild depression, my libido is now non-existant, my moods are like a roller coaster. I can’t wait to get mine removed and hopefully that will resolve some if not most of the issues. Although if it wasnt for my husband stumbling on this post while doing some more research to convince me that my birth control could be the source of all these issues I would probably never have thought of it. It is so good to know that I am not alone!!!!!

    • sdcoop on March 20, 2013 at 2:14 PM

      I only like 10 weeks and I will have made it to the 5 year mark of my Mirena. I have to say except for not being able to get any weight off no matter how hard I tried or how little I ate, the Mirena was great for the first 3.5 years. Then I started having headaches and joint pain. I then start having these extreme headaches on my left side of my head that would sometimes cause me to loose my vision when I would turn my head at about the 4 year mark. I had a headache like this every day for 5 months with the exception of 3 days that entire time. It was terrible. I had test ran and blood drawn and everything came back clean. This type of headache finally went away, but I am still having a migraine one to three times every week and I now have constant joint pain. I wake up in the morning with joint pain so severe I can hardly move, and I am really nauseated. I do believe that it is due to my Mirena. I called to get it removed, but my doctor is booked until the end of May. I have 9 more weeks to wait. I am literally counting down the days. I for one hope the joint pain goes down, the headaches and heartburn go away, and I can finally loose weight. I am at the heaviest that I have ever been and I hate it. I have enjoyed the no periods over the last 5 years and not having to worry about getting pregnant(both of my girls were conceived while taking BC pills and taking them correctly), but I never want another Mirena.

  119. Kathskidz on March 19, 2013 at 7:39 AM

    I have had mine fitted for 2 yrs , I was. 49 yrs old in very good health & very fit. The first 6 months seemed ok, menses dissapeared and I felt ok, then gradual weight gain I gained 15lbs and went up 2 sizes .terrible bloating dome days i looked 6 months pregnant!! I had no changes in my diet or exercise plan and I couldn’t move it . I felt tired , irritable off sex completely .i had aches in my hips , arms & legs developed plantar fasciitis in my foot . The thing that had really freaked me out Is the pins & needles in my legs feet , fingers, arms , scalp , cheeks , lips & tongue very scary !! these are usually when I settle to sleep and i had restless leg syndrome too Along with insomnia, developed anxiety and panic attacks on occasions the list goes on . I had it fitted as my periods were heavy and had some fibroids . I thought I was really sick became very paranoid about my health. Spoke to my GP who said I was prob menopausal !! Ok sounds like Iike I could be poor me I thought I’ve got all 34 symptoms! !!! Blood test came back not even close to menopause !! GP said it was no way merena coil . Did a full blood count , kidney & liver tests , thyroid , calcium , anaemia tests @ diabetes etc . All came back normal ? ! So I insisted I had it removed and after 2 yrs its out 3 weeks ago . The procedure to remove if was difficult it took 40 mins couldn’t find strings if had gone further into my womb !! Eventually it was out .i bled a little and the pressure was gone off my abdomen so odd! I slept well first time in months . Next 3 days a period arrived very fresh red blood instead of gundge (sorry !! ) I bled for 8 days a few clots not much pain . The thing that hit me was the Progesterone Crash woman had talked about OMG !!! I felt as though I had flu and ached too extremely week awful thus lasted 4 days then I began to feel normal , this lasted about 5 days then I had panic attack s during the night it would start with pins&neddles and neck pain. Then ringing in my ears and congestion of my ears . I went to doc and was given antibiotics she wasn’t sure as My ears were clear!’ Despite this my bloating has settled and I’ve lost 8lbs & dropped a dress size !! No difference in diet or exercise !! I have also began cutting back on tea & coffee,took advice from a herbalist who says she head the merena coil can make our bodies oestrogen dominant !!! So I’ve been taking flaxseed caps & B6 which help to maintain hormone balance also a good multivitamin with zinc & Selenium combined. And aloe Vera colon cleanse tabs one every 2 days apparently hormones store in the bowel !! The toxic effects can take up to a year to complete clear you’re system but detoxing plenty of water and multi Vits can really help. Please note If you are on prescribe meds from doctor you need to take advice before taking herbal supplements .Today is 21 days post merina and each day is getting better i sleep 7/8 hours each night fatigue is almost gone weight and bloating is on the way down and apart from some tingling here & there I feel more like I did before I had it fitted . I am waiting now for my periods to return to normal or not?? This depends on wether the merina has sent me into menopause I will keep you posted bless .

  120. Eva on March 19, 2013 at 10:26 AM

    OMG! Thank you for this site. I had my IUD put in February 2012. It has just been a nightmare. I am bloated all the time, I am cramping literally like everyday, I get these migranes that freaks me out. I have bacterial vaginosis like every 2 secs and I am tired of taking antibiotics. I have also had cysts which disappeared after a while….so its been one thing after the other. I feel like I don’t know my body anymore and I just want control of it. I am getting it taken out in 2 days. I am scared but it cannot be worse than what I have been going through. I will definitely be embracing birth control pills!

  121. Janice on March 21, 2013 at 12:08 PM

    I had Mirena put in 5 years ago with no issues whatsoever. I just had it replaced this week and Ive been feeling heartburn and bloated since. At first I didnt think it was the IUD since I never had issues before. Im glad I found this blog. Im waiting for the doctor to call me back. I might go back to the copper IUD. I liked not having periods but I dont think I can take this feeling much longer. I feel as if I was pregnant. Not good.

  122. Erin U on March 21, 2013 at 2:28 PM

    I know that you wrote this post about a year ago but still wanted to comment. I had Mirena for five years without “any problems” that I was aware of at the time (I believe I just downplayed any symptoms I had). When the Dr. took it out after 5 years and placed a new one, though, I was told that I had several cysts on my ovaries (huh…I thought…must be that pricking/cramping feeling I always get on my left side). Ten minutes after insertion, I was completely and almost barely able to walk. I was in bed for 12 hours with the most intense back pain and abdominal pain that I felt like I was in labor. My doctor told me this would “pass” after a few days. What? I never had this side effect with my first Mirena. Within a few weeks I was waking up from a dead sleep in panic attacks, barely able to catch my breath, almost hyperventilating. I felt like I was going to pass out and throw up at the same time. My extremities were tingling (hands, feet, and my whole face/scalp) and my legs and arms would shake. I have always had lower blood pressure but never a symptom even close to this. I started developing insomnia because I was so afraid to fall asleep and wake up in this state. I visited the doctor several times over the next 8 months. My OB told me right away it was NOT the mirena and to see my primary doctor. They treated me for a sinus infection (due to the tingling in my face and my history of sinus infections). The symptoms never subsided. In fact, I started developing this irrational fear of being left alone. I was afraid if I was alone with my kids I would pass out and they wouldn’t know what to do (they were 4 and 6 at the time). I became so depressed I remember telling my husband he needed to fight for me, because I was scared that I was literally going to go crazy or I was going to die. I have zero…ZERO…history of depression or mental health issues. Which is also why it scared me so much. I thought, “What is happening to me? How can I go from being completely normal to afraid to be left alone?” The doctors kept me on antibiotics for 8 months…and eventually started treating me for anxiety with Xanax and ran the whole list of blood tests and urine tests. I was referred to a ENT (Ear/Nose/Throat specialist) who prescribed a month long antibiotic, steroids (she thought I had inflammation in my sinuses which was causing me to wake up panicking and tingling), and an MRI. The MRI showed nothing at all. No sinus infection. At this point I was just ready to be off the Mirena anyway, so a year after insertion I had it removed. Within a month my period came back and WHAM. Post Mirena crash. My hormones were all over the place. I started doing research on side effects to the Mirena being removed and was floored by all the testimonials of women who had the same panic attacks, doctors treating them with depression and anxiety meds, etc. I had thought the whole time I was dealing with SINUS issues. All along, I truly believe I was having an allergic reaction to the Mirena, because more and more women are reporting high levels of silicone in their body…SILICONE TOXICITY….with Mirena devices that malfunction. I wasn’t crazy. My body was literally shutting down. This silicone toxicity causes auto immune and adrenal responses….the exact same symptoms I was suffering with. And yet I was being treated as if I was a hypochondriac. And everytime I would ask if it could be the IUD, the doctors would brush past it as if it wasn’t even a consideration.

    All that to say, I hate this device with everything in me. It was hailed to me as a great form of birth control. I was told that the risks were expulsion or perforation, but that those risks were very minimal. (Not that I’m discounting those side effects. Many women have suffered from them. I’m thankful I was not one of them.) That was IT when I was told about side effects or how the Mirena worked. After getting my second Mirena removed and putting two and two together, my OB would not touch me with a ten foot pole. I am not a demanding patient at all…I would call in explaining my symptoms, expecting my doctor to help me figure it out and be an advocate. It is sad that doctors do not know what this drug is doing to their patients that they WORK for, or they just refuse to see what is right in front of them. Likewise, at the time of my Mirena insertions (2005 and again in 2010)there was barely even a list of side effects on Mirena’s website or elsewhere. I had a very difficult time finding any information on it at all, which is why I went by the advice of my doctor and trusted their “expert/professional” opinion. 2011 was absolute hell for me. All because of Mirena.

  123. Anonymous on March 21, 2013 at 7:47 PM

    I am approaching my 1 month anniversary since the Merina IUD has been inserted. In the last 2 weeks I have had extreme knee joint discomfort. I am 32 years old, but feel like an elderly person, perhaps with a case of arthritis. While I’m disappointed to hear that, for the 3rd time now, I am experiencing a birth control side effect that is unbearable to live with, I am happy to hear I am not alone in experiencing these symptoms. I plan to call my OB-GYN first thing tomorrow morning to get the IUD removed. Not for me. I echo what the other women have posted, you know your body better than anyone else. Do not ignore the signs. Be blessed ladies.

  124. Sophie on March 22, 2013 at 9:12 AM

    I have the marina, and from reading this i realise why these things are happening to me. No aunt flo, no libido, abdominal pains, tiredness. But luckily for of i lost weight not gained. Even still in having it taken out.

  125. Charisma on March 24, 2013 at 1:38 AM

    Thank you in a million and 1 ways for posting this. I never looked up or did research on this and I wish I had because im having all but two of the exact same symptoms you did and I can actually say its got me feeling like im dying…getting it taken out on Monday and thank God because I cant stand not being like me and not being able to get out of bed and not go a day with out a migraine so bad…Listen to this woman do not use the mirena its not so innocent and simple as they make it sound@@@

  126. Alana on March 25, 2013 at 12:14 PM

    Thanks for this article! I myself live a (mostly) natural life and hate the idea of ingesting drugs for my health in the name of medicine. I recently figured out that my daily contraceptive was the cause off my twice weekly migraines, horrible skin problems and constant mood swings. I have an appointment to get mirena in a week or so because it doesn’t have the estrogen I believe to be causing these problems, but after reading this article I’ll make sure to be mindful of the effects I experience on mirena as well!

  127. bon on March 25, 2013 at 9:36 PM

    I am 28yrs old , no children . (but have raised my goddaughter and my niece) and well have a lot of reproductive issues and issues with bc all of them from pill to depo to the ring, just bad juju…So my Dr. recommended the Mirana IUD after an unexpected miscarriage in 09. I just got it removed today and honestly havent felt better in years. I was actually extremely nervous to have it removd. The dr cut the strings off like an idiot, it became “lost” as they put it… i mean how scary right? However, I am thankful that my dr got it out without surgery and am actually looking forward to having my first menstruation in 4yrs…lmbo

  128. akb on March 26, 2013 at 4:50 PM

    I got my Mirena in June of 2011 and have really been happy with it. However, since last October, I have been experiencing chest pain and discomfort that has remained undiagnosed through a barrage of tests (thyroid, EKG, endoscopy, echocardiogram, etc.). More recently, as in the past two or so months, I can add severe bloating, anxiety and moodiness to my list of symptoms. Can side effects of Mirena be this delayed?
    To further complicate things, I weaned off of Lexapro between November and February. While I don’t know if either Lexapro or Mirena are causing my issues, I am curious to know if anyone has any thoughts or experience on how Mirena may interact with antidepressants? Is it possible that Lexapro could mask some side effects of Mirena that are now rearing up since I am Lexapro free?

  129. Mist on March 26, 2013 at 8:26 PM

    I’ve read some of the comments posted on here and wow! I’m sorry for the people who are having difficulties with their IUD.
    I got mine after my 4 kid. I wanted to get my tubes tied but I was advised against it and suggested trying Mirena instead.
    I wasn’t sold on it at first as I’ve had prevous IUD’s and have gotten pregnant while having them, but I decided to give Mirena a try.
    First I was a little scared about being intimate without other means of protection, after 4 kids of my own I wasn’t looking for a fifth. But its been 4 year now and I’m still standing at only 4 kids.
    I haven’t experienced any of the indicated side effects except that I haven’t had a period or any spotting after the first month I had my Mirena IUD inserted and I’m not complaining about that.
    My experience with Mirena has been an extremely good one.
    I’ve recommended this product to several of my friends and they have had about the same experience as I have.
    I would definitely keep using Mirena in the future.

  130. Pissed off! on March 28, 2013 at 1:12 AM

    I weigh 100 lbs and have been bleeding for the 3 years that its been that I had it. I went into my stomach I had a surgery to get it removed. I have regretted getting that iud everyday of my life. It has made me miserable I’m barley able to hold my child or even play with him with out getting dizzy or sick and still vomit becuz of it f the merina!

  131. not for me on March 28, 2013 at 6:04 PM

    I had my mirina put in March 2010 and finally had it removed in March 2013 and can not be happier. If you named a side effect i probably had it, no word of a lie, though at first i thought it was all in my head, because several of my friends have it and were having no problems actually were loving it. So it does just go to show that it works, it just doesn’t work for everyone.
    Since having it removed my periods are back to being 2 days of very lite bleeding and no pain, not 6 days of hell thinking you are going to need a blood transfusion, have not had a headache or migraine in 3 weeks, where before i was having at least 2-3 a week. Joint pain is gone. Feeling tired all the time is gone. Hair loss has improved greatly, went from losing handfuls of hair daily to now only a few strands daily.
    At one point i was even tested for thyroid and ovarian cancer because we couldn’t figure out why all these things were happening to me, I was too young for menopause, so after the last round of test my Dr asked me was there something i changed in the last few years i looked at him and said my birth control, that same day i had it removed best choice i ever made.

  132. [...] A blog post about side effects of the Mirena IUD by Natural Urban Mama a year ago spawns a discussion thread of nearly 200 comments. [...]

  133. [...] Read full article… [...]

  134. deidra on March 30, 2013 at 1:06 PM

    MY VAG RRRRRRRREEEEEEEEEEEEEEEEKKED DONT EVERRRRRRRRRR GET THE IUD!!! TAKE IT OUT OOOOMMMG HELLO PEOPLE ITS THE DEVIL

  135. crystal on March 30, 2013 at 4:53 PM

    This post was super helpful! Thank you!
    I have had my mirena for a year now and my “spotting” episodes are random lasting anywhere between 3 days to 2 weeks I also have had a lot of hair loss (not any bald spots as of yet) and just last month and now this month I have had breast tenderness and my doctor is making me go for my first mammogram and I’m 29 going to be 30 in 2 weeks I have also experience abdominal craimping and burning feeling in my stomach, headaches, fatigue, lost libido completely, and extremely moody. I am definitely removing this demon device to see if my symptoms clear up! Once again SO GREATFUL I SAW THIS POST AND OTHER WOMAN EXPERIENCING THE SAME THINGS

    • a on March 31, 2013 at 5:57 AM

      I am on my 2nd Mirena and have to wear a liner every day from the discharge. I love not having a period and not having to take a pill every day but I am looking into other methods. I had spotting when I had my first Mirena but with the 2nd I didn’t have any at all. I have thought about switching to the copper IUD but would rather stay without a cycle!

  136. Holly on April 4, 2013 at 5:39 AM

    In my forthcoming book ‘Sweetening the Pill or How We Got Hooked on Hormonal Birth Control’ I discuss the Mirena’s side effects and quote a brilliant book about the evolution of the IUD titled ‘The Biopolitics of the IUD.’ My book is based on my blog:

    http://www.sweeteningthepill.blogspot.com

    Thanks for this great post and for raising awareness.

  137. Dody Prince on April 4, 2013 at 3:17 PM

    Hi.I just had my Mirena removed today, because I have been training extensively for the last five months without a budge on the scale, and even though I’m gaining a lot of muscle. I figured it must be due to this IUD.
    I haven’t really thought I may have had issues with it, but now reading your side effects, mine have been similar as well. Not being able to lose ANY weight, has been the worst part of it.
    I’m fortunate that I removed it three and half years later, and we’ll see how it goes. I’m not sexually active at this time, and single, but will hopefully lose weight now that I’m working so damn hard, and my trainers will realize that I’m not just being a fat ass. Thanks, for posting this, and I look forward to the cleanse.

  138. Dody Prince on April 4, 2013 at 3:26 PM

    I thought I didn’t have any complications at all or side effects, but now realize that I have been.
    Although, not bleeding was great, and I just associated that without having any side effects, I was completely wrong.
    Three and half years of Mirena, now seems so un natural, although I had the birth control pill for almost 15 years previous to pregnancy of my son, and was not able to take the pill again because of the hormones, and thought Mirena was better, and although no ‘medical’ complications or etc, it still always seemed so un natural, and weird to me.
    It was actually very disgusting to what was on the strings when it was removed, and I will never have another IUD again.
    I’m glad I’ve decided to finally remove it.
    Thanks for your post.

  139. Andrea on April 5, 2013 at 12:44 PM

    I had my Mirena IUD in since 2010. The first two years were virtually problem free with the exception of the strings being to long for my husband. Snip snip easy fix. However the last year I have had an very very painful bloated pain my side. I recently an ultrasound, blood work, urine and blood. Saw my nephrologist (kidney doctor, cause I only have one kidney). The ultra sound showed no cyst, growths, all my lady parts seem to be in working order. of any kind to explain the pain I’ve been feeling. No water in the kidney, nothing. I have almost every symptom , exhausted no matter how much sleep I get, bouts of insomnia, mood swings, pain in my side. I brushed all those things aside and chalked it up to being a working mother and wife. I must be anxious about something that’s why I can’t sleep. My kidney must be malfunctioning. I don’t eat poorly, I do skip breakfast but I started eating breakfast again. No change. I’ve missed so much work I’ve considered filing for FMLA for intermittent leave but with no known serious medical condition for my absences I’m up the creek with out a paddle. It’s time to have this removed.

  140. [...] feel like it is time for a follow up post about my Mirena experience. My post about it receives between 700-1100+ visits daily and has generated over 200 comments from [...]

  141. [...] enough, I go online and google Merina IUD only to find a million horror stories. So then I google Copper IUD and find more horror stories. What is it about these online forums? [...]

  142. zoe on April 11, 2013 at 2:38 PM

    I had the coil fitted 2 years ago exactly have basically bled every other week if im lucky I get a 2 week gap without, I have awfull constant pelvic pain, I basically feel like im due a period permentley, my stomach bloats a lot enough I think to make me look in early stages of pregnancy, I sufer from really bad migrane type headaches, hairs on my chin which ive never had, lots of nerves feling pain in my bum cheek and left leg, frequent sore breast, im at the end of my teather, ive been in and out the docors every other week for months, been given anti biotics etc, until this week I demanded it was removed only for the doctor being unable to see it all!! so now booked in for scan and then with a different doctor to try again to remove it…….. DOES ANYONE ELSE HAVE THESE SYMPTOMS, its been really worrying me , especially pelvic pain, bloating and frequent bleeding.

    thank you

  143. Denise on April 12, 2013 at 10:11 PM

    The worst experience ever! I had my Mirena IUD inserted in December right before Christmas. I not only turned into a monster, I gained 7 pounds in 10 days and within 3 days my jeans would not zip up. After a week I had to wear a girdle to fit into any of my jeans, pants, or skirts. I was bloated all around, my breasts were swollen and VERY tender, couldn’t even stand the shower water touching them, I cramped 24/7, had migraines everyday, spotted everyday, it was like I was pregnant. I was so emotional, yelling one minute and crying the next. I also felt like I had the flu, my body ached all of the time, I could not even go shopping without being super fatigued. I think I almost ruined Christmas. I then began to research it and read similar horror stories. I called and begged for my OB/GYN to remove it after 2 weeks. I had read that it could take up to 3 months to lose the weight after having it removed. My weight would not budge. I was running 2-3 miles 3-4 times a week and I could not get the scale to move. It did take me 3 months to lose the weight after having it removed. I think my story is long, but worth putting out there, I had no idea this could happen.

  144. Jen on April 13, 2013 at 12:35 PM

    I just had my 3rd Mirena IUD inserted today and I’ve never had any side affects, 10 years on it and My weight my hair my mood has never changed Everyone is different. I love the Mirena!

  145. Sam on April 13, 2013 at 10:24 PM

    This has been so informing. I actually had my MIRENA for the full 5 years. I never had a single problem with it until the last year. But I never thought it was the mirena, I just assumed it was something I was doing wrong. But over the past year I have gained 20lbs and my life style hadn’t changed at all. Im very short so I have always been about 130…give or take..give more actually. Last aprilish..I was at 150 but didn’t feel bad about how I looked I just wanted to shape up a little. Started going to the gym everyday for an hour or more. Nothing changed. So naturally the only time I see the gym is when it leaves my bank account. We re-did our house last June and I can’t fit in any of the clothes I wore last year. And again I haven’t changed anything. But I am now about 168. Started phentermine to help with appetite and it has, but not a pound dropped! Then I started noticing globs of hair behind our bedroom door which is where I fix my hair. I figured it was bc it was fall?? And acne!!! Holy Crap was horrible!! Abdominal pain- so severe I wasn’t sure what was gonna happen in the bathroom. And I’m anxious to see if any of these things will change now that it is gone. I just had it removed Friday so we shall see!!

  146. Jamie on April 15, 2013 at 9:51 AM

    Hi, I thank you for you posting. I have had mine in for a little over 5 yrs ( as my Dr. told me 6-7 yrs are ok now). Had I seen this I would have gotten my out that day,Which I will be calling to get it removed. I have had almost everything on this done within the last 2 yrs. and I just put it on the lost of my mom to Breast Cancer. I have went in for flus ( thinking that is what is was) headaches that just wont go away never once did they talk about it maybe being Mirena. As much as I hate pills looks like this mama will no longer be having babies I will break down to get my tubes tied up :) and hope all these things go away FAST I want my life back and not feel like a 90 yrs old in pain getting out of bed. Thank you again for posting.

  147. Leeloo on April 16, 2013 at 7:38 AM

    Hi there,

    Thanks for your piece regarding the Mirena. I am having one put in within a month. It’s always good to have other perspectives and to know exactly what you are walking into. I like to weight the pros and cons of everything as I am chronically ill anyway. After two heart surgeries and a neurostimulator implant (all for severe chronic migraines with which I have had no success on any other therapies, and I have tried A LOT), it seems to me like the Mirena will do one of two things for me – either make the migraines more uncontrollable (which the “normal” ones are well controlled on the neurostim now), or it will cease my periods and therefore the menstrual migraines that the stim DOESN’T work for…and which are excruciating. I am not having the Mirena placed for migraines, however – if they cease with the periods it will be a side blessing for which I will be immensely grateful- but I have very heavy and unpredictable break-through bleeding as well as hypothyroidism and I am in the middle of losing weight since I was able to remove so many medications from my regimen since the neurostim placement.

    Thank you so much for a well-written article with some great points to consider. Most likely I will have the Mirena placed and see how I do – I have been around the medical block for years now so I kind of have a “Meh, could it really get any worse?” attitude. I struggle daily with Major Depressive Disorder and I am already on meds for that, too…I appreciate your tips and I am sorry you had to go through this in order to have to write your article, but it is very helpful.

  148. Necole on April 16, 2013 at 8:54 AM

    Oh my goodness it’s like looking into a mirror of the story of my life after mirena!! I was such a fan but now I’m second guessing this thing!! ALL OF THE SIDE EFFECTS plus more I’ve experienced I think it’s time to make a call!! Thank you so much for this information it was awesome and very helpful!! :))) SIGNED-CNG

  149. nia on April 18, 2013 at 8:59 AM

    I have been on the merina for 3 years and just this past couple months have been experiencing weight gain sleepiness depression pain and discomfort in my pelvic area, and if I didn’t have this iud, I’d think I was pregnant again. I thought I was alone as many friends love their iud, thanks for your story, going to read the follow up next.

  150. Andreia on April 18, 2013 at 9:11 AM

    I’m so glad I came across this site. I have had the Mirena for almost 4 years now and like everyone else, I loved it and I was a huge advocate of it and suggested it to everyone I knew. Now after reading and research not so sure, I thought I was going crazy. I literally thought I was losing my mind, I have put on so much weight, depressed all the time, cry over nothing, accuse my husband of everything and anything (we are newlyweds, so not good) because I have become to hate myself and hate what I look like now. I look like I am 12 months pregnant and I’ve never had children. The reason for me getting the Mirena was because I was at the age to where I couldn’t get the pill any longer because I was a smoker and my doctor would not prescribe them to me unless I quit smoking, (I’m a quitter now ) well that didn’t happen so he suggested the Mirena. It sounded wonderful and with all of my womanly issues I would have done anything, It wasn’t until I finally put two and two together. I have had all of the symptoms listed but it never hit me that it was my IUD causing all of it. I went from this happy go lucky person to this horrible person that no one wanted to be around, I was moody one minute, happy the next, to crying or screaming…That is so not me… My mother was a hypochondriac, went to the doctor for every little thing. I was turning in to this, telling my husband Oh no I’m turning into my mother, I was having blood test done all the time, depression, IBS, thyroid, vitamin deficiencies, even MRI’s for my body aches, but NO Every Test is Normal!! Everyone in my family has thyroid disease so I just assumed I did to, the fogginess, the lethargic feeling all the time, no matter how much sleep I get I’m still tired, but when time to go to bed, I can’t sleep… I have a pill for that to now….
    I used to have so much energy I was on ADHD medication just to be able to work. I went to the doctor all the time because I knew this was not me. I had lost over 100 pounds 15 years ago and kept it off, I have not changed anything, my diet or exercise plan and I managed to keep it off, up until, Oh three years ago, slowly, slowly, slowly, I have gained most of that weight back. My husband sits and looks at me like, you don’t eat enough to keep a bird alive, I don’t understand what’s wrong with you. He’s retired Army (24yrs) and trust me, health freak!! LOL…
    I didn’t put it together until I went on a business trip to WA State and a friend of mine happens to live there. I met her for dinner and her and I got to talking about stuff in general, then the conversation moved to me and how I was in general, well in general I am not ME! I am not the person she knew 5 years ago. I brought up the thyroid testing and how the doctors have got to be missing something, the hair loss, the dry skin, the fogginess, and the aches I feel all over. She mentioned that her daughter had the same symptoms but her daughter’s doctor told her to take the IUD out and all of her symptoms would go away, low and behold, they did…
    When I returned home the following week I made an appointment to have mine removed. At first the receptionist was like you’re on tri-care and your insurance won’t pay for the removal so it will be around 500 to take it out, I told her I didn’t care how much it cost I would hock my car if I had to, I wanted it out. BTW, my insurance does cover it (Thank goodness) So next week the 24th it will be gone and I can’t wait to be back to my old self again. I am 40 going on 60 but getting ready to turn that around to 60 going on 21 again!!

  151. Maggie on April 18, 2013 at 7:33 PM

    I had mine inserted in February 2013 to help “regulate” things for me. I went in and spoke with the doctor who did mine, raised some concerns I had that I felt warranted investigation before insertion, and what I thought was a pap smear was the Mirena being inserted. I was under the impression that I would go in for an ultrasound and bloodwork first. I spent the next month in CONSTANT pain, fatigue, mood swings, awful headaches, bloating, and packed 10 lbs in one month in my 5’5″ 110 lbs frame. After researching (I should have done this earlier), I saw all the horror stories online and decide to have it taken out. The first doctor I went to (GP who didn’t insert it) tried to talk me out of it and when she tried to remove it, she couldn’t and said “well, I can’t get it out anyway,” and sent me on my merry way. My husband has had the snip, so I didn’t need it for contraception. . I went to another clinic and they couldn’t find it either. I got sent in for an ultrasound to determine where it was, and it was discovered that it was still in my uterus. In the same ultrasound, they discovered a 5cm septated cyst on my left ovary. That would explain the cause of my symptoms, plus the lumps I can feel from the outside of my abdomen…I went to my family doc, got a referral to a new gynae, a follow up u/s in 2 months, and 2 weeks ago, I went to the planned parenthood clinic to have it removed. They got it out in a matter of seconds – not so sure how that happened. I’m still dealing with some fairly unpleasant symptoms, but I am glad that mess is out of my system before things got any worse. And hopefully, my system will get sorted out and the health issues resolved. I too cannot wait to get back to my old self!

  152. Nikki on April 23, 2013 at 3:40 PM

    Hello its so crazy all of this I’m reading…..I had my first IUD for years with no probloms I had my second one in April 2011 and had nothing but problems with that one…..I had bacterial infections almost every three months and constant cramping sore breasts, hair loss,migraines, pain during intercourse so I had it taken out this past November and I was still
    Having pain and cramping. I went to my gyno and he recommended I have a vaginal and regular sonogram because he felt a cyst on my left ovarie. I had the sonograms today and here I have to have my left ovarie removed due to several cysts. And I have endometrititis and after he removes my ovarie if the pain continues I am going to have to have a hysterectomy……I’m 34 yes old with 3 children to my x husband and now my boyfriend and I are talking about having a baby together…..its very upsetting that this IUD has caused me to not be able to get pregnant again……I hear there’s a lawsuit against Bayer does anyone know if there has been money rewarded?

    • Nicole D on June 26, 2013 at 12:57 PM

      Nikki,

      Did you have have the device surgically removed?

  153. Jools on April 24, 2013 at 1:57 AM

    Hi,
    Great to read about everyone’s experiences with the Mirena. I had mine fitted about 8 months ago and the first 6 were excellent and was thrilled as felt so well and it is great not having periods. However over the last 2 months I have been getting strange joint pains – elbow, fingers, occasional shoulder and also a little rib pain. I have had a little musculoskeletal-skeletal issues in the past bit am concerned that these symptoms may be caused by my Mirena. Blood results from my GP are all normal. Most people I know have had no issues with the Mirena. I have had no other side effects. So confused as I don’t know what to do – do I have it removed and see or do I persevere? I do not want to over-react. I’m a Practice Nurse and I assist GP’s with mirena insertion etc and have not come across anyone with these problems, and from chatting with my colleagues they are not aware of any link. Has anyone had only joint pain and did it go away after removal of the Mirena??

  154. Louise on April 25, 2013 at 2:14 PM

    I am not really certain what to say to all these comments. I am 44 hrs old .. Over the past months following a normal pap test I experienced prolonged bleeding … Basically I got my period .. It was surprisingly light but continuous for about 4 weeks. Consequently both my GP and Gyn prescribed hormonal pills. Happy because the bleeding did stop however once my period returned it was like he’ll let loose – I was told to rush to hospital in case I needed blood transfusion – thank God I escaped this ordeal. So Gyn suggested to perform DC and to insert IUD – Mirena. From the 28th of March till today my life took another role: my tummy feels as though it’s going to explode, extremely painful and looks like am in advanced pregnancy stage :( I am quite a good natured person always on the go and happy go lucky. Suddenly I feel trapped, confused and very irritable even on the simplest issue I erupt worse than a volcano … Not even a month passed and having read all these posts am seriously thinking of having this gadget removed from my body. The result of the d&c was an that of an endometrial polyp which was removed whilst performing the clean up… Therefore am not sure if the IUD applies at this stage … But definitely cannot take this discomfort any longer … I sympathize with every lady that is going through such ordeal !!

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  156. Kate on May 1, 2013 at 3:35 PM

    Well like you and the more I research I am fin ding out what a HUGE PROBLEM this is. I have had mine for a year and the last 6 months have been having all sorts of odd things happening to my body that first I thought oh just pregnancy hormones getting back to normal, oh from nursing, oh from stress, and the list continues. I finally took a trip to the doctor once my body was hurting so bad. My neck and shoulders, shooting pain down my arms at times, feet tingling and asleep when I got up. I live a healthy lifestyle, exercise, eat organic, small gal and well I knew something just was not right!!! My doctor did not take me seriously, said oh it’s just from carrying around 2 kids. Um I have had two natural births and my son was 10 pounds. I have a high tolerance for pain. Well a few months went by and started having this awful pain in my leg, numbness, keeps me up at night. It’s awful. Not to mention the anxiety (which I have never had in my life) tired all the times, restless sleep, and awful awful migraines that last for days. Well finally I realize the problem IUD!!!!! Now of course my OBgyn does not think so but getting it removed tomorrow and could not be more excited to get this foreign object out of me that my body hates!!!! And to get my body back to normal. This past year I have had to live through so much pain. I am so angry they can even have this on the market still. I plan on telling my provider this! Even just typing this everything aches and locks up in my arms and shoulders. Ridiculous!!! If you have mirena please get it out! You don’t have MS, arthritis, fibromyalgia (my recent diagnosis from
    my primary doctor), or anything else your body is just trying to tell you something which is get this thing out of me so I can function the way God created me too. Ok I am done. Thanks for sharing your story!!!

  157. Adri on May 9, 2013 at 4:18 AM

    I had a mirena inserted after my twins birth, thought it was great. I had three children, and thought it was a good time to stop.I almost immediatly had most of the symptoms you all mentioned, but then I started to have problems with numbness in my right foot. Dr first diagnosis was, back problems, neurofibromitosis, ms, cerable pulsy ect. they didn’t have a clue. Every year I travel to some new dr all over South Africa. I had my second Mirena 2011, my symptoms became more severe. I have cronic pain, uses special shoes, can’t gym, headaches, light epileptic spells, uses medicines for pain, epileptics, inflamation of my joints, depression ect. Dr wants to do more tests in the hospital still don’t have a clue. Today my husband had a bright moment, he told me that he thinks that there may be a connection with the Mirena, because I never had any symptoms before 2006. My appointment to remove it is 30 May 2013. I pray that this will be the answer to the problem, maybe I will get back my old self after that.

  158. Rachel on May 11, 2013 at 3:38 PM

    I have had Mirena in for a almost 5 years the first 2 years or so was I thought were fine but wasn’t really thinking of the side effects being Mirena since I got hurt in the military and didn’t want kids at all. I have been on pain meds and can’t exercise without being in extreme pain. Reading your article as made me think maybe it is the Mirena and glad I am getting it out first week of August. Since I got hurt I have been depressed but not so much were I can’t get out of bed like the past few years, I have cysts on my ovaries that are always coming back and worse every time, no matter how much I sleep I am always tired and always in pain and my pain is getting worse where my disability is and now is working its way in other areas, I loved not getting a period or PMS and my sex live is normal but day to day activity is a chore since I don’t want to get out of bed or even go visit friends and because of being in pain. I also have some other side effects and my now fiance has been telling me to get it out since we met over 2 years ago but told him wanted to me married before we had kids but, but since we are engaged now and the side effects are getting so bad I am getting it out and not getting it replaced with any new BC to see if that was the problem and we want kids so marriage date is next year but would be happy if we got pregnant now also I just hope it is the Mirena and all side effects go away

  159. Ruby on May 16, 2013 at 3:56 PM

    I am sitting here reading all of these comments and I am floored that I never really put together all of the symptoms that I have been having. I have had the Mirena inserted 3 times since 2002 and removed twice to get pregnant. With the first two times I was in my mid 20s to late 20s. I never seemed to have any symptoms that I noticed maybe except for fatigue and headaches. But I had it put back in about 3 years ago after I had my last child. I nursed for 10 months and no issues except I could not get rid of the weight at all. I have never had an issue with this ever. My OB said welcome to being 30. I struggled through the weight loss and gain so quickly and continue to work on this but in the passed two years I got severe I mean horrible acne on my back, scalp and face. I have never I mean never had this. I went to the dermatologist and went on all this stuff including a hormone blocker and spent thousands of dollars on getting my face back to normal. Yes I said thousands because I get peels done now every month. I still have back acne but not as severe. I have the no libido at all, the fatigue and mood swings. I think the major one came back in November my hair was seriously falling out. I am freaking out. I have started to thin out pretty badly. I am taking 10K milligrams of Biotin which has helped but still. Lastly, I have experienced abdominal pain and went to the doctor and she said I had a cyst. It was painful and she said everything looked good otherwise. I had a complete physical done and nothing came back badly at all. I am so frustrated but now I am beginning to believe this could be the culprit. I am kind of over feeling this way and battling all of these issues. I was getting ready to go see and endocrinologist. After reading all of these comments, I called the hubs and said I am over this. I am taking my IUD out and you need to get a vasectomy. I have given birth to our children and have been responsible for our family planning for 15 years. You need to do this. He finally agreed. Woot! So Ladies I am taking my IUD out. I am making the appointment as we speak and will let you all know how I feel once this thing is out. I am hoping this is going to solve my issues I have been experiencing for the last 2 1/2 years. Thanks!

  160. mirena intrauterine device on May 20, 2013 at 8:13 AM

    Mirena does have a checkered history when it comes to women who’ve experienced side effects which vary greatly from one woman to another. This is a long read, but a great article nonetheless and totally worth the time taken. Thanks for sharing.

  161. Yaya on May 20, 2013 at 9:27 AM

    Thak you for this! I had Mirena fir about 1.5 years and I had noticed fatigue and feeling depressed and it didn’t occur to me it was from the Mirena. I had it removed about 1.5 years ago and am so glad I did. It was causing too many issues for my body, my FNP convinced me twice to :give it atry a little longer” but I’m glad i listened to my body

  162. Crystal on May 22, 2013 at 6:40 PM

    I just went to my gyno today, I ahve had issues since I was a young teen. My periods got worse, and the pain got worse. They suspect I have endometrosis. I have tried every pill form, and the depo shot (which I just came off of). She kept mentioning this Mirena to me, almost pushing it. The fact she pulled it out, and I just thought you aren’t shoving that in me without a fight. I have severe pain while getting the annual physical that will be 100x worse. I have never heard anything nice about this. I was just looking up my options: Mirena, a new form of birth control, nuva ring, patch or surgery. I had horrib;e issues with the depo shot which was amasing for 6 months then went down hill from there. I am opting for surgery now.

  163. Brooke on May 30, 2013 at 6:44 PM

    I got the mirena iud and have at all the same symptoms plus nausea.

  164. [...] My gynecologist’s other options: the Mirena IUD with progestin (an artificial version of your body’s natural progesterone), which costs $400 to $500, and Visan tablets with progesterone that I’d have to take daily to stop the bleeding. Neither are acceptable to me.  The Mirena IUD is not as innocuous as it sounds. There are serious side effects that may ruin whatever quality of life you may have. (If you want to read testimonials about the Mirena, read the replies to this blog: http://www.thestayathomefeminist.com/2012/04/21/the-case-of-the-tiny-little-iud-vs-natural-urban-mam…) [...]

  165. A H Spiller on June 7, 2013 at 5:02 AM

    I am 44 and have had the Mirena IUD for nearly 8 months. Although my tubes are tied I was having to take birth control pills to control the horrible symptoms I was having during my period. I literally felt like I was bleeding to death and the cramps made me cry and pace the floor. The dr switched me to the IUD because my blood pressure was high and the low dose hormones in the IUD would help that. My blood pressure is back to normal but the rest of me is a wreck! Yes I have lighter periods and yes the cramping is bearable. But my libido is all over the place. Yes, no, maybe. My husband thinks I’m nuts. I’m breaking out on my face and chest like I’m 13. I can’t sleep without something to help me. So the question is this. Is this worth it to keep from bleeding to death or cramping like crazy? I’m not sure!

  166. Valerie on June 21, 2013 at 11:58 AM

    I just want to say thank you for all your amazing posts! i’m so sorry that you all had to go through such extremes but am so thankful that i have read this before getting this thing put it. I recently saw the news about Yasmin birth control (with all these young girls dropping dead) and i had been on Yasmin for a long while so i immediatley stopped it and started looking at other options. After talking to my doctor (and let me tell you i was so sceptical about putting an IUD in) he recommended the Mirena but i decided to do some of my own research. And you guys are living proof that its a no go for me. Again, thank you so much for your posts, without them i might have made the wrong decision. Im just going to stick to the old fashioned way of birth control. hehe..condoms!

  167. Alex on June 25, 2013 at 3:05 AM

    I had a baby late October 2012 and have been bleeding ever since with about 2 weeks of none bleeding in that time . I got my implant in January have a tender tummy always tired don’t care about much at at my sex drive has gone and I’m blotted all the time with 10 kilos weight gain . I’m not shore if this could all so be a part of my implant I’m also getting g hot and cold flushes but thank you for the info I’m having it removed ASAP

  168. Karina on June 26, 2013 at 1:01 AM

    Wow!!… I don’t know where to start, first thank you for the information.. this is an eye opening for me…I’ve had Mirena for over 4 years, during that time I separated, my teens started acting up lots of changes… I have dealt with anxiety, heavy breathing, depression, not able to concentrate lots of crying.. thoughts of suicide… This is coming from a woman that loves life.. I teach zumba a the gym, I love dancing, my family friends know me as optimistic, etc.. This weekend talking to a friend she asked how I was and I said that I’m still dealing with those symptoms… told her about Mirena and she said check it out I haven’t heard good things about it.. so I was reading your article and it makes a lot of sense.. I’m also bloated and it’s difficult to loose weight… I’m feeling very emotional because I feel there is hope that this will change my state of mind and my life… my PMS have been emotionally draining.. no more bleeding my this has caused a lot of pain an anguish…I will be making an appointment with my doctor and I’m feeling this is the solution I was looking for, thanks so much…are there any forums any other types of information we can look into.. please let me know.. I will like to be proactive with this.. women need to know… thanks again… and for all women we need to inform ourselves… Kary

  169. Nikki D on June 26, 2013 at 1:15 PM

    Surprised to find comments on here about women loving the Mirena device. First time i have read anything about positive experiences! Happy though that not everyone was badly affected. Had mine removed about 2 months ago. Still waiting to see how long it takes for my periods to regulate again and my hormones to reach a normal level. I feel like I was lucky in terms of symptoms now after reading some of these stories.

    I noticed some women asking about whether or not there was any money being paid out from bayer over lawsuits. Luckily I did not have mine surgically removed but that is also one of the main qualifiers for the lawsuit. I have a good friend working with firms at the moment that specifically handle mirena cases with huge payouts. Since i didn’t have mine surgically removed i didn’t qualify but i would like to help any of you if you have! Don’t hesitate to email me if you are interested. nicole.dortona@gmail.com, location is not an issue as long as you are in the US. Some of you guys would be in for huge compensation and i hope to help you if you are. It makes me sick how many times pharmaceutical companies have benefited from harmful devices that could and have debilitated women. Hope for the best for all of you! god bless!

  170. Tamara on June 28, 2013 at 9:04 AM

    I had my first Mirena fitted about 4 years ago. I was very happy with it until it moved because of the large fibroid. I was told that it was going to be removed during my surgery when I had my fibroid removed.
    6 months after the surgery my GP was happy to insert another Mirena coil. That was the last time I had my period. I felt really unwell for about 6 months and decided that I wont Mirena coil removed. I had it removed in January 2013 and haven’t had period since. I have started experiencing lots of pain and feeling ill all the time. I thought that my fibroid came back so I insisted on getting a scan. Yes I do have a little fibroid growing back but they have also located my first mirena coil that was never removed from my body in the first place. I am going to see a surgeon in July and trying to find out online what effects could 2 coils have had on my body? At some point last year ( for about 3 months) I was trying to take oral contraceptive but that made me seriously ill. I have put 45kg on since having second mirena coil inserted.

  171. Erin on June 29, 2013 at 8:45 AM

    Thank you everyone for your posts!! I thought i was going mental. I had mirena inserted when my baby was two months old. Shortly after i started noticing severe mood swings, hair loss, anxiety, panic attacks, cramps,dizziness, blurred vision, pain during sex, my crotch was soooooo itchy!! Not to mention the extreme fatigue and migraines. I thought it was all in my head then i see a commercial on tv with lawsuits for mirena.Then I started to do research and was blown away. I called the doctor went strait in and demanded they remove it so he did. but What i find amazing is that i was reccomended this iud by not one doctor but three different doctors!!! They all think its great. Why arent these doctors doing research?? I also called my public health nurse and she did know there were problems with mirena but yet nobpody is doing anything about it. It just sad because i had already been at the doctor once complaining i had these weird side effects. I hope any woman that is thinking about mirena doesnt get it. I have heard horror stories!! Google mirena lawsuits or look it up on facebook. It is very scary. Lesson is dont trust anyone. Use your own tools and do research before putting anything in your body. We are reponsible for ourselves. It seems nowadays doctors seem to just do what they are told. Many woman out there with severe life changing problems due to mirena and that is a fact. Drug companies will do anything to make money. So glad i found this blog. Next time i will be smarter and reserch more. Only had it for three months so i hope it didnt do any major damage.

  172. lachic on June 30, 2013 at 11:34 AM

    Hello gang, Im a 33 yr old chick, I have a 5 yr old mini me. I got the Mirena on Dec.20 2007, I thought it was gonna be great, not gonna have to take a pill everyday…whoohoo!!! everything was working out fine them BAM!!! im on the bathroom floor with paramedics around me, Im “coming to” speaking to everyone, saying hello, hi. IM totally confused as to what the hell happened. The doctors are describing to me that I just had a seizure. Im thinking to myself “where the hell that come from”…I’ve never had one in my 31 years of living. The docs wanted to medicate me and send me home.(i didnt want it). A couple more months go by…and here goes another one(daydreaming out the window)back to the hospital we go again. they hook me up to the machines to try and cause a seizure with all the flashing lights…NOTHING!!!….WHY because im not epeliptic…hhhmmmm. this time I take the med’s. Now im feeling tingling in my fingers, im feeling slow..a little stupid and cant concentrate at times, and forget words that Im liiking for while talking…very frustratng!!!!. Now a year later everything is cool then BAM!!! POW POW…I hit a car and a light pole due to having a seizure while driving(tear)!!! Then it hits me…all this CRAP starting after I got this DAMN IUD!!!! but these damn shitty ass doc’s wanna say its irrelivant??? really??? oh im crazy huh??? this thing is cummin out!!!! bet that!!! To this day EVERY MONTH with each cycle I have a damn SEIZURE!!!!. YES INDEED :( I found a website that actually shows that women with migraines ( which I have) aren’t suppose to get the Mirena, AND that you can collapse with or without FOCAL SEIZURE!!!…… GO AHEAD CHECK OUT THE WEB SITE PLEASE!!!! http://www.intekom.com and look under “trade name” and find MIRENA!…… AND WHEN U FIND WHAT I FOUND PLEASE LET ME KNOW!!! :)

    • Erin on July 2, 2013 at 6:14 PM

      that is insane!!! I have a history of migraines thank god i got mine taken out

  173. Brittney on July 3, 2013 at 1:54 PM

    This is about my fifth month with the Mirena and I will be getting it out on the 17th of this month. When I called in to make an appointment to remove the Mirena it took about 10 minutes arguing with the nurse as to why I want it removed. I explained to her that since I have gotten the Mirena I have had gobs of hair come out, I have been feeling very depressed and I have admitted if it wasn’t for my daughter and my husband I would not be living. Also a big weight gain and very tired all the time and low sex drive. The nurse stated that the Mirena does not give these kind of side effects. I told her I want it out no matter what.

    When I had first went in to start a new birth control I wasn’t planning on getting the mirena due to the commercial on T.V. the doctors talked me in to it and said everything you try has some kind of side effect, that is true but I should had stuck with my gut. Soon after I started to become very irritable, I was already emotional and my family chucked it up to be post pardon depression I thought so to so I started taking Zoloft that the doctor gave me made me more sick than what I was. I kept telling my husband I feel like how sick I was when I was pregnant. I was throwing up every day since I got the Mirena I have taken pregnancy tests and all were negative. I have cut ties with my family because I have gotten so mean I only have patience for my daughter. I wanted to find out what was wrong with me, my husband is the only one that believes me that the Mirena has made me this way, he has read along with me all the websites where other woman are going through the same thing.

    I am very upset with the nurses how they make me feel stupid with saying that Mirena isn’t causing these side effects and that I should just look into counsloring and working out. I for one do not trust doctors or nurses anymore they sat and told me I wasn’t pregnant, when I was, sat and told me I wasn’t in labor and than found out my water had broken. I know myself better than those doctors and my whole attitude, and body has changed from the mirena. I can not wait to get the thing out! Thank you ladies for posting on these websites I truly know now that I am not crazy. thank you, god bless you all.

  174. Brittney on July 3, 2013 at 4:07 PM

    Also wanted to add I wanted to remove it myself but my husband and I (sorry if tmi)could not feel the strings and could not find it, so I’m worried it has moved. luckily will see doctor in a couple of weeks.

  175. Emma W on July 8, 2013 at 11:46 AM

    Thank you so much!

    I had mine fitted a few weeks ago and haven’t been right since. I thought it was my imagination but clearly, it’s not!! Mood swings, headaches, lack of libido, pain etc… I had already booked my appointment to get it removed before I read this and now I’m so glad I did. Roll on August 1st.

  176. Elizabeth on July 17, 2013 at 2:52 PM

    I’ve had the Mirena for 7 months now and I’m having it removed tomorrow. The first two or three months were good, with the exception of the heavy periods that lasted for ever. But the last few months I have been extremely bloated and constipated that I sometimes feel pregnant and or sick to my stomach. I’ve taken pregnancy tests and all came out negative. I’ve also been exhausted and moody and I crave sweets all the time. Another symptom I’ve had are leg cramps that are so painful that I went to the doctor but they couldn’t find anything causing it. Along with headaches, body aches, gas, dizziness. I can’t wait for this thing to be removed tomorrow!

  177. Sheri on July 21, 2013 at 8:31 AM

    I’ve had the Mirena now for a little over two months and I cannot believe the side effects already. I am back up to my full term pregnancy weight, I look puffy and swollen from head to toe, abdominal pain/cramps, depression, cloudy headed and SO SO tired all the time and NO sex drive what soever! I am having it removed next week…that little voice inside me was warning me not to do this…i should’ve listened…ugh. I was so relieved to find this site…I thought I was going crazy or something really serious was happening to me physically. Thank you to all you gals for sharing and giving me peace of mind and hope. I’m hoping and praying that I can soon feel like myself again. My kiddos need their mommy back:)

  178. Sheree on July 24, 2013 at 2:17 AM

    So glad I stumbled onto this site. I had the Mirena put in 10 mths ago after several years of heavy uncontrollable bleeding. I had a few months of constant but light bleeding and was prescribed extra med’s to combat this. Then the dose was doubled which worked. I had 6 months of no bleeding and for that I was happy but I too have gained a lot of weight, had zero sex drive, was very moody and the most tender breasts I have ever had – including pregnancy. But I felt it was still better than what I had before, that was until a month ago. Started to bleed, then heavier, and then the large palm sized clots started. Rang my Ob/gyn and he saw me the next week. Couldn’t find the mirena. Sent for an ultrasound, and still no luck. MIA. The feeling is that it came out with a clot, but after doing more reading, perhaps it could be floating somewhere in me? Perhaps I should have an Xray to just make sure? I didn’t know any of this when I got it – unfortunately.

  179. Katie on July 28, 2013 at 10:09 PM

    Oh my, this site is exactly what I needed to read. I am in the exact same situation!! I have two kids almost 3yrs & a 4 month old. I had Mirena inserted 2 1/2 months ago and already am I feeling this way. I’ve gained 6 pounds after I had been so dilligent about trying to work it off, then i just lost my drive & go through rollercoasters of moodswings, i’ve been having pain in my lower abdomen on & off for weeks & i haven’t wanted to get it on with m hubby either! I’m astounded because I thought this was the best option… I had a feeling it was too good to be true…I gotta get this out asap. :o

  180. Christine on July 30, 2013 at 11:30 PM

    Also just stumbled upon this site tonight. Lots of interesting info! I have had my Mirena for a little over 5 years now. No problems that I am aware of until the last few months I have been spotting every day and unpredictable periods. Who knows if Mirena is the cause of that. The weight gain is a very interesting point. I would love to blame Mirena for my tummy!!

  181. Gljohnson on July 31, 2013 at 5:53 PM

    I have had a mirena now for a second time and to say that I’m happy with it is SO so. This time around my migraines have come to be more and more of my life and I’ve gained almost 20 pounds that I just any seem to shed. I normally get maybe one symptom of a cycle then maybe one month get the whole shabang ie the cramps, the headaches, the bloating, the light bleeding and the cravings for high in iron foods. My husband and I do not wish to have another baby right now but he wants me to take it out an go back to the pill when I had control of my body and knew what to expect every month instead of the constant migraines and the not knowing what to expect. My mood swings come and go as well which I’ve never had. I think it’s great for the first timers but I think it’s good to have it removed and try something else for a little while and get back on a normal cycle.

  182. Leann on August 3, 2013 at 10:48 AM

    I have experienced the same thing as she did above. Same exact side effects, and even my dr convinced me to keep the iud in. I have worked hard to lose weight, which I lost and them gained right back. My moods are really hurting my family. I go from being happy to being angry and then to depressed because I realize how mean i was. I do believe that mirena has played a big role on what’s going on with me. Monday I will be making yet another appt to have it removed for good!!! Thank you for this post, it really helped :)

  183. Jasmine on August 4, 2013 at 11:30 PM

    Expulsion, cramping, bleeding, pain- these are all the potential side effects we sign off on when getting the Mirena. What TERRIFIES me is that there are so many other side effects the doctors are refusing to acknowledge. If so many of us have the same issue, why is it not being heard?

    Its nice to know I’m not crazy. I had the Mirena for less than a year but I knew something wasn’t right. So many non-specific issues and when I brought them up to the doctor they told me something generic. Tired? Well thats stress or you just had a baby. Depression? Oh its normal to have the baby blues. So on and so forth- none of that was normal for me. The exhaustion, muddled thoughts, forgetfulness, AIR HUNGER, random waves of dizziness, etc are all things that are REAL problems but don’t show up on the blood tests.

    I have had my Mirena out for almost a year now. Things have gotten better for the most part. I had immediate relief when it was removed but not all my symptoms have subsided. Beware of having this awful product put in your body. For those that love it, great. If you’re one of the unlucky ones, it’s not worth it.

  184. Stephanie on August 9, 2013 at 6:02 AM

    I had a mirena in 2004 to 2008 & I loved it, I had no issues besides some cramping when it was inserted for the first few days. In 2012, Ihad my son who is my world & I didn’t get birth control quick enough, and my beautiful daughter was born in 2013. They are 11 months apart. So I made sure to get birth control this time. Well on monday I went to have another Mirena inserted & have been having extreme cramping for 4 days, I just got home from the ER & they found it floating around inside me & said they don’t believe it was ever inserted correctly. Devices like these are things that may work for some people but definitely have side effects and can be very unsafe. Glad ur feeling better!

  185. Shannon on August 20, 2013 at 9:53 AM

    I am researching having Mirena inserted and came across this blog. I would like to say that I also have many of the symptoms for the past 4 years that so many posters are complaining of and I have not had this IUD ever. I did remove gluten from my diet 1 year ago (I know a lot of people don’t like to hear this and find it rather controversial) but I have had almost all my symptoms disappear, most thankfully the monthly bouts of depression and the pain in my whole body that felt like what I imagine arthritis would feel like. Please consider this also to be a cause of your pain. It definitely doesn’t hurt to try.

  186. C on September 4, 2013 at 1:04 AM

    I too am glad to have found that I’m not the only one who had a difficult time with Mirena. For almost the first year I had it I had foul smelling discharge (which did go away.) PMS symptoms would come around without the period every month and my breasts swelled to almost twice their size a few times and hurt so bad. I have been moody, always sleepy, achy, heart racing.. never thought it could be from this! The severe cramping started this past year (year #4) and I would just get on all fours on the bed and rock back and forth until Aleve or motrin would kick in. ugh. I had it taken out 3 weeks ago because I started having such severe lower abdominal/pelvic pain that I was bedridden for several days, couldn’t even sit it would hurt too bad. I went in and the doc couldn’t find anything wrong despite a transvaginal ultrasound and said he thought my uterus was ‘irritated’ and recommended it come out. I was so happy to have it out! So now.. over 2 weeks later I am bleeding more, passing huge clots and the pain is so bad in my low abdomen I can’t hardly think sometimes. The cramping is awful! I’m tempted to go back into the doc to see if something else might be wrong with me but after reading all these I think that it’s still after effects of the mirena being removed and suddenly no hormones!

  187. lau on September 11, 2013 at 11:53 AM

    I have had my mirena coil for almost three years. Never had a problem until about six months ago when i got the most awful lower abdomen pain. i was taken to hospital with suspected ruptured appendix it wasn’t then they said that i had rupured ovarian cysts which was causing the pain… the cysts went but my pain stayed, all day everyday i was in so much pain i have lost five stone sick most days been in and out of hospital about twenty times..i have had so many tests done and they cant find anything wrong. but they have put me on about five different pain killers including morphine plus stomach tablets. i asked if it could be to do with the coil but they said no however after reading what people have said on forums i am certain this could be what the problem is…has anyone had similar symptoms to these?

  188. Alysha on September 12, 2013 at 11:08 AM

    This has been my exact experience for the past 6 months; I’ve had migraines, hair loss, weight gain, fatigue, abdominal pain and cramps, nausea, dizziness, and no sex drive at all. But I got my IUD out today with no push-back from my doctor at all. He also did a Pap while he was down there and sent me for blood work to see if I have hypothyroidism and/or anemia.

  189. Maria on September 18, 2013 at 11:49 AM

    I have had my mirena for less than two months and I have had headaches, itchiness, sores around my genitals, excessive pain, discharge that smells terribly! I had all kinds of tests done, everything came back negative. their is nothing they can do for these symptoms they are telling me its my body adjusting too the mirena, I’m not keeping something in that makes me feel disgusting like I have a sexually transmitted disease, when I’ve been with my fiancé for 4 years in a monogamous relationship! All the mirena has done for me was make me feel worse!

    • Chanell on October 3, 2013 at 1:05 PM

      Hey Maria,

      The smelly discharge is a bacteria infection, they have medication for that, trust me I know.

  190. Kelly on September 19, 2013 at 9:13 AM

    Hi there my names kelly and I’ve got the 5 year mirena coil the insertion was very uncomfortable as I have a tilted womb.they told me to lay down for 5/10 mins as I could faint and what ever! But I think I’ve had this coil now for 2 year and I don’t know if it might be down to my flowing process or there’s seriously something wrong. But I’m getting some horrendous pains on my left side from the waist down :/ I don’t know if my coil could be tilted or miss lodged but I’m worried and me and my partner can’t have intercourse with out me screaming or jumping because it hurts. My partner could normal feel my string and it would cut him so I would have to move it but once I’d move it I could feel the bottom of my coil … Is this normal and am I being silly or is this serious ??? Please help

    Kelly

  191. check over here on September 24, 2013 at 12:58 PM

    What’s up, I read your blog on a regular basis. Your writing style is witty,
    keep up the good work!

  192. Brenda on September 25, 2013 at 7:02 PM

    I am 1 week post Mirena removal. (My 2nd one, had very little problems with my 1st) I had it taken out during a laparoscopy and D&C. This surgery was due to all the pelvic pain, bloating, low back pain I have experienced for nearly a year. On top of it, since last year I have been suffering worsening depression and anxiety. And I mean suffering. At my lowest points, near suicidal. I started reading more on Mirena about 2 weeks before my surgery and discovered that depression and anxiety have been linked to the IUD. You would not believe, I woke up in the recovery room already feeling better. In the week since I have experienced zero anxiety or depression symptoms. My bloating and pelvic pain are also gone. I still have to follow up with the OB/GYN as to any other findings in my surgery. But I have become very addiment that no one should have this in their body.

  193. Lauren on September 30, 2013 at 10:13 PM

    I have it, and it’s been wonderful. I love it, I have no side effects.

  194. Dena on October 1, 2013 at 2:55 PM

    After having 3 children 3 years in a row I got the Mirena. When the Dr. was placing it he said “huh thats never happened”. The Mirena fell out. So he had the nurse bring another, this one stayed in. I had it for 3 years with NO period or spotting for the whole time until it fell out in Aug 2012. I still haven’t had a period and it has been over a year.

  195. Chanell on October 3, 2013 at 1:03 PM

    I just had mine’s removed today!! Thank You Jesus!!!! I’d had it for almost 4 years and have been having side effects for all of that time but never attributed it to the IUD until recently. Well, sort of. From the beginning, I was plagued with BV to the point where I had a forever refill on metrogels and diflucan. Then I noticed that my stomach was growing to the point where I looked pregnant and the fatigue was unbearable. I was finally able to go see my favorite ob/gyn, she delivered my son. Once I told her what I was going through, she said that maybe this isn’t for you and removed it. But that was scary too because she couldn’t find the strings. She had to go in there with the little forceps found it and it was out, just like that. Gave me another prescription for this last bout of BV. I felt instant relief in my stomach and passing gas so much, now I know it was the IUD. Though she warned me that I’m super fertile, I would rather be fertile than to live with all the pain and hell that was caused by this little bitty device. If you have it and haven’t had any side effects that’s great but as for me, I’m done with it and very glad. Can’t wait to see what my stomach looks like in a week!!!!

    Signed,

    Happy to be rid of Mirena :)

  196. CELESTE on October 3, 2013 at 3:37 PM

    WOW….. READING THIS KINDA FREAKED ME OUT, I HAVE HAD ALL OF THESE SYMPTOMS EXCEPT THE LEBIDO ISSUE(NEVER A PROBLEM THERE) LOL.
    BUT ITS NOT ONLY ME…. I HAVE ABOUT 4 FRIENDS THAT ARE GOING THROUGH THE SAME ISSUE AND WE JUST THOUGHT IT WAS BC WE ALL GO TO SCHOOL FULL TIME HAVE FULL TIME JOBS AND KIDS. NOW THAT I AM READING THIS I AM A LITTLE NERVOUS THAT THIS COULD HAVE SOME LONG TERM DAMAGE IF I DONT GET IT REMOVED SOON. BUT ON THE OTHER HAND IDK WHAT OTHER FORM OF B.C. I CAN USE, IM NOT GOOD AT TAKING PILLS AND WONT DO THE SHOT……. I CANNOT(WELL I DONT WANT TO)HAVE ANYMORE KIDS RIGHT NOW…….

  197. Natasha S on October 5, 2013 at 1:17 PM

    Thank you so much for sharing your experiences with Mirena. I was about to have mine inserted next week and luckily found this site in time. I have decided not to go with Mirena after all. Does anyone have any other forms of birth control that they would recommend post Mirena? Thanks!

    N:)

  198. Maegan derick on October 6, 2013 at 12:26 PM

    I have read through some of these comments and have came across depression a few times . I got the marina last September and since January I have been suffering from a serious anxiety I wonder if its possible that this is where it comes from .. It’s terrible I also get the headaches and mood swings , iv asked the doctor and he tried adavan and depression pills . I used to be the happiest go lucky kind of person.

  199. Deya on October 7, 2013 at 10:11 AM

    Did you get the mirena crash after removal?if so let me know your symptoms and how long they last o how you feel now?
    Is very helpful, I am going trough it & getting remove today

    • Maegan on October 7, 2013 at 9:24 PM

      I made the appointment today it’s not until oct 31, hoping the “crash” isn’t to bad I can’t really afford it either just want to feel normal again . Can u let me know?? Have you felt any anxiety using it??

  200. Lily Green on October 17, 2013 at 7:38 AM

    I had the Skyla, the three-year equivalent of Mirena, I think they’re made by the same company. I had it inserted two months ago. As a birth control method, for me, it was highly effective, because it stabbed my husband when we would attempt to have sex. Apparently my doctor installed it wrong, and when I went to follow up with him about it he told me I should “persevere” and “avoid doing it doggy style”. Needless to say I will not be returning to that doctor. I had it removed two days ago, and all of a sudden the sleep issues I was having, that I wrongly attributed to a new mattress, disappeared. Since I only had it for two months I’m not sure what symptoms I can attribute it to, but it’s really bizarre how for the first time in my whole life I suddenly had major back pain and sleep problems when I had the thing implanted and literally within 48 hours of having it removed those issues are gone. I’ve also been trying to lose baby weight, running 20+ miles a week and following weight watchers to no avail – maybe this is caused by it? I’m not sure I will follow up in a few months. Either way after reading this and the responses I am thankful I had it removed and only had to deal with it for a couple months.

  201. Natasha on October 20, 2013 at 6:10 PM

    Having the same symptoms. Thanks for your post. Going to my doctor this week to get this removed!

    And my name is Natasha too :)

    Not sure if I’m having alot of pain due to the fact I have cysts in my uterus anyway but I am always in pain.

  202. Alex on October 22, 2013 at 1:12 AM

    After 9 years of having Mirena in me,( I suffer from adenomyona and endometrosis) I have decided to take it out next week. My Traditional Chinese Medicine (TCM)Doctor says that menstration is a form of detoxing. Because of being on Mirena for 9 yrs, I had a severe built up of toxins in my body .. Indirectly it may have caused me to have hives every night clockwork at 10pm for almost a year. My TCM doctor says my attempts to detox is not going to be very effective as I have a IUD fitted.
    I went to the gyne to get it removed but the tail/string is missing. He tried to find it, after 20 minutes of attempt ( I bled a little judging from the cotton and guage) , he said it has to be surgically removed.Worst of all, it was going to cost me approx US$4k for day surgery and my insurers were not goin to pay for it as it is pregnancy related!
    I have no acne problems or hair loss, but I have very short temper and get irriated very easily. Though looking back I think I have bloated quite a lot and my womb/abdomen area is huge.. as if I am 4 to 5 mths pregnant. Initially I had mood swings, spotting and cramps .. after years of having Mirena, i have no period which is not a bad thing. However, Sex drive plummetted.

    I hope I do not get a Mirena crash and be able to lose my weight gain after this is taken out.

  203. Dizzydors on October 25, 2013 at 12:03 AM

    What a relief to find everyone’s comments !!!!!!!!!!!!!!!!!!!!!!!!!! I have never suffered from depression, anxiety, dark moods, fatigue, the list goes on, until I put the Mirena in. After having a burst cyst on my ovary and landing in hospital my gyni discovered a fibroid on my uterus. He assured me that the Mirena would be my saving grace ! I did not do any research and blindly trusted…………… I’m a Sales Consultant with a passion for life and who loves people. I have traveled all over the world at the drop of a hat …. oh hang on, that was me…prior to the Mirena. Now I don’t sleep, I have anxiety attacks where I cant breath, I’m irritable and don’t want to deal with people. I have no sex drive and I don’t feel inspired about anything. My Mirena is now embedded and I have to have surgery to remove it, my advice to anyone thinking about putting the Mirena in … STAY AWAY…do your homework and first try a natural alternative. On a good day I have the bloated womb of a 24 week pregnant woman,I have constant lower back ache to go with daily discharge. What was an uncomfortable 5 days a month has now become a living hell resulting in my entire uterus being removed. What is the Mirena Crash mentioned ??

  204. Angie on October 26, 2013 at 6:54 AM

    I have just had mine out after 2 yrs of having the merina iud inserted. I had hidious discharge, abdominal bloating, migraines, depression and severe body aches. I had it removed and screamed with the pain I got in my abdominal area and now have aching ribs. I am praying that these will subside but it looks like I contracted some weird infection from having it and now on my second lot of antibiotics as tests show nothing but discharge is ridiculous and pain in vagina. DO NOT GET THE MERINA EVER!!!

  205. Rebekah on November 1, 2013 at 11:30 AM

    Please help with advice as you seem to have become a bit of an expert. I’ve had the Mirena for almost 4 years with no complications. About a month ago, I began experiencing severe fatigue and abdominal swelling in the last 2 days. I gained almost 4 pounds in 1 week with fairly normal eating. I’m only in the 120′s, so that’s a signficiant swing for me. I have PCOS so my hormones are normally off but in the last year my acne and facial hair have kicked into crazy high gear. Have you heard of this happening for anyone else?

  206. Stephanie on November 14, 2013 at 2:11 AM

    I had Mirena put in at the end of Sept 2013. This affected my milk supply while breastfeeding so at the end of Oct 2013 I started on Domperidone to increase my milk supply. Then on my blood test in mid-November I find out my thyroid is low. My other symptoms include: hair loss, depression, moody, grouchy, headaches, weight gain, cant sleep, increased appetite, no interest in sex, vaginal dryness, sick tummy feeling, exhausted & tired, cant get out of bed, and my 5 month old baby is not sleeping well either. I realized the root of the problem was Mirena, being that the biggest problem for me was no milk. Then I realized that all my other symptoms are probably not just “after having a baby” symptoms. I stopped taking my thyroid pills after 2 days, I stopped taking domperidone, and I am getting my mirena out as soon as possible. I just want my body to go back to normal. I also expelled something that may have been the beginnings of an embryo which made me feel sick to my stomach and I couldn’t sleep. I would advise anyone interested in mirena to pay close attention to symptoms, in fact, I wouldn’t recommend it at all.

  207. bysybee24 on November 26, 2013 at 5:59 AM

    Lord. I just got mines in today. You all are making me afraid…

  208. Elizabeth on November 30, 2013 at 6:45 PM

    Thank you for sharing your experience with Mirena. Now I see someone else has gone through the weight issue, tiredness, depression, migraines, and other side effects that I have gone through for the last 3 years. I just had mine removed after going through 3 years of not knowing when ” Aunt Flo” was going to show up and not having the urge to work out anymore. I figured this was not the birth control for me. Now I am back on the same birth control I was on 4 years ago as I had no weight gain, no mood swings, and no side effects at all.

  209. Renata Otteson on December 4, 2013 at 5:46 PM

    Hi, I just want to say thank you for sharing this. I have the mire a for two years now, and I’ve notice that I been changing a lot, but didn’t know what it could be. I now have a crazy PMS where I literally think that I am going crazy, less interest in sex, not to say non, my poor husband, a smelly vagina, witch I was so ashamed of it and didn’t know what was the cause of it. I used to have a beautiful regular period, now it’s crazy and a mess! I am going to see my doctor tomorrow and take this out to never again!

  210. Jessica on December 6, 2013 at 9:04 PM

    In July of 2012, I was 18 years old and 4 months pregnant. One day, I was at work when I felt a sudden gush of blood pour down my legs. My boss took me to the hospital and I was told I lost my baby. For a few months afterwards, I struggled with infections and constant pain. In April, I was diagnosed with PCOS (Polycystic Ovary Syndrome). My doctor told me the best way to manage PCOS would be to have an IUD. She went on and on about how great Mirena was and how it’d change everything for me. So I was drawn to her simple explanation of what it was and didn’t think to do research on it. I got it in May. While she was inserting the IUD, I was in so much pain I cried. Afterwards, the crampings made it so I couldn’t walk for half an hour. I spent that time curled up on the bed crying. My sister took me home and I went straight to bed. For a few weeks, it became a pattern where I’d stay home and sleep. I was depressed and always hurting. I had heavy bleeding for two weeks with lots of clotting. Three months after getting it, I went back to the doctor and begged them to take it out. Their response was “It’s very normal for you to have severe crampings, bleeding, and clotting. Everything looks fine.” And wouldn’t take it out. So, I went back home. Last week, I started having horrible pain in my pelvis/cervix, my hips, and lower back. My aunt and I figured out it was the IUD. So I made an appointment with my gynecologist. When I went in the room, the doctor came in and went off about how I was being irresponsible about having it taken out because I was in no position to be a mother. I’m deaf, had cancer, and deal with thyroid issues. She basically said I wouldn’t be a good mother. All I’ve ever wanted was kids. I was looking forward to having my baby, before she passed away. I grew up in a huge family and made it a goal of mine to have a big family too. I told her all of that, and she said it wouldn’t be fair to my kids if they got the same things I had/have. I realized she was “profiling”. My sister and I argued with the doctor for about 15 minutes and I told her to take it out NOW. So she did, and afterwards, she said “everything looks just fine. You had no reason to take it out.” I told her it was MY choice and MY life, not hers. She said “you need to find another form of birth control before becoming sexually active again.” I have NEVER had a doctor be that unprofessional and disrespectful towards me. Ever since having it taken out, I’ve had less crampings and my cervix and lower stomach doesn’t hurt anymore. Obviously something was wrong. Screw Mirena.

  211. Linda on December 26, 2013 at 1:29 PM

    Hi There,

    I’ve had the Mirena now for almost 4 months and I HATE IT!! I have had breast pain daily, been to specialists and told there is nothing wrong. I’m tired all the time and can’t focus on anything, not good since I’m going back to school in a few weeks. I have bloating which makes me look pregnant again and some swelling in my legs. I also have more hair growth in weird places that made me feel like I was pregnant, nope negatives tests. I also feel like I have a constant yeast infection and I’m constantly itchy and dry but there’s never any discharge and was told again I don’t know what your problem is. Has anyone had any of these symptoms as well? I was told that these are not IUD related, well then what is it? I am really trying to give it the full 6 months of adjusting but I’m really ready to call it quits!! Please tell me I’m not alone. My dr said it’s not ideal to take it out right now, its not the IUD I can promise you that. Her suggestion for birth control in a very snotty unprofessional manner was, Well I guess we go for a tubal ligation for BC, ummm wait I haven’t decided if I’m done having children yet. Thanks!!

  212. Angela on January 8, 2014 at 1:43 PM

    I had my daughter in Dec 2012 and had the Mirena put in March 2013 after I had a scare and my dr informed me that my anti-depressants for my PPD basically cancelled out the effects of the Pill if I didn’t take them at least 8 hours apart. Being a brand new mom, I could barely remember to take 1 pill, let alone 2 and remember to take the Pill within 2 hours of the same time everyday but far enough away from taking my anti-depressants. I immediately noticed that I losing my period and ballooned up 6 pounds within two months. Now 9 months later, I’m up a total of 15lbs, cannnot lose weight even after hiring a trainer and I’ve slept with my husband maybe a grand total of 5 times in the past 9 months and I’m just the crabbiest, unenthusiastic person ever–nothing like how I was before I had my daughter. Annnnnnd call me crazy, but I feel like I have a wire of something poke me and my husband SWEARS something scratched him one time during intercourse when I was on top. I already had come to the conclusion that my Mirena was the reason for all of this and I have an appointment to get it removed today and then I found this website and I’m SOOOOO glad I did. I thought I was crazy and all this stuff was just my own craziness. I feel so validated and I look forward to seeing what changes will follow after I get this thing out of me. I’ve been off the anti-depressants for three months so I plan on going right back to my beloved Ortho-Tri Cyclen Lo. I used it for 10 years and never had an issue. I will update myself later!

  213. Emma on January 10, 2014 at 3:52 PM

    I am so happy to have seen this website. It validates that i am not crazy. I have put on my second Mirena IUD 6 months ago, after my 5-year-worry-free terminated (which in a way i’m thankful for) i am going through a roller coaster i’m too familiar with. I blamed my mood swings/rages to postpartum depressions the 1st time but seeing everyone’s experiences, i can honestly say that it was caused by my IUD. I cannot blame my current mood swings/rages that i’m experiencing right now to postpartum.

    I am going to book myself to see the Gynecologist to remove this very unnatural device. I am thankful i hadn’t harmed anyone during the past 5 and a 1/2 years of Mirena hormones. I should have looked into such website before using this device. I look forward to being “normal” again and loose my “crazy” label. hahaha (relieved)

  214. Jennifer Brown on January 11, 2014 at 7:06 PM

    I want to tell you my Mirena story It’s still on-going bc I haven’t had it removed yet. But I have a migraine and I feel nauseous so I have to go lay down. I will be back to tell you my experiences.

  215. Jennifer Brown on January 12, 2014 at 5:53 PM

    Well, I’m back to share my story with you. I’ve been laying in bed periodically and popping tylenol to ease my headache. I’m so glad to have stumbled upon your blog. Six months from now will mark my 5 year Mirena anniversary! I have had some serious questions as to why I feel the way I do. I think I put two and two together about 7 months ago. Then I questioned myself as to WHY DID IT TAKE ME SO LONG TO FIGURE IT OUT?!?!?! I really am upset with myself for not being more in tune with my body.

    I have had all the same symptoms as you, except I did not experience any pelvic pain or bloating. I have had a MAJOR increase in vaginal discharge though. I think that has been the most discouraging part of it all. It becomes very bothersome and causes me to feel down. Almost like, I’m not clean enough, I’m disgusting, do I smell? It really makes me feel insecure. And I’ve battled it the last 4 years.

    I may have had some pretty lonely and depressed days but I never let anyone see that side of me. The people in my life do not know I have been having mood swings and anger issues because I have kept so much of that pinned up inside me. Showing them that side would be a sign of weakness, IN MY MIND! I’m stubborn and hard headed like that =) But I do feel that pinning it up inside has only damaged me.

    So a couple months ago I opened up to my husband and told him how I felt and how I believe the Mirena has caused me to feel the way I do. I just wanted to feel normal again. And he completely understood. Then, I laid a big one on him. I told him I did NOT want to have any more hormones in my body. For over 10 years I’ve subjected my body to hormones and I am done. No more Mirena, no more pills and condoms were out of the question.

    Last month he had a vasectomy. He was a trooper. I am so thankful for such a willing and understanding husband (because he understood there would be no sex unless he got snipped). I’m anxiously waiting for that 3 month mark when his doctor says we’re in the clear. Then it’s off to the OBGYN I go!

    Thanks again for sharing your story. Even though I had already made my assumptions about the connection between me and the Mirena, it’s nice to hear I’m not alone. And we really aren’t crazy!

  216. Kari on January 15, 2014 at 3:26 AM

    Charlotte, I started to read your blog post and could have SWORN it was me writing it. I Have had the Mirena since December 2011 and since then it have come out while using tampons not once, but TWICE. The first time I had it put in the doctor told me that tampon use was totally safe and that it wouldn’t pull the Mirena out. So when I went in to have the second one put in (August 2012) I explained that my tampon pulled it out. She again told me it wasn’t possible, but to help calm my fears she said she trimmed the strings shorter. So, here I am 5 months later and my second Mirena came out Sunday at the same time that I had removed a tampon.

    I decided to go with the Mirena because it was the best of 3 options for my health issue. I have what is called Dysfunctional Uterine Bleeding. Basically, I start my period and it doesn’t stop without some kind of medical intervention. In the last 8 years I have almost bled to death 3 times. So, when I got that diagnosis I was told that my options were Mirena, ablation, and a hysterectomy. Since I was only 27, newly married, had 1 child, and my husband and I both wanted 2 children, ablation and hysterectomy were NOT an option. What am I going to do now? Well, I have a friend who sells and uses doTERRA RELIGIOUSLY and I have started using some oils that help control bleeding. My husband and I are going to try and get our baby #2 and then after that we will decide to do either the ablation or the hysterectomy. Mirena will NEVER be back in my body.

    So far in the last 3 days I spent 1 day crying at least 2 times an hour, my jeans fit better, and my husband can get me hot with just a kiss. His kisses haven’t done that in, you guessed it, OVER 2 YEARS!! I also feel clear(er) headed than I have in a VERY long time and its 1am and I am wide awake.

    I have been EXHAUSTED for over 2 years. I have also been struggling with weight loss. I have yet to get below the weight I was at when I had the Mirena put in. For some people that might now be much of a problem, but when you are over 100lb overweight it is. Its not easy to lose weight to begin with, but add in the fact that at over 200lb you hit a wall and can’t keep losing is HORRIBLE. Now I think I know why all of this has been happening and I am on the road to correction.

    Going through the list of side effects you listed I have the same ones plus
    Changes in bleeding.
    Acne
    Heavy or prolonged menstrual bleeding
    Vaginal discharge
    Nausea
    Nervousness
    Back pain
    High blood pressure (I have ALWAYS had a BP on the low end of normal. Even while pregnant)
    Anemia
    Expulsion

    Thank you so much for posting this blog. Reading your blog has really helped me feel like I made the right decision to not have it put back in. I would really love to know how things are for you now.

  217. Paula B. on January 16, 2014 at 9:07 AM

    My main reason for getting the Mirena is heavy periods, and it was helpful to read Jennifer Hoffman’s experience. I’m having many of the symptoms everyone else has, but because I’m 48 other factors are coming in to play.

  218. pippi blondestocking on January 22, 2014 at 4:42 PM

    Urban Mama, I found your posts a couple of weeks before my IUD came out in October 2013. I had it put in September 2012 and I was a normal, healthy, slightly-overweight 28 year old woman with very regular periods on Yaz. I was the perfect candidate, even with my hypothyroid. I don’t want to have kids until I am established in my career, married, and financially stable, so I have a good four or five years before I think about little ones. Semi-permanent birth control sounded awesome!

    Fast forward to April 2013, and I had put on 20 pounds with cystic acne! My libido was gone, I was constantly fatigued, and I was severely depressed– suicidal, even. I had never been more anxious or upset, and I’ve had OCD since I was a teen. This was a whole new level of “crazy.” My thyroid levels plumetted. I blamed my very stressful job, my difficult living situation, my poor lifestyle… but that wasn’t it! (For the record, my dad insisted it was the IUD the entire time and drove me to the doc to get it removed. He’s a smart guy.)

    I spent the summer starving myself to lose weight and seeing the dermatologist every other week. Nothing worked. After a nasty yeast infection– caused by my acne antibiotic and exacerbated by the IUD– I’d had enough! My ob/gyn said the IUD wasn’t the root of my problems and said I was fine. Well, I started Googling my symptoms, and I had every single one! It felt so good to not be alone!

    I had it removed in late October 2013. My new ob/gyn agreed the IUD was the problem, took that bad boy out, and put me back on Yaz. My acne cleared up in two weeks and I have lost 16 pounds (yes, even during the holidays!). My mood has stabilized and my libido is back. And, best of all, my 28-day cycle has returned. I’m living a more natural, organic, healthy lifestyle.

    I really hope the IUD didn’t harm my fertility or ability to have a normal pregnancy or healthy babies. I wasn’t thinking when I got that thing! Doctors should warn women more about the risks and side effects!

    I just wanted to thank you for opening my eyes to the facts– I’m a science-driven person, and I was starting to feel like a “hippie.” Of course, reading more of your blog kind of makes me want to be more of a hippie! I’m trying to listen to my body more.

    Anyway, it just felt great to come to this safe space and be surround by strong women who experienced my pain, and become stronger as a result. Thank you for sharing and thank you for this forum.

  219. Ria on January 23, 2014 at 3:51 PM

    Thank you so much for this blog and all the comments. It is good to know that you are not alone.

    I had the Mirena IUD inserted May 2013 due to being pre-menopausal with heavy periods and fibroids. Until November everything was fine and I had no side effects other than tender breasts. This seemed to be a small price to pay for light periods.

    Six months after fitting everything changed and I started to experience severe bloating (I normally have a pretty flat tum), painful/restless legs, anxiety, nausea, feeling low and disinterested in doing anything, spotty skin (for the first time in my life at 50!!), headaches and severe brain fog.

    I have booked an appointment to see my GP and I am going to have it removed.

    Just hope I don’t have too much of a ‘crash’.

  220. Christie on January 25, 2014 at 4:15 AM

    WWWWEEEEEELLLLL>>>>

    Haven’t i got a story for u. 12 years ago i was 21 and still a virgin. I met a guy and discovered i liked sex. So my gp put me one the IMPLANT, the 3 year rod that goes in your arm. I went through the first one (and bled more days then i didnt) and was a year into the second when i decided enough was enough. I went onto the pill for 3 months then had the Mirena put in. I am in my 5th year now and for about the past year been complaining about the cramps in my abdomen and pelvic regions. I get no bleeding but have the following:
    Severe bloating ( i look like i am 6 months preggers)
    painful/restless legs ( particularly at night in bed)
    anxiety
    nausea
    Acne
    Back pain
    Weight increase
    Decreased sex drive
    Pain during intercourse
    Swelling of the hands/feet

    This week just gone the gp FINALLY ordered ultrasounds on my abdo & pelvic regions and they found a 5cm cyston my right ovary.

    I pray that THING hasnt wrecked my fertility as i am planning a baby with my partner now.

    So please think this through before u get it in.

  221. Savi on February 13, 2014 at 5:50 PM

    Wow. So glad to have found this blog. I went on to research more about Mirena as I have been having super strange symptoms in the last month- I just had it inserted mid-January. Almost immediately I started having headaches- I never get headaches, so I found this odd. They have been dull and almost daily. Then I immediately had the feeling of being bloated, full, puffy in my abdomen- almost right after insertion. I thought these were all “typical” issues with my body getting adjusted to something foreign inside it. My period started this month and has gone on & on & on & on…I am on day 11 of it, pre-Mirena I had very light bleeding- maybe 2 days with no cramps. Now, I feel constant pain in my abdomen, dull stomach pain, and the first ever- acid reflux! What? I have always eaten super spicy food, chocolate, red wine, and NEVER had acid reflux. All of the sudden in the past month I have been having VERY painful acid reflux. I thought it was so weird, but I definitely would not have correlated that to my IUD. After reading these posts- nothing else has changed in the past month except the IUD and now all these weird issues.
    And worst was 14 days after insertion, I woke up one morning and had severe cramps & pain, felt nauseous,chills, dizzy…I thought I must have food poisoning or something. I was driving home and the pain was severe- breathing heavy through my mouth- deep sucking breaths- and I fainted! Yes, while I was driving. Thank goodness I ran off the road into someone’s bushes and was not hurt. But was scared to death. Went home & got in bed waiting to have “food poisoning” hit and it never did. But the pain in abdomen continued, the chills, the nausea…finally went to Urgent Care when I started to think- what could be causing the cramping & pain? Only thing that had changed in last 14days was Minera. Read some of side effects and decided I must have a pelvic infection- Urgent Care stated me on IV and antibotics & got me stabilized. Next day I went to my OB- had an ultrasound and found out I had an ovarian cyst that ruptured! I have NEVER had a cyst before- and just 14 days after having the Mirera…
    I still have been having the bloating, bleeding, headaches- and has only been a month. I am somewhat freaked about the possibility of another ovarian cyst rupturing as I never want to go through that again…yet one side effect is listed as ovarian cysts (that they add- usually go way on their own)…I don’t want to wait for these symptoms to get better once my body adjusts…I don’t want to find out they don’t get better and only increase & add acne, weight gain, and loss of libido as well.
    Forget it. I am getting this thing out and having my fiance (who offered 2x) to get snipped. I NEVER want to go on HBC ever again!
    Thank you for your posts- glad to read this only 1 month into my “it’s normal” phase, because it is NOT normal for me!!!

    • rachel on February 17, 2014 at 8:26 PM

      The part about your car accident is so scary! Glad you’re okay.
      I had my baby in July of 2010 at the age of 18, after getting pregnant using the try cyclin birth control pill. In April of 2012 i decided to get this IUD without much research (BAD IDEA). I Had my period for 10 months straight which my OB said was completely normal but it was definitely annoying as hell. When that finally stopped, I still continued to get my period randomly for anywhere between 2-8 days whenever it felt like coming. ESP on my wedding night! So pleasant. After almost 2 years of this thing in I’m ready to have it out. I called my OB January 4th and my apt isn’t until MAY 19TH! so upset about that. In the past 6 months i’ve experienced almost all the side effects possible and I’m worried it’s going to decrease my ability to have another baby with my Husband.
      -Headache
      -Acne
      -Depressed mood (SEVERE MOOD SWINGS)
      -Heavy or prolonged menstrual bleeding
      -Vaginal discharge
      -Breast pain or tenderness
      -Nausea
      -Inflammation of cervix, vulva or vagina
      -Pelvic pain during your period
      -Back pain
      -Weight increase
      -Decreased sex drive
      -Pain during intercourse
      -Feeling bloated (all the time!)
      -Yeast infectons
      I’ve been experiencing “stabbing” “shooting” pains down there, and my OB says it’s normal to have those with Mirena… they lasted for three days and would stop me mid activity because they were so painful. Since getting this I’ve been craving chocolate and everything bad for me and have gained SO MUCH weight. I never had a sweet tooth before and was a healthy weight when i had this put in. Now i will do anything for ice cream and carbs and it’s out of control! Apparently its because the IUD is making your body think you’re pregnant so you crave things like you are! Also since insertion.. I have constant bladder leaks and its REALLY embarrassing. I can only attest this to the IUD since I am a healthy young woman and had absolutely no problems with this pre-mirena. Anyone who asks about this I give a thumbs down! there are better contraceptives out there and in my opinion this should be avoided at all costs. It may work for some… but it sure isn’t working for me! If you start getting more of the symptoms i would recommend you getting it out because it will only go down hill! Thanks for sharing your story.

  222. Veronica on February 26, 2014 at 4:50 PM

    I’m so glad that I found more women going through the same thing that I am going through. I had my Mirena inserted 5 months ago, per the advice of a friend who works for Planned Parenthood and my OBGYN. Everyone kept telling me it was a miracle form of BC, so easy! No side effects! Not for me. I’ve been spiraling into a deep, deep depression ever since it went in. Suicidal thoughts, constant anxiety, uncontrollable crying, the whole bit. Plus: unexplained weight gain, thinning hair and zero sex drive. It’s been really rough. I just had mine removed today and my OBGYN was suspicious, but in the end took it out per my request. I’m already feeling better, it might be psychosomatic, but I felt better about 15 minutes after it was out. Here’s hoping I stay better.

  223. Saundra on March 14, 2014 at 9:59 PM

    I HATE IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! IT’S COMING OUT ON MONDAY, AND I CAN’T WAIT!!!!!!!!!!!!!!!! I NEED MY LIFE BACK THE WORST 4.5 MONTHS OF MY LIFE, A COMPLETE SET BACK ON MY 65LB WEIGHT LOSS THAT I’VE MAINTAINED FOR TWO YEARS BEFORE FEELING SO BLOATED I THOUGHT I WAS GOING TO POP!!!!!!!!!

  224. Tara on March 20, 2014 at 10:39 PM

    So, I’ll be 26 next month, I had Mirena put in ~7 months ago…
    I am the smallest I’ve ever been, I don’t have a period, the cramps I had during my periods are gone, I feel less ‘depressed’ than I have in a few years…
    Did Mirena do this? Maybe. More likely it’s because for 11 years before getting Mirena, I was on “the pill”. A MUCH higher dose of both estrogen and progesterone-type hormones. So when I switched to Mirena, it was practically like going off the pill, except for the minor traces of hormone still in my body. But this time at the source rather than going through my digestive system.
    I’ve known plenty of “depressed” girls on “the pill”, but I don’t blame the artificial hormones entirely. If you’re a teenager, 20s smthg, or new mom, I can almost guarantee your moods are from your own hormones. But putting nothing else in your body won’t help.
    But, if you’re decidin which is better, “the pill” or an IUD, then hands down I say IUD.

  225. Tara on March 20, 2014 at 10:43 PM

    Oh and I forgot to mention, reduced libido is a common side effect of ANY hormonal birth control. But the higher the hormone levels, the worse its affected. So in my opinion, choosing the option with the lowest dose, Mirena, is the best way to go all around.

  226. kim on March 24, 2014 at 7:36 AM

    I have had the mirena in for about 7 months. I got it be aide my Dr thought it would benefit me. I had really heavy periods bad cramps and headaches and i would get it between 24-32 days and had heavy bleeding 6 of the 7 days i had my period.My dr thouhtthis was my best choice. Right after getting it I had spotting for 2 days. But no cramping or anything. The first 3 months were great I would get my period every 26 days with a heavy flow for 3 days then medium for 3 days and spotting the last with no cramps or headaches. Then on the 4 month I got my period I had a heavy flow for 5 days then an medium for 3 days and spotting a day. The cramps And headaches came back and now I get it every 24-26 days for 9 days like the fourth month. I get lightheaded a lot and I ne er seem to feel Full even after eating a good meal. I am tired all the time and have trouble sleeping. I am also ever moody and get so angry sometimes over little things that it scares everyone. And now the last month I have been having lower stomach and lower back pain. It never goes away. I went to my Dr because of the pain and because I can’t find the strings. Had a ultrasound the strings are tucked up high but the iud is in its right place. But I had a large ovarian cyst rupture that they say is causing the pain. But now I am having stabbing pains on my left Ans right side where my ovaries are. The Dr said its just cyst and that in 6 weeks I have to go get another ultrasound to make sure they are going away.I never had trouble with the pill. But I wanted to try this because I forget to take the pills. But I wish I never did. Its causing more trouble then good. So I am just going to get it removed and hope everything goes back to normal.

  227. kim on March 24, 2014 at 8:30 AM

    Oh I forgot to mention I have hairloss and I have been having more acne problems then when I didn’t have mirena. i also never had trouble with cysts. And the ruptured cyst is still 2.5 cm big yet and now I have bloating. And I am always craving sweets and started loosing Weight last January and since I got mirena I am at a stand still.

  228. Ashley on March 24, 2014 at 10:16 PM

    I’ve spent hours reading this website and every ones comments . I’ am 25 years old , I have had one IUD in and taken out after the whole 5 years was up and in October of 2013 I got my second one in . I love my IUD . I love having light periods if any at all .. my hair is not falling out any more than a normal rate , I eat terribly and have gained weight simply from being stuck in the house all winter and not being outside and active. I weigh 123 right now when I usually weigh 115 . I am tired a lot but mainly from boredom, If I am not bored I don’t see any difference. I’ am a night hawk and cannot fall asleep at night but that’s no different than before my IUD. I have small fits of depression but nothing crazy just from the normality of life’s stresses. I think that too many of you are letting the internet get the best of you . I understand that everyone know their own bodies but I can say that I know the IUD is good for me and I have not had any problems and every one is affected differently so don’t think I’ am being insensitive . I could easily sit here while reading all this and be like omg maybe its the IUD that’s making me eat like crap , not exercise , gain a few pounds, clog my drains with hair and be tired some, depressed and have no sex drive. I have a great sex drive might I add and when it all comes down to it .. I would rather have my IUD then have another unplanned child . I don’t want everyone to be so quick to blame the Mirena when things are changing in their body. I just think that if you are having excessive headaches you can go online and read anything and convince yourself that’s what its from .. do I need to give more examples of reading to much into something and being paranoid?

  229. Felicity on April 2, 2014 at 11:05 AM

    Hello Ladies!

    I am also so glad I found this post. My Issues go back a few years. I got pregnant when I was 19 and 6 weeks after I had my son, I decided to get the Mirena IUD because it seemed like the easiest route and I will admit was happy to hear that I may not have periods at all, which that part was true.

    I have always been a huge worry wart and as my husband would like to say a “hypocondriac”. So about 2 1/2 years into my IUD, I noticed that I would all of a sudden, get heart palpitations and numbness and the feeling that I can’t catch my breath and dizzy…almost like I was going to pass out. This happend a few times within about 6 months. I was concerned about it of course, but didn’t want to mention it to my husband because I would sound crazy. I thought maybe a brain tumor or something else, I never linked it to the IUD. So fast forward another year (3 1/2 years in with the IUD); I was laying in bed one night and BOOM, had a major major Anxiety attack. It was super freaky, I thought I was actually having a heart attack, but I was only 24…no way right?! So I finally was able to fall asleep, then the next morning on my way to church, BOOM got another one in the car and I had my son with me…felt so scared that I was going to crash! So I decided to go to the quick care, they took blood to test thyroid, took an EKG of my heart..all normal. They just said you have anxiety. Well, I didn’t beleive them so the next time it hit (a week later) I made my husband take me to the ER; same thing took blood tests and EKG but also chest xrays…everything normal. They chalked it up to anxiety and gave me Ativan. Everything continued to go downhill after this….I missed 2 months of work because I could not function, I got super depressed…a very scary dark place. I did not enjoy anything…my son..my family..life. It was terrible. I went to my family doctor and he prescribed me Zoloft. It helped get me out of a hole, but I still dealt with Anxiety, severe moodiness, foggy head…headaches..fatigue..loss of interest in sex. Let me tell you the past two years have been so so so rough. Finally last year in September, I had my IUD removed, thinking well maybe that is causing it (by that time my anxiety/depression was so bad, having it removed did nothing).

    My husband and I needed a natural way to help with my Depression and Anxiety, so we went to Arizona and visited a Naturopathic Dr. He said right away he truly beleives that it was my Mirena IUD causing me all this pain and suffering for the past 5 years. He helped me balance out my hormones, to a point where I felt better (not 100%), but for me wasnt enough, so earlier this year went back on to Zoloft….I finially am feeling closer to my old happy, loving self again.

    I just strongly believe the IUD is causing so many women undesireable issues physically, emotionally and mentally. It took me 5 years to really ralize that this little tiny bugger caused my issues; I don’t care what people say, its not just ME.. I am NOT crazy; the unnatural little device is to blame. I strongly advise women to seriously research any type of birth control or just stick to condoms since they don’t alter anything (or no sex, if you aren’t in a relationship) :) :)

    Thank you again for this post; it solidifies my belief that the MIRENA IUD is not a good birth control option if you want to keep your sanity!

  230. laura on April 9, 2014 at 10:19 PM

    I finally got my Mirena IUD taken out today! Hooray! Here’s to hoping the crash is not a bad one. about 6 or 7 months ago I started having severe anxiety, about the same timeI was having issues with spotting and cramping headaches, heart palpitations,Etc. the heart palpitations were from the anxiety but I suspected that something was going wrong with my IUD. Of course when I mentioned it to my doctor he dismissed that theory right away. And I was put on meds for anxiety… Big mistake I started having issues, mental issues that I have never had before. So I got of those pills and started using essential oils for my anxiety. That has seemed to work for a little while,however recently I have been having PMS symptoms and spotting about every two weeks for the past couple months. I finally decided that I’ve had enough especially since it seemed like every time I was having the spotting issues my anxiety was heightened, hmm…I finally had one doctor tell me that yes it was a possibility that the IUD and have an effect on my anxiety as it has an affect on your hormones. So, it taken out and I’m hoping that use of essential oils and hormone supporting vitamins and supplements and herbs Will help me to cleanse/detox my body and also bring my body back to normal hormonal balance. I will never recommend the Mirena to anyone. even if I did have anxiety Before the iud or if it was postpartum, I feel like the IUD made it worse and we’ll see if it gets better after this removal. I have never had anxiety before in my life before I got the IUD. Not to mention a whole bunch of other awful symptoms… PMS, acne, hair loss, headaches, etc. thanks for your post and you’re follow up after a year it gave me Encouragement to go ahead and get it taken out.

  231. michelle on April 10, 2014 at 8:53 PM

    Hi Ladies
    I have had three operations for endometriosis over years. I am 40 and have been with my partner for 17 years with no children yet. I have had this rotten Mirena for a month, past my last laperoscopy this year in middle of March, in which was lasered and cut to remove exessive tethering. I have been in and out of hospital for stomach and back pain post operative. My gyno says that it is normal, but the weird period pain now, is “exessive tugging downwards”, rather than cramping. Yes I have felt bloated, but also loss of apertite and then weird wanting to eat later at night. 16 days of continual bleeding, is not “normal”. Rather it is driving me insane. I have had so much time off work, post surgery for stomach and back pain (that has nerves that go into my butt, and down my legs). I have had some short term relief from this seeing a Chiropractor (I felt 70 percent better and could work)and Acupuncturist/herbalist that I can rely on. The Mirena will be coming out on wednesday. Thankfully I cant wait for post symptoms. This Mirena “feels foreign”. They say you can’t feel it, and yet my body says “reject, reject, reject” I have lost my sex drive including if my husband goes to kiss me or cuddle me, I feel dead to him, it is a loss of love and sex. I have had one go with IVF. (Never again)I am going to have more acupuncture and more chiropractic to increase my chances of children and to reduce two days off every month and future surgery. I have been taking copius amounts of iron but feel exhausted. The two other alternatives have helped heaps, i cant stress it enough. There are options, but western medicine, have side effects, and I believe after reading all these post threads that there is some kind of drug company conspiracy to train gynos to believe that this is “normal” and to promote it. I long to have my two days off again every month, rather than be subject to being lab tested but not listened to. Good luck out there…hope this helps!

  232. T. Davies on April 14, 2014 at 3:58 PM

    Quick question. My wife had the IUD implanted after our first child was born. It had to be removed due to excessive bleeding and a tear. She started bleeding and we were concerned after a fall with our newborn baby in the shower. She said she fell in the shower with our daughter on her stomach. When the IUD was removed, the doctor said she had a 1.5 inch rip in her uterus. I just happened to be away for business that weekend. Is this the likely cause or is it more likely that she had intercourse with somebody else and caused the tear…I’ve had my suspicions lately…Thanks
    Concerned husband!

  233. Zen on April 22, 2014 at 1:12 AM

    I am a mother of two children aged 3 and 8 weeks. I had my mirena implanted less than a week ago. I had postnatal depression after my first baby and was determined to not get it again this time. I go to the gym six days a week to combat depression, get adequate “sun time”, I eat well and I try to sleep well. This past few days I have really struggled with my mood, I have been very low and I can’t seem to get going. I cry all the time and cannot cope with my three year old. My baby is incredibly placid and easy but I can’t shake the thought that he hates me. I think he wishes he had a different mother.

    I feel like I was in control until I had my mirena placed and now Im in free fall. Its terrifying. I regret getting it.

  234. karnold on May 1, 2014 at 4:59 PM

    Thank you I thought i was crazy but will be booking an apt to get this thing out.

  235. Leslie on May 2, 2014 at 1:43 PM

    Thank you so much for this. I have had my Mirena for just over 4 years. In the last couple of months I have been noticing that my period has been returning more frequently and has become much heavier. (i.e. I now need more than just a pantyliner) I have also been experiencing cramping for the first time. Right now my period is coming every 3 weeks and lasting for a week. This is crazy! I also wasn’t aware of the depression side-effects until reading this. I have battled mild depression my entire life. I’m wondering now why my doctor would have recommended this to me. No wonder I’ve been having a hard time the last few years.
    My problem is that I have had problematic experiences with other forms of birth control. As a single women who is sexually active, the IUD felt like the perfect back-up to using condoms. My daughter was a result of an unintended pregnancy with my ex-husband.
    Does anyone have any suggestions on other forms of birth control that won’t make me gain weight (I haven’t had that issue with Mirena)and that are easy to maintain? I’m scared that I would forget to take something and the nuvaring was a total joke.
    Thanks so much!

  236. laura on May 7, 2014 at 3:55 AM

    Thanks for this post. I have mirena for almost 4 years now. I totally subscribe the lack of libido and the tiredness. I do have abdominal pain and feel bloated too, but I can’t be sure whether it’s Mirena-related or it comes from my lactose intolerance. Today I had my annual and my Gyn found a 5cm cyst in my left ovary. I will have a follow-up US in 4 months: he says he’s seen it a lot in Mirena ladies.
    I am really bothered: the cyst does not affect me, but I wonder since when it’s there and whether it will go away at some point.
    Last year I told him about my lack of libido and he thinks it’s caused by me being a stressed out working mum… I am really tempted to get the mirena out, but the gyn makes me feel paranoid about my concerns. I am glad I found out that a lot of ladies out there complain about the same things and I am really annoyed that so many practitioner are so deaf to our reports. How much money spends mirena in PR-work with GPs and Gyns?

  237. B.White on May 25, 2014 at 2:40 AM

    I am so happy I found this! I have had mine in for four years. I have gone through everything you talked about and almost all of the side effects. My depression has gotten to the point that I am questioning my sanity! I am getting this thing out of me! No doubt it did it’s job, but it’s not worth the pain I have gone through over the last four years!

  238. J.A on May 30, 2014 at 12:42 AM

    I am glad to hear people having same issues as me. I had Mirena inserted a year ago and it’s been hell for my life! Nausea, bloated stomach
    headaches,insomnia,anxiety,cramps
    irregular periods lights&heavy for over 2weeks every month,depression,mood changes,no sex feelings! But the last thing that made me decide to remove mirena was that I was losing control of my patience with my kid. I started to hit him hard because I felt anxious about noise, leaving him scared and bruised. This freaking device is not gonna make me make something stupid against my own kid so I will have it removed next week. I feel sad and guilty of my actions of desperation against my kid. I would never do anything to hurt my own kind. Ladies we suffer a lot in life and we protect ourselves from so many things but just because you don’t want to get pregnant doesn’t mean you have to deal with dangerous anticonceptive methods that could make you lose your life. Enjoy life is too short to suffer! If it doesn’t feel right then let it go is better to be safe than sorry!! :-)

  239. clara on May 31, 2014 at 11:14 AM

    Oh my gosh I thought I was going crazy until I stumbled upon this site. I had mine inserted after my daughter and the first 2 and a half years were fine but now im fatigued, my breasts hurt 2-3 weeks out of the month, i get mood swings, cramps, sometimes a little bleeding, not too much sex drive. I didnt think that after a few years I would get side effects, i figured that wouldve been something that happened within the first few months. Thank you for sharing your story so I know I am not alone and going crazy <3 I have a gyn appt 6/16- goodbye mirena! And thanks to all the ladies for being so open and honest!!! Such a hard thing to talk about!

  240. diamondcut on June 1, 2014 at 1:07 PM

    omg, thank god ive just read all that.
    i am at the moment sat in my car (parked up) feeling as though i need to sleep and ive just had a nap 2 hours ago. i am exhausted and with that i feel as though i want to cry every 5 mins. my husband is feeling this first hand (as i have just slammed phone down on him, although cant remember having a reason for this). cant make up my mind whether i feel suicidle or want a divorce haha. joking aside ive had the coil in for 3 months and it was fine up until about 4 weeks ago. i have to get up in the morning and take pain killers for the migranes, which are unbearable, often with a stabbing pain. the depression is awful, yet i fail to understand why they would give me something which causes depression seeing as ive had it in the past.
    the fatigue and feeling exhausted is exactly how uve described it. ive never felt so drained ( kinda like something is sucking the life out of you) i also get lower back pain every now and again.
    hypochondriac or what? or so i thought till i started reading about the side effects. my poor husband thinks ive gone off him due to me not wanting intercourse. im making an appointment this week to get the dam thing taken out. i would honestly go through child birth than spend my life like this.

  241. clara on June 5, 2014 at 8:46 AM

    Any experience any dizzy spells or just not feeling “right”?

  242. sobia nawaz on June 5, 2014 at 9:02 AM

    got the “not feeling right” forgetfulness and like something was wrong, or i was teminally ill or something. so glad ive replaced it with the copper iud :-)

  243. lifeintheespressolane on June 6, 2014 at 8:54 AM

    I have had the Mirena IUD in my body for around 1 year and 4 months. I have gained around 40 pounds during this time and have not changed my diet in any way. I also am having issues with trying to lose the weight. I can eat a 1200 calorie day (or less) with working out and still weigh the same. I have battled with depression more than I ever have, I am easy to anger & emotional. I am swelling nonstop. I also have started growing hair on my chin (never had this kind of a issue before). Also have had acne that I never had issues with before. My energy level has gone down so much. I am 34 and as soon as I get off of work and pick my 7 year old up I feel like going home and just passing out. I feel like the worlds worse mom because I just do not have the energy to do anything. Before I had the IUD put in I also was an obsessive cleaner, I know that sounds weird when I say but I have just sat and watched laundry pile up because I was way too exhausted to fold it and put it away.

    Then came all of the test… My GP was so worried because of the insane amount of weight I have gained that he started testing me for anything and everything. Thyroid is perfect, I am not diabetic, my hormones seem to be in check according to blood work, and last but not least I have been tested for Cushing’s Disease (scary). Anyway I am clear on everything. I never thought it could be the Mirena till I started having insane pain and had to go to my OBGYN to see what was wrong. My IUD is in the right place but they found a cyst on one of my ovaries. I stared wondering just what in the heck was going on because I know something is wrong with my body and it is making me even more depressed not knowing what is up. Then I started reading everything I could about my IUD…. OMG the side effects that this thing can cause that they do not tell you when they are trying to sell you on getting it put in. I am having it taken out next week. So so happy and hopeful that this will be the answer.

    • clara on June 6, 2014 at 9:03 AM

      I have had every test under the sun it feels like and i have been so tired I can barely make it through the day. How long does it take for the effects to get out of your system and you start to feel better?

      • lifeintheespressolane on June 10, 2014 at 11:20 AM

        Hey! I am not sure… I just had mine removed (like 1/2 hour ago). The removal was not bad at all but now I am cramping like crazy. I will keep you posted on my progress on energy, weight and all that stuff.

  244. racheal chase on June 11, 2014 at 1:21 PM

    hello everyone. I have had the mirena since sept 2009. I was pregnant with twins before and still wanted to brest feed but did not want to get pregnant again, so we decided to go with the mirena. now that I look back at my symptoms I can say I have only had a few. They would have to be the migraines and a few cramping. Not so much a period at all. The major one for me is I have totally lost my sex drive.. my husband is going crazy, he says there is a lack of passion in the bedroom. But by all means we do have 2 — 4 1/2 year old twins running around the house. But my 5 years is up in September. so im probably getting it taken out but I don’t know what else besides the normal for not getting pregnant to do.. :(

  245. Elle on June 26, 2014 at 11:06 PM

    I’m so glad I found this site! Two days ago I received a call that my mammogram came back with some “issues” so I go in for diagnostic testing. Today I learned I have an ovarian cyst which is the cause of the shooting and deep pains I have been having. I am 44, single and do not have sex unless I am in a relationship. I got the mirena “in case” and because my insurance was ending (I’m now insured again). My doc also said it was good to help my heavy periods and would soon be pre-menopausal. The first month I had excruciating cramps – that would almost drop me to my knees but she said that was normal. Since they subsided after 30 or so days I stuck with it. Now reading these posts I realize my inability to lose weight and lack of motivation or feeling “good” might very well be from the mirena. I am typically a positive person and there have been some stressors but this overall feeling of malaise has been going on too long. My skin all over is rough and I get blemishes on my body randomly. Since the cyst came about it has gotten worse. I honestly feel as though my insides are rotting and I’ve been very afraid about my health – a feeling I have never in my life experienced (despite several surgeries and accidents, etc). I am glad my chiropractor (yep, a D.C!!!) recommended the ultrasound, called me immediately with the radiologists results, and told me to call my primary care provider to get in immediately. My appointment is tomorrow morning and I’m going to insist on its removal. I have no need for B.C. and to endure these issues just for a lighter period is SO not worth it! Thanks and best to you ALL!

  246. ANC73 on July 7, 2014 at 7:08 AM

    Thank you Natasha and all of the woman who have posted to this blog. I am sorry I didn’t see it before I had my Mirena inserted last week.
    I have a very rare autoimmune disease (have been in REMISSION for almost 2 years) and a very larger hemangioma on my liver so I cannot take oral contraception or any kind of birth control with estrogen. So my GYN and I thought this would be a great option. I read the pamphlet and did some research online (obviously didn’t search for the right topics) and decided to go with it. Every day since the insertion, I have been feeling progressively worse. I am convinced that Mirena has caused a flare-up of my autoimmune disease. My symptoms include: tingly arms and legs, lower back pain, low grade fever at night, night sweats, rash on legs, labored breathing, and fatigue. I called my GYN this morning and am having it removed tomorrow afternoon. I am hoping that I will not have the crash, as it has only been in for a week.
    Thanks again for the insight!

  247. Starcie on July 8, 2014 at 7:33 AM

    Your symptoms sound exactly like my hypo thyroid disorder, prior to taking LEVOthyroxin. Wonder if it’s related.

  248. busy mom on July 13, 2014 at 9:22 AM

    i have had all these symptoms as you plus some I read there. im going to get mine removed and just get a tubal I have 3 kids and the youngest 2 are twins id say I have enough.

  249. Aurora on July 16, 2014 at 3:42 PM

    Omg i just got it put in end now i have a migrane. Never had i had one. I use to think people exaggerated when they said their head is severely hurting. I call my obgyn. He says its too early effects to kick in ck i

    • ANC73 on July 17, 2014 at 4:26 AM

      I had the migraines too… They disappeared hours after I had the Mirena removed. And I haven’t had one since. What I can’t seem to shake is my autoimmune flare up and it’s a week since I’ve had the IUD removed. I would hate to have to go back in prednisone because of this!

  250. TeeJ on July 17, 2014 at 8:18 PM

    I’m on my 2nd Mirena, 3rd year into it, so a total of 8 years (had the first one about 3m after our daughter was born). In the beginning, I never really paid attention to the possible side-effects, none stood out for me enough. It wasn’t until I recently considered doing the Essure procedure that I stumbled on more stories regarding Mirena. I wasthisclose to having the Essure procedure done but thankfully I backed out that very morning, my instinct was too strong to ignore, was literally screaming at me. Sorry, not to get started on Essure, but it’s what led me here anyway :)

    I’m almost 43 & my hubby just had the Big V done, so I now want to rid my body of the hormones; “But they’re low hormones” says my Doc, lol. I love my doctor though, wouldn’t trade him for anything. It’s been nice not having periods or cramps, but something doesn’t feel right. My main issue would be weight, just can’t seem to get back to ‘normal’ (about 135′ish) despite the exercise I get daily via work & I don’t eat horribly. Factor in minor moods, hair loss, decreased libido & sluggishness (surely this is compounded with my job activities). Fortunately, no headaches, etc.

    I’m going to have it removed on the 24th. I’ll try to follow up, I need to pin/bookmark this page :)

  251. Alicia L on July 24, 2014 at 2:11 PM

    “And here is something else I did not know. The hormone used in Mirena is called Levonorgestrel and is often referred to as a ‘progestin’, which kind of sounds a lot like the naturally occurring hormone progesterone right? WRONG. Levonorgestrel is a hormone disrupter and has the opposite effects as our own progesterone (which only makes sense really given that progesterone is often called the ‘pregnancy hormone’). Levonorgestrel is also the active ingredient in the Norplant birth control implant (which is no longer available in North America) and also at higher doses is the drug that makes up the Plan B or ‘morning-after’ pill(s). Huh? The things they don’t tell you about at the doctor’s office….”

    You might want to check your research again. Levonorgestrel is synthetic progestin, which is used in almost every form of hormonal birth control available. It’s in the pill, and in much larger amounts. I was taking Alesse daily, the lowest dose available, which has 0.10 mg (100 mcg) of levonorgestrel in it. When a woman takes oral birth control, the progestin is in her bloodstream and thus her entire system. By contrast, the Mirena releases only 20 mcg daily (that’s 80% less hormone) and it does so locally. Only her uterus really comes in contact with the hormone, because it’s not introduced to her bloodstream.

    The list of side effects for the Mirena is the same as the list of side effects for the regular birth control pill. Some women just can’t tolerate any kind of hormonal birth control. I’m sorry you had a bad time with it, but please don’t discourage other women from trying what may turn out to be a good choice for them.

  252. Linnie M. Upton on July 24, 2014 at 2:56 PM

    I have had mine in since March 2012. Lighter & less often periods have been great. So that’s where everything else has come from. I aleady have depression & weight trouble, now they’re way worse. No sex drive, either. Now, all of a sudden, I’m having a very heavy period & what a drive. I’m calling to get it removed right now.

  253. Jane on July 25, 2014 at 9:47 PM

    I am so glad that I had my Mirena removed today! In fact, I have only had it for three weeks, and almost the next day since it was implanted I started feeling its side effects. Initially, these were minor, like some cramps and a little spotting. I thought these were temporary. Then within a few days I started having lower back pain that got really really bad since a couple of days ago to the point that I was having trouble bending, carrying my baby and doing things mom needs to do to care for the baby. I immediately linked it to Mirena. I had no doubt it was to blame because all these symptoms started almost immediately as my Mirena was implanted. Needless to say that I was feeling tired and fatigued all the time (the back pain made me weary). This morning as I was getting ready to see the doctor for Mirena removal I started having nausea. I do not know what other ‘wonderful’ side effects have been awaiting me had I not had it removed. I was lucky enough to have developed those side effects early on so I could get rid of this ‘device’ with minimum damage to my health and wellbeing. Luckily my doctor did not argue with me about the need to get it removed because the first thing I told her resolutely was that I want it out of my body immediately because…. Now 12 hours since it was gone I have almost no back pain anymore and my energy is coming back to me. The back pain has been decreasing gradually during the day. My nausea and cramping were gone immediately after Mirena was taken out. Thanks for your article and all the comments I know now that its side effects are widespread and can be very serious. I wish I had researched it properly before I agreed to have it. I would not recommend it to anyone.

  254. sarah on July 27, 2014 at 8:17 AM

    I’ve had Mirena for 4 years with zero problems and rare periods and before that, copper iud with heavy periods. Issues with Mirena that people describe look alot like other problems, such as thyroid disease, depression, etc. which are very common issues for mothers with kids who are the most likely Mirena users. I wouldn’t let these posts scare you away from a Mirena women! No periods, no stress, very reliable birth control option. Taking it out and risking pregnancy is not okay.

    • Hallie on July 27, 2014 at 9:09 AM

      Sarah,

      It sounds like you are assuming that because it works well for you, everyone that has shared their painful experiences must be wrong. I had my Mirena removed two weeks ago tomorrow. I had it inserted in February. Since February I have been tested for congestive heart failure, thyroid disorders and even an ultra sound on my legs to see if I had blood clots because my Dr could not figure out what was causing all the symptoms I’ve been experiencing – some of them were visually apparent to his educated eye, such as feet swollen so large I couldn’t wear my shoes. Loss of breath doing the most minor of physical activities – I’m normally a hiker/kayaker. All of the tests came back to show that I am very healthy and yet, I wasn’t. He agreed that the only thing left to rule out was the Mirena. It’s been a day short of two weeks since it’s removal and I am wearing my shoes again – which sounds minor but doesn’t feel so to me. And beginning to feel like myself again.

      Please be a bit thoughtful. That it works for you is great. I have a friend that loves it. She’s able to acknowledge that it didn’t work well for me, and another of our friends that also had horrible side effects. For some of us, it is NOT a positive addition to our lives. We need a place to go to get confirmation that what we’re experiencing is valid – and be empowered to take action to bring ourselves back to health.

      This blog is the only place on the web that I have found a group of women that has come together to share their experience and support those of us that found ourselves in that same subset of women.

    • Natasha on July 28, 2014 at 11:40 AM

      Sarah, I am very glad that the Mirena is working so well for you. I was tested for all of the above diseases and then some and all came back negative. I am not trying to scare anyone away from Mirena, I just wanted to share my experience and let others who may be having the same experience know that they are not alone/crazy/sick. For some of us the stress from all of the side effects of this medication was not, in the end, worth the risk either.

  255. Kate on July 28, 2014 at 9:14 AM

    I have had a mirena iud since March 2011. At almost exactly the 3 year mark I noticed I was starting to have extreme emotional reactions to stupid things. At that time I had a lot of personal stress, moving, taxes, problems with my businesses, so I thought it was just that. Also at the same time I stopped having a period all together and started getting yeast infections instead. My skin started to become extremely sensitive, I have irritation on my face that no amount of lotion seems to help the peeling and itchiness. The emotional problems still seem to be getting worse. Racing thoughts and shifts from extreme happiness to deep depression coupled with paranoia are keeping me awake at night. Not sleeping is causing the emotional problems to compound. I cry at everything. Happy, sad, angry, frustrated, a particularly cute commercial, doesn’t matter. When I first had the iud implanted I loved it, but I think after the halfway mark in its 5-year life cycle the hormones start to release unpredictibly. So if you’re going to get one, don’t plan on keeping it for 5 years. After 2.5 years pay close attention to any unusual symptoms and have it removed if you start to feel not yourself. I have not had mine removed yet, but I plan to as soon as I can.

  256. […] Mirena is a known as IUD that is supposed to control pregnancies for a long time of about five years. It is known to produce lower amounts of hormones to the body because it directly releases them to the uterus where they are required. It is true that anything which is induced in the woman’s body is received as a stranger by the blood cells and therefore tends to be eliminated as soon as possible. In the process of white blood cells trying to fight what they think is a pathogen in the system; they can be produced in large numbers. In fact, it can be a term as abnormal production of the toxic fighting blood cells and eventually make a woman to depreciate in her health. Injured women often sue the manufacturers and ask FDA to recall Mirena IUD.  Here’s one woman’s story about her experience with Mirena. […]

  257. Emily on August 4, 2014 at 3:39 PM

    I am get tub mine out Thursday. I’ve got many of the side effects and I’ve almost had it four years. Thanks to this article I made the decision.

  258. Ann on August 10, 2014 at 9:25 AM

    I have to admit, I didn’t really do much research on the mirena, it was recommended by a friend who was having a good experience with it. I too felt like a poster mama of the mirena. I had no real weight gain while on it. I did have several rounds of depression which I contributed to problems I was having at the time to cause the mood swings. I’ve had severe back pain which I figured was normal for myself and breast tenderness, almost similar to when I was pregnant. I’ve had abdominal pain and pelvic pain during sex for so long that I can’t remember if they started when I had the mirena inserted or before. I went the full 5 years and had it removed 4 months early simply because my husband and I were discussing the possibility of another child at the time. The fatigue I experienced was also considered dangerous because I was falling asleep at the wheel on the way to and from work, this was push on the fact that I had sleep apnea which required me to have a cpap machine to help me breathe at night. When I had the mirena removed I bleed for 6 weeks afterwards, it was so bad I was having clots and was afraid something was wrong and ended up going to my doctors. My PA said it was normal because my body was readjusting to the change. I never really complained about the problems I was having, except for some of the pain during sex. My husband is thinking I should report the problems I was having but im not sure.

  259. Brittany on August 14, 2014 at 3:44 PM

    I’m adding my comment to the positive mirena experiences! Surprised? 5 years ago after a accidental pregnancy while on the ortho tricyclen lo method (on the pill for 7 yrs), I chose mirena and I couldn’t have been happier. I did my research and found a experienced obgyn doctor to discuss this form of birth control. Ladies, it’s your responsibility to take control of your health by researching and finding a reputable doctor and ASK QUESTIONS. About everything, procedure, side effects at all phases (3 , 6 months, 1 yr ,5 yr and beyond), removal, etc and any other questions you may have if you are not satisfied with the doctors answer and ability to elaborate on your questions, find a doctor that you can trust and be happy with! That being said, I have had the mirena for the full 5 years with little to no side effects (slight cramping at first and spotting). This outweighs 5 years of worry free birth control and no inconvenient periods. As far as the hormones, ITS LOCALIZED to the uterus and a minimal amount of these hormones make it into the bloodstream. Unlike other BC that circulate throughout your whole body (which cause a slew of hormonal side effects I experienced on the pill). As far as not getting a period, all this does is stop the uterus lining from building up this is safe as “unnatual” as it sounds. I’d rather not have a period if I don’t have to. I’m on my second mirena and I’m STILL HAPPY! Those of you wondering was reinsertion is like; when your 5 years is up, (again it depends on your body and how experienced your chosen doctor is) but for me it the removal and reinsertion took less than 5 mins. Didn’t feel the removal at all just a small cramp after, reinsertion was painful for 30 secs when your cervix is gripped (pinching) and cramping similar to period during and afterword for a couple days. Compare this 30 second pain to 5 -10 years of painful periods and I’ll take that pinch gladly. I would recommend mirena to anyone I know. (Few friends are also happy with theirs) So remember ladies, bad experience and rumors spread more and faster than POSITIVE reviews. By all means I’m not downplaying the bad here, but someone needs to share the good too!

  260. sunnytwihard30 on August 15, 2014 at 12:27 AM

    I have been having some issues and my doctor is trying to push Mirena off on me. My sister had issues with hers and it actually went through her utuerus and was warned she may never have kids again. She did get pregnant, thankfully and I have a beautiful nephew that’s a miracle. But, back to me. I told the gyno that I do not want Mirena due to issues I know people have had. I will be more vigilant with this. I already suffer from high blood pressure and migraines and cramping and seriously, this thing can make your bleeding WORSE for the first 3 to six months?! That’s why they want me to get it, to control heavy flow, because I’d nearly bled out from a freaking period. Yeah, that convinces me that I want it. I suffer extreme exhaustion as it is from provera now, yay another side effect I don’t want. I’m really glad that I did my research and found your blog before I have to go back to my doctor. I will NOT be having this device inserted at all into my body. Thank you.

  261. Lenna on August 18, 2014 at 2:41 PM

    I’m not going to say anyone should or shouldn’t get the Mirena. Everyone is different; what works fine for one person may not work (or go horribly wrong) for another. BUT….I wouldn’t get another Mirena put in if you paid me. Insertion was HORRIBLE (and I’ve birthed a child), I could barely walk afterwards. Spotting and cramping were constant for the two months I had it in. I was crying hysterically three or four times a day, every day, about the tiniest things. I felt so tired all the time that I could hardly work up the energy to put a load of laundry on or check the mail. Despite the extreme fatigue, I also developed extremely bad insomnia: I think I slept an average of 1.5 hours a night while I had the Mirena in. I gained 16 pounds in two months, despite doing my best to maintain a daily yoga routine and healthy eating habits. Lower back pain, muscle spasms, constipation, breast pain, and terrible headaches began (and persisted). In two months I went from a happy, healthy woman who genuinely loved and enjoyed life to a sobbing, chubby, exhausted wreck, constantly in pain or discomfort. I wanted it to work. I wanted it to be the easy, period-free, low-side-effect option my doctor said it was. It wasn’t, though. Not for me. And believe me, if I’d known what I was about to go through, I NEVER would have gotten it put in. I got it taken out only five days ago and two days ago I finally slept through the night. Mirena might be a great option for some women, but definitely inform yourself thoroughly before making the ultimate decision. There’s this old saying about how when something sounds too good to be true….well, you know the rest.

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